Ghent University Academic Bibliography

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Accelerated epigenetic ageing in congenital heart disease : the AccelerAGE study

Tijs Tournoy (UGent) , Bo Daelman, Laurent Demulier (UGent) , Robert T Brooke, Alexander Van De Bruaene, Werner Budts, Philip Moons and Julie De Backer (UGent)

(2026) EUROPEAN HEART JOURNAL.
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Preventing cardiovascular complications in adults with congenital heart disease : predictors and outcomes of the levels of follow-up care

Fouke Ombelet, Ruben Willems (UGent) , Steffen Fieuws, Eva Goossens, Katya De Groote (UGent) , Werner Budts, Stephanne Moniotte, Michèle de Hosson (UGent) , Liesbet Van Bulck, Julie De Backer (UGent) , et al.

(2026) EUROPEAN JOURNAL OF PREVENTIVE CARDIOLOGY.
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Advance care planning in adults with congenital heart diseases : current practices, preferences and needs of 8,281 adults from 32 countries

Liesbet Van Bulck, Eva Goossens, Adrienne H. Kovacs, Koen Luyckx, Laila Akbar Ladak, Mohamed Leye, Alexander Van De Bruaene, Ming Chern Leong, Anna Kaneva, Rafael Brolio Pavão, et al.

(2026) CANADIAN JOURNAL OF CARDIOLOGY. 42(6). p.1338-1348
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Person-centred care in congenital heart disease : intercountry variation in patient-reported experiences across 32 countries

Birgitte Lykkeberg, Anne Vinggaard Christensen, Selina Kikkenborg Berg, Signe Holm Larsen, Liesbet Van Bulck, Eva Goossens, Adrienne H. Kovacs, Koen Luyckx, Laila Akbar Ladak, Mohamed Leye, et al.

(2026) INTERNATIONAL JOURNAL OF CARDIOLOGY. 444.
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Mapping memories : enhancing retrospective data with the life history calendar

Bo Daelman, Tijs Tournoy (UGent) , Davide Morselli, Koen Luyckx and Philip Moons

(2025) EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING. 24(8). p.1377-1382
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Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries

Philip Moons, Adrienne H Kovacs, Eva Goossens, Koen Luyckx, Laila Ladak, Mohamed Leye, Alexander Van De Bruaene, Ming Chern Leong, Anna Kaneva, Paulo Henrique Manso, et al.

(2025) HEART. 111(17). p.818-827
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2025 ESC guidelines for the management of cardiovascular disease and pregnancy : developed by the task force on the management of cardiovascular disease and pregnancy of the European Society of Cardiology (ESC) endorsed by the European Society of Gynecology (ESG)

Julie De Backer (UGent) , Kristina H Haugaa, Nina Eide Hasselberg, Michèle de Hosson (UGent) , Margarita Brida, Silvia Castelletti, Matthew Cauldwell, Elisabetta Cerbai, Lia Crotti, Natasja M S de Groot, et al.

(2025) EUROPEAN HEART JOURNAL. 46(43). p.4462-4568
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Frailty and cognitive function in middle-aged and older adults with congenital heart disease

Bo Daelman, Liesbet Van Bulck, Koen Luyckx, Adrienne H. Kovacs, Alexander Van De Bruaene, Magalie Ladouceur, Hsiao-Ling Yang, Ju Ryoung Moon, André Schmidt, Birgitte Lykkeberg, et al.

(2024) JOURNAL OF THE AMERICAN COLLEGE OF CARDIOLOGY. 83(12). p.1149-1159
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Last year of life of adults with congenital heart diseases : causes of death and patterns of care

Liesbet Van Bulck, Eva Goossens, Lucas Morin, Koen Luyckx, Fouke Ombelet, Ruben Willems (UGent) , Werner Budts, Katya De Groote (UGent) , Julie De Backer (UGent) , Lieven Annemans (UGent) , et al.

(2022) EUROPEAN HEART JOURNAL. 43(42). p.4483-4492
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Rationale, design and methodology of APPROACH-IS II : international study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

Liesbet Van Bulck, Adrienne H. Kovacs, Eva Goossens, Koen Luyckx, Ali Zaidi, Jou-Kou Wang, Dejuma Yadeta, Jonathan Windram, Alexander Van De Bruaene, Corina Thomet, et al.

(2022) INTERNATIONAL JOURNAL OF CARDIOLOGY. 363. p.30-39

Academic Bibliography

Accelerated epigenetic ageing in congenital heart disease : the AccelerAGE study

Preventing cardiovascular complications in adults with congenital heart disease : predictors and outcomes of the levels of follow-up care

Advance care planning in adults with congenital heart diseases : current practices, preferences and needs of 8,281 adults from 32 countries

Person-centred care in congenital heart disease : intercountry variation in patient-reported experiences across 32 countries

Mapping memories : enhancing retrospective data with the life history calendar

Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries

2025 ESC guidelines for the management of cardiovascular disease and pregnancy : developed by the task force on the management of cardiovascular disease and pregnancy of the European Society of Cardiology (ESC) endorsed by the European Society of Gynecology (ESG)

Frailty and cognitive function in middle-aged and older adults with congenital heart disease

Last year of life of adults with congenital heart diseases : causes of death and patterns of care

Rationale, design and methodology of APPROACH-IS II : international study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

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