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Advance care planning in adults with congenital heart diseases : current practices, preferences and needs of 8,281 adults from 32 countries
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Person-centred care in congenital heart disease : intercountry variation in patient-reported experiences across 32 countries
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Distribution-based thresholds for clinically important differences in patient-reported outcomes for adults with congenital heart disease
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Mapping memories : enhancing retrospective data with the life history calendar
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Quality of life in adults with transposition of the great arteries with a systemic right or left ventricle
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Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries
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Frailty and cognitive function in middle-aged and older adults with congenital heart disease
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Last year of life of adults with congenital heart diseases : causes of death and patterns of care
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Rationale, design and methodology of APPROACH-IS II : international study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease
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Diabetes-specific friend support in emerging adults with type 1 diabetes : does satisfaction with support matter?