Ghent University Academic Bibliography

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Your filters: cql: author exact 802003243371 or (type any "bookEditor issueEditor" and editor exact 802003243371) cql: subject exact "Law and Political Science"

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- Journal Article
- open access
The use of samples originating from doping control procedures for research purposes : a qualitative study

Thijs Devriendt, Amicia Phillips, Mahsa Shabani (UGent) and Pascal Borry

(2019) JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS. 14(3). p.254-261
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Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems?

Mahsa Shabani (UGent)

(2019) JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION. 26(1). p.76-80
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- Miscellaneous
Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?

Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, Lee Andrew Bygrave, Jessica Bell, Edward S. Dove, Christian Fuchsberger, Kristian Hveem, Michaela Th. Mayrhofer, Viviana Meraviglia, et al.

(2019) ANNALS OF INTERNAL MEDICINE. 170(5). p.332-335
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- Journal Article
- A1
- open access
Model consent clauses for rare disease research

Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kautmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani (UGent) , Eric Sid, et al.

(2019) BMC MEDICAL ETHICS. 20.
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- Journal Article
- A2
- open access
The challenges of the expanded availability of genomic information : an agenda-setting paper

Pascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, Martina C. Cornel, Heidi Carmen Howard, Oliver Feeney, Leigh Jackson, Deborah Mascalzoni, Álvaro Mendes, Borut Peterlin, et al.

(2018) JOURNAL OF COMMUNITY GENETICS. 9(2). p.103-116
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- Journal Article
- A1
Registered access : authorizing data access

Stephanie O. M. Dyke, Mikael Linden, Ilkka Lappalainen, Jordi Rambla De Argila, Knox Carey, David Lloyd, J. Dylan Spalding, Moran N. Cabili, Giselle Kerry, Julia Foreman, et al.

(2018) EUROPEAN JOURNAL OF HUMAN GENETICS. 26(12). p.1721-1731
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Variant data sharing by clinical laboratories through public databases : consent, privacy and further contact for research policies

Mahsa Shabani (UGent) , Stephanie O. M. Dyke, Luca Marelli and Pascal Borry

(2018) GENETICS IN MEDICINE. 21(5). p.1031-1037
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- Miscellaneous
Forensic epigenetic age estimation and beyond : ethical and legal considerations

Mahsa Shabani (UGent) , Pascal Borry, Inge Smeers and Bram Bekaert

(2018) TRENDS IN GENETICS. 34(7). p.489-491
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Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

Mahsa Shabani (UGent) and Pascal Borry

(2017) EUROPEAN JOURNAL OF HUMAN GENETICS. 26(2). p.149-156
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- Book Chapter
Genetic testing in Europe : an overview of the legal framework

Dominique Sprumont , Pascal Borry and Mahsa Shabani (UGent)

(2017) European health law.

Academic Bibliography

The use of samples originating from doping control procedures for research purposes : a qualitative study

Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems?

Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?

Model consent clauses for rare disease research

The challenges of the expanded availability of genomic information : an agenda-setting paper

Registered access : authorizing data access

Variant data sharing by clinical laboratories through public databases : consent, privacy and further contact for research policies

Forensic epigenetic age estimation and beyond : ethical and legal considerations

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

Genetic testing in Europe : an overview of the legal framework

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