Show 10 5 10 15 20 50 100 250 Sort by year (new to old) Actions Download search results Subscribe to news feed Your filters: cql: author="Prainsack, Barbara" or (type any "bookEditor issueEditor" and editor="Prainsack, Barbara") Add to list Miscellaneous open access The European health data space : too big to succeed? Luca Marelli, Marthe Stevens, Tamar Sharon, Ine Van Hoyweghen, Martin Boeckhout, Ilaria Colussi, Alexander Degelsegger-Márquez, Seliem El-Sayed, Klaus Hoeyer, Robin van Kessel, et al. (2023) HEALTH POLICY. 135. Add to list Miscellaneous Toward better governance of human genomic data Kieran C. O’Doherty, Mahsa Shabani (UGent) , Edward S. Dove, Heidi Beate Bentzen, Pascal Borry, Michael M. Burgess, Don Chalmers, Jantina De Vries, Lisa Eckstein, Stephanie M. Fullerton, et al. (2021) NATURE GENETICS. 53(1). p.2-8 Add to list Journal Article A1 open access Public involvement in the governance of populationlevel biomedical research : unresolved questions and future directions Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, et al. (2021) JOURNAL OF MEDICAL ETHICS. 47(7). p.522-525 Add to list Journal Article A1 open access Genomic sequencing capacity, data retention, and personal access to raw data in Europe Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Mahsa Shabani (UGent) , Bartha M. Knoppers, Barbara Prainsack and Robert Koesters (2020) Frontiers in Genetics. 11. Add to list Journal Article A1 Consent insufficient for data release Dianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, Pascal Borry, Mike Burgess, Wylie Burke, Don Chalmers, Mildred Cho, Edward Dove, Stephanie Fullerton, et al. (2019) SCIENCE. 364(6439). p.445-446