Ghent University Academic Bibliography

A need for a forensic specific policy regarding experiencing sexuality : a study of quality of life in medium security patients

Lena Boons, Petra Habets, Leen Cappon (UGent) and Steven Degrauwe

(2025) JOURNAL OF FORENSIC PRACTICE.

Palliative care in hematology : a systematic review of the components, effectiveness, and implementation

Sophie Hochrath (UGent) , Naomi Dhollander (UGent) , Luc Deliens (UGent) , Rik Schots, Frederick Daenen (UGent) , Tessa Kerre (UGent) , Kim Beernaert (UGent) and Koen Pardon (UGent)

(2025) JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 69(1). p.114-133.e2

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Exploring patient engagement in atrial fibrillation with multimorbidity : impact on quality of life, medication adherence and healthcare perceptions : a multicountry cross-sectional study

Caterina Bosio, Dilara Usta, Donato Leo, Caterina Trevisan, Deirdre Lane, Guendalina Graffigna, Søren Paaske Johnsen, Mirko Petrovic (UGent) , Davide Liborio Vetrano, Stefania Maggi, et al.

(2025) BMJ OPEN. 15(3).

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Quality of end-of-life nursing home care in dementia : relatives’ perceptions

Isabel Vandenbogaerde, Aline De Vleminck (UGent) , Agnes van der Heide, Luc Deliens (UGent) , Lieve Van den Block (UGent) and Tinne Smets (UGent)

(2024) BMJ SUPPORTIVE & PALLIATIVE CARE.

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Self-management interventions for facilitating life participation for persons with kidney failure : a systematic review

Timothy Moreels (UGent) , Dominique Van de Velde (UGent) , Justine Goethals, Karsten Vanden Wyngaert (UGent) , Stijn De Baets (UGent) , Evi Nagler (UGent) , Tamara Leune (UGent) , Patricia De Vriendt (UGent) and Wim Van Biesen (UGent)

(2024) CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY. 19(2). p.189-201

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Disease course and psychosocial outcome for children and adolescents with anti-N-methyl-D-aspartate receptor encephalitis

Joke Depreitere, Inge Antrop (UGent) and Helene Verhelst (UGent)

(2024) CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY. 29(2). p.648-660

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Long-term health-related quality of life in head and neck cancer survivors : a large multinational study

Katherine J. Taylor, Cecilie D. Amdal, Kristin Bjordal, Guro L. Astrup, Bente B. Herlofson, Fréderic Duprez (UGent) , Ricardo R. Gama, Alexandre Jacinto, Eva Hammerlid, Melissa Scricciolo, et al.

(2024) INTERNATIONAL JOURNAL OF CANCER. 154(10). p.1772-1785

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Investigating experiences of people with advanced breast or lung cancer in their natural context : protocol for an experience sampling study

Joran Geeraerts, Lara Pivodic (UGent) , Kim De Nooijer, Eline Naert (UGent) , Geert Crombez (UGent) , Mark De Ridder and Lieve Van den Block (UGent)

(2024) BMJ OPEN. 14(2).

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Multiple sclerosis multidisciplinary care : a national survey and lessons for the global community

Liesbeth Van Hijfte (UGent) , Melissa Cambron (UGent) , Brigitte Capron, Bernard Dachy, Danny Decoo, Dominique Dive, Bénédicte Dubois, Souraya El Sankari, Frederic London, Gaetano Perrotta, et al.

(2024) MULTIPLE SCLEROSIS AND RELATED DISORDERS. 85.

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Investigating the cost-effectiveness of telemonitoring patients with cardiac implantable electronic devices : systematic review

Sarah Raes (UGent) , Andrea Prezzi (UGent) , Rik Willems, Hein Heidbuchel and Lieven Annemans (UGent)

(2024) JOURNAL OF MEDICAL INTERNET RESEARCH. 26.

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Care and support for elder people with intellectual disabilities beyond the pursuit of ageing 'in place' : towards constructing a space to (be)long

Tineke Schiettecat (UGent) , Jorrit Campens, Griet Roets (UGent) , Nico De Witte, Joan Lesseliers and Ilse Goethals

(2024) EUROPEAN JOURNAL OF SOCIAL WORK. 27(5). p.1020-1032

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Clinical benefits with 300 IR HDM SLIT tablet in Europeans with house dust mite allergic rhinitis : post hoc analysis of a large phase 3 trial

Oliver Pfaar, Frédéric De Blay, Giorgio Walter Canonica, Thomas B. Casale, Philippe Gevaert (UGent) , Peter Hellings (UGent) , Krzysztof Kowal, Giovanni Passalacqua, Miguel Tortajada-Girbés, Carmen Vidal, et al.

(2024) WORLD ALLERGY ORGANIZATION JOURNAL. 17(1).

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Experiences of patients with unilateral vocal fold paralysis : a mixed-methods study of the insider's perspective

Imke Kissel (UGent) , Iris Meerschman (UGent) , Peter Tomassen (UGent) , Evelien D'haeseleer (UGent) and Kristiane Van Lierde (UGent)

(2024) JOURNAL OF VOICE.

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Good-enough care? How patients’ perceptions of counselors’ professional skills relate to everyday life in forensic long-stay units

Steven Degrauwe, Kim Dierckx (UGent) , Vicky Van Bulck, Marie-Céline Gouwy (UGent) , Lize Verbeke (UGent) , Jasmine Vergauwe and Barbara De Clercq (UGent)

(2024) JOURNAL OF PSYCHIATRIC PRACTICE. 30(4). p.284-291

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Coping strategies of patients with advanced lung or colorectal cancer over time : insights from the international ACTION study

K. L. Luu, P. Mager, D. Nieboer, F. E. Witkamp, L. J. Jabbarian, S. Payne, M. Groenvold, K. Pollock, G. Miccinesi, Luc Deliens (UGent) , et al.

(2024) PSYCHO-ONCOLOGY. 33(10).

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Validity and reliability of the Dutch Children's Voice Handicap Index-10

Anke Adriaansen (UGent) , Kristiane Van Lierde (UGent) , Iris Meerschman (UGent) , Charlot Everaert and Evelien D'haeseleer (UGent)

(2024) JOURNAL OF VOICE. 38(6). p.1528.e11-1528.e19

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Changes in quality of life (QoL) following treatment entry in a drug-free therapeutic community in Belgium

El-Amine Zerrouk (UGent) , Clara De Ruysscher (UGent) , Stijn Vandevelde (UGent) , Luca Littera, Jessica De Maeyer and Wouter Vanderplasschen (UGent)

(2024) JOURNAL OF SUBSTANCE USE. p.1-8

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Uncovering the daily experiences of people living with advanced cancer using an experience sampling method questionnaire : development, content validation, and optimization study

Joran Geeraerts, Lara Pivodic (UGent) , Lise Rosquin (UGent) , Eline Naert (UGent) , Geert Crombez (UGent) , Mark De Ridder and Lieve Van den Block (UGent)

(2024) JMIR CANCER. 10.

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International Consensus Statement on Allergy and Rhinology : Sinonasal Tumors

Edward C. Kuan, Eric W. Wang, Nithin D. Adappa, Daniel M. Beswick, Nyall R. London, Shirley Y. Su, Marilene B. Wang, Waleed M. Abuzeid, Borislav Alexiev, Jeremiah A. Alt, et al.

(2024) INTERNATIONAL FORUM OF ALLERGY & RHINOLOGY. 14(2). p.149-608

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Implementation and evaluation of a navigation program for people with cancer in old age and their family caregivers : study protocol for the EU NAVIGATE International Pragmatic Randomized Controlled Trial

Tinne Smets (UGent) , Lara Pivodic (UGent) , Rose Miranda (UGent) , Fien Van Campe (UGent) , Chelsea Vinckier (UGent) , Barbara Pesut, Wendy Duggleby, Andrew N. Davies, Amanda Lavan, Peter May, et al.

(2024) TRIALS. 25(1).

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Anaemia and quality of life in chronic kidney disease : a consensus document from the European Anaemia of CKD Alliance

Indranil Dasgupta, Corinne Isnard Bagnis, Matteo Floris, Hans Furuland, Daniel Gallego Zurro, Loreto Gesualdo, Nathalie Heirman, Roberto Minutolo, Antonello Pani, Jose Portoles, et al.

(2024) CLINICAL KIDNEY JOURNAL. 17(8).

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EPOS2020/EUFOREA expert opinion on defining disease states and therapeutic goals in CRSwNP

W J Fokkens, E De Corso, V Backer, M Bernal-Sprekelsen, L Bjermer, C von Buchwald, A Chaker, Z Diamant, Philippe Gevaert (UGent) , J Han, et al.

(2024) RHINOLOGY. 62(3). p.287-298

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Integrating patient-centred and tumour-centred cancer care : the EU-MyPath implementation project offers an innovative digital solution with care pathways

Anne-Lore Scherrens (UGent) , An Jacobs, Kim Beernaert (UGent) , Koen Pardon (UGent) , Eveline Raemdonck (UGent) , Marie Fallon, Kathrin Cresswell, Nusa Faric, Robin Williams, Tonje Lundeby, et al.

(2024) PALLIATIVE CARE & SOCIAL PRACTICE. 18.

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Addition of prophylactic compression garments to standard care to prevent irreversible lower limb lymphoedema after gynaeco-oncological therapy (Gynolymph) : protocol for a randomised controlled trial embedded within an observation cohort study

Tina Decorte (UGent) , Vickie Van Besien (UGent) , Charlotte Van Calster, Luc Vanden Bossche (UGent) , Caren Randon (UGent) , Nele Devoogdt and Christel Monten (UGent)

(2024) BMJ OPEN. 14(10).

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PEACE V—Salvage Treatment of OligoRecurrent nodal prostate cancer Metastases (STORM) : acute toxicity of a randomized phase 2 trial

Piet Ost (UGent) , Shankar Siva, Sigmund Brabrand, Piet Dirix, Nick Liefhooghe, François-Xavier Otte, Alfonso Gomez-Iturriaga, Wouter Everaerts, Mohamed Shelan, Antonio Conde-Moreno, et al.

(2024) EUROPEAN UROLOGY ONCOLOGY. 7(3). p.462-468

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The mediating role of self-directed ageism on frailty and quality of life in community-dwelling older people

Patricia Vanleerberghe, Claudia Claes (UGent) , Jorrit Campens, Dominique Verte and Nico De Witte

(2024) DISCOVER SOCIAL SCIENCE AND HEALTH. 4(1).

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The role of the estimand framework in the analysis of patient-reported outcomes in single-arm trials: a case study in oncology

Doranne Thomassen, Satrajit Roychoudhury, Cecilie Delphin Amdal, Dries Reynders (UGent) , Jammbe Z. Musoro, Willi Sauerbrei, Els Goetghebeur (UGent) , Saskia le Cessie (UGent) and [ missing ] on behalf of the SISAQOL-IMI Work Package 3

(2024) BMC MEDICAL RESEARCH METHODOLOGY. 24(1).

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The impact of sexual violence on quality of life and mental wellbeing in transgender and gender-diverse adolescents and young adults : a mixed-methods approach

Aisa Burgwal (UGent) , Jara Van Wiele and Joz Motmans (UGent)

(2023) HEALTHCARE. 11(16).

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COVID-19 vaccination in patients with primary immunodeficiencies : an international survey on patient vaccine hesitancy and self-reported adverse events

Martine Pergent, Filomeen Haerynck (UGent) , Levi Hoste (UGent) and Ann Gardulf

(2023) FRONTIERS IN IMMUNOLOGY. 14.

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Quality of life in dogs with idiopathic epilepsy and their owners with an emphasis on breed : a pilot study

Maud F. N. Hamers, Marta Plonek, Sofie Bhatti (UGent) , Niklas Bergknut, M. Montserrat Diaz Espineira, Koen M. Santifort and Paul J. J. Mandigers

(2023) FRONTIERS IN VETERINARY SCIENCE. 9.

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Illness-related parental stress and quality of life in children with kidney diseases

Elke De Bruyne (UGent) , Lore Willem, Koen Van Hoeck, Sarah Reynaert, Sylvie Vankerckhove, Brigitte Adams, Stéphanie Leroi, Laure Collard, Aline Michaux, Nathalie Godefroid, et al.

(2023) PEDIATRIC NEPHROLOGY. 38(8). p.2719-2731

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Single-arm studies involving patient-reported outcome data in oncology : a literature review on current practice

Limin Liu (UGent) , Jungyeon Choi, Jammbe Z. Musoro, Willi Sauerbrei, Cecilie Delphin Amdal, Ahu Alanya, Yolanda Barbachano, Joseph C. Cappelleri, Ragnhild Sørum Falk, Mallorie H. Fiero, et al.

(2023) LANCET ONCOLOGY. 24(5). p.e197-e206

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Aligning Quality of Life and guidelines for off-label psychotropic drugs in adults with intellectual disabilities and challenging behaviour

Pauline Laermans, Filip Morisse (UGent) , Marco Lombardi (UGent) , Sylvie Gérard, Stijn Vandevelde (UGent) , Gerda de Kuijper, Kurt Audenaert (UGent) and Claudia Claes (UGent)

(2023) INTERNATIONAL JOURNAL OF DEVELOPMENTAL DISABILITIES. 69(3). p.398-413

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Formerly detained adolescents’ narratives : on the interplay between quality of life and desistance

Nele Van Hecke, Florien Meulewaeter (UGent) , Wouter Vanderplasschen (UGent) , Lore Van Damme, Jan Naert (UGent) , Sara Rowaert (UGent) and Stijn Vandevelde (UGent)

(2023) INTERNATIONAL JOURNAL OF OFFENDER THERAPY AND COMPARATIVE CRIMINOLOGY. 67(6-7). p.618-639

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A tool for assessing the quality of life of adolescents in youth care : psychometric properties of the QOLYSS

Chris Swerts (UGent) , Marco Lombardi (UGent) , Laura E. Gómez, Dries Verlet (UGent) , Dries Debeer (UGent) , Jessica De Maeyer and Wouter Vanderplasschen (UGent)

(2023) PSYCHOSOCIAL INTERVENTION. 32(1). p.23-31

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The impact of in-centre haemodialysis treatment on the everyday life of older adults with end-stage kidney disease : a qualitative study

Timothy Moreels (UGent) , Dominique Van de Velde (UGent) , Stephanie Van Duyse, Karsten Vanden Wyngaert (UGent) , Tamara Leune (UGent) , Wim Van Biesen (UGent) and Patricia De Vriendt (UGent)

(2023) CLINICAL KIDNEY JOURNAL. 16(10). p.1674-1683

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The impact of covid-19 lockdown on the quality of life, meaningful activities, and frailty in community-dwelling octogenarians : a study in Belgium

Axelle Costenoble, Stijn De Baets (UGent) , Veerle Knoop, Aziz Debain, Ivan Bautmans, Dominique Verté, Ellen Gorus and Patricia De Vriendt

(2023) AGING & MENTAL HEALTH. 27(8). p.1567-1575

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The effect of age on the hearing-related quality of life in normal-hearing adults

Katrien Kestens (UGent) , Hannah Keppler (UGent) , Dorien Ceuleers (UGent) , Stephanie Lecointre, Flore De Langhe and Sofie Degeest (UGent)

(2023) JOURNAL OF COMMUNICATION DISORDERS. 106.

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Development of the hearing-related quality of life questionnaire for auditory-visual, cognitive and psychosocial functioning (hAVICOP)

Dorien Ceuleers (UGent) , Nele Baudonck (UGent) , Hannah Keppler (UGent) , Katrien Kestens (UGent) , Ingeborg Dhooge (UGent) and Sofie Degeest (UGent)

(2023) JOURNAL OF COMMUNICATION DISORDERS. 101.

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Between liveability and accessibility in the Bois de la Cambre

Nicola da Schio, Claire Pelgrims, Anneloes Vandenbroucke and Sebastiano Cincinnato (UGent)

(2023) BRUSSELS STUDIES.

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Self-Management Analysis in Chronic Conditions (SMACC) checklist : an international consensus-based tool to develop, compare and evaluate self-management support programmes

Timothy Moreels (UGent) , Ellen Cruyt (UGent) , Stijn De Baets (UGent) , Lore Andries, Magelien Arts-Tielemans, Maria Rodriguez-Bailon, Aileen Bergström, Kyara Boete, Iris Bormans, Ursula Costa, et al.

(2023) BMJ OPEN. 13(12).

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Supportive care among head and neck cancer patients : an initial validation of the Dutch version of the Performance Status Scale for Head and Neck Cancer (D-PSS-HN)

Margot Baudelet (UGent) , Leen Van den Steen, Sophie Wouters, Marc De Bodt (UGent) , Olivier Vanderveken, Fréderic Duprez (UGent) and Gwen Van Nuffelen (UGent)

(2023) INTERNATIONAL JOURNAL OF LANGUAGE & COMMUNICATION DISORDERS. 58(5). p.1668-1679

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Investigating levothyroxine use and its association with thyroid health in patients with hypothyroidism : a community pharmacy study

Els Mehuys (UGent) , Bruno Lapauw (UGent) , Guy T'Sjoen (UGent) , Thierry Christiaens (UGent) , An De Sutter (UGent) , Stephane Steurbaut, Inge Van Tongelen (UGent) and Koen Boussery (UGent)

(2023) THYROID. 33(8). p.918-926

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The role of cancer nurses in cancer-related pain management in Europe

Johan De Munter (UGent) , Nikolina Dodlek, Ani Khmaladze, Sara Torcato Parreira, Helena Ullgren, Rik de Man, Floris A. de Jong and Wendy H. Oldenmenger

(2023) PALLIATIVE CARE & SOCIAL PRACTICE. 17.

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Serious long-term effects of head and neck cancer from the survivors' point of view

Katherine J. Taylor, Cecilie D. Amdal, Kristin Bjordal, Guro L. Astrup, Bente B. Herlofson, Fréderic Duprez (UGent) , Ricardo R. Gama, Alexandre Jacinto, Eva Hammerlid, Melissa Scricciolo, et al.

(2023) HEALTHCARE. 11(6).

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Quality of life outcomes for adolescents in youth care

Chris Swerts (UGent) , Laura E. E. Gomez, Margo Dewitte (UGent) , Jessica De Maeyer (UGent) and Wouter Vanderplasschen (UGent)

(2023) CHILD INDICATORS RESEARCH. 16(5). p.1987-2011

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Do cancer centres and palliative care wards routinely measure patients’ quality of life? An international cross-sectional survey study

Rose Miranda (UGent) , Eveline Raemdonck (UGent) , Luc Deliens (UGent) , Stein Kaasa, Camilla Zimmermann, Gary Rodin, Lenzo Robijn (UGent) , Tonje Lundeby, Isabelle Houbracken and Kim Beernaert (UGent)

(2023) SUPPORTIVE CARE IN CANCER. 31(8).

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Scoping review of the association between bacterial vaginosis and emotional, sexual and social health

Judith Brusselmans, An De Sutter (UGent) , Brecht Devleesschauwer (UGent) , Hans Verstraelen (UGent) and Piet Cools (UGent)

(2023) BMC WOMENS HEALTH. 23(1).

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Improving meaningful activities of daily living and life-roles for patients receiving renal replacement therapy

Timothy Moreels (UGent) , Dominique Van de Velde (UGent) , Karsten Vanden Wyngaert (UGent) , Tamara Leune (UGent) , Wim Van Biesen (UGent) and Patricia De Vriendt (UGent)

(2022) 27ste Belgisch Dialyse Symposium, Abstracts.

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Long-term efficacy and safety of omalizumab for nasal polyposis in an open-label extension study

Philippe Gevaert (UGent) , Rebecca Saenz, Jonathan Corren, Joseph K. Han, Joaquim Mullol, Stella E. Lee, Randall A. Ow, Rui Zhao, Monet Howard, Kit Wong, et al.

(2022) JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY. 149(3). p.957-965.e3