Ghent University Academic Bibliography

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- open access
Data Access Governance

Mahsa Shabani (UGent) , Adrian Thorogood and Madeleine Murtagh

(2021) The Cambridge handbook of health research regulation. In Cambridge Law Handbooks p.187-196
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- Miscellaneous
Toward better governance of human genomic data

Kieran C. O’Doherty, Mahsa Shabani (UGent) , Edward S. Dove, Heidi Beate Bentzen, Pascal Borry, Michael M. Burgess, Don Chalmers, Jantina De Vries, Lisa Eckstein, Stephanie M. Fullerton, et al.

(2021) NATURE GENETICS. 53(1). p.2-8
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- Journal Article
- A1
- open access
Genomic sequencing capacity, data retention, and personal access to raw data in Europe

Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Mahsa Shabani (UGent) , Bartha M. Knoppers, Barbara Prainsack and Robert Koesters

(2020) Frontiers in Genetics. 11.
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- Journal Article
- A1
- open access
Pan-cancer analysis of whole genomes

Peter J. Campbell, Gad Getz, Jan O. Korbel, Joshua M. Stuart, Jennifer L. Jennings, Lincoln D. Stein, Marc D. Perry, Hardeep K. Nahal-Bose, B. F. Francis Ouellette, Constance H. Li, et al.

(2020) NATURE. 578(7793). p.82-93
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Consent insufficient for data release

Dianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, Pascal Borry, Mike Burgess, Wylie Burke, Don Chalmers, Mildred Cho, Edward Dove, Stephanie Fullerton, et al.

(2019) SCIENCE. 364(6439). p.445-446
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Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Mahsa Shabani (UGent) , Adrian Thorogood and Pascal Borry

(2016) EUROPEAN JOURNAL OF HUMAN GENETICS. 24(12). p.1671-1675
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Registered access : a ‘Triple-A’ approach

Stephanie O M Dyke, Emily Kirby, Mahsa Shabani (UGent) , Adrian Thorogood, Kazuto Kato and Bartha M Knoppers

(2016) EUROPEAN JOURNAL OF HUMAN GENETICS. 24(12). p.1676-1680

Academic Bibliography

Data Access Governance

Toward better governance of human genomic data

Genomic sequencing capacity, data retention, and personal access to raw data in Europe

Pan-cancer analysis of whole genomes

Consent insufficient for data release

Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Registered access : a ‘Triple-A’ approach

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