Ghent University Academic Bibliography

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Your filters: cql: author="Kaye, Jane" or (type exact bookEditor and editor="Kaye, Jane")

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- Miscellaneous
Toward better governance of human genomic data

Kieran C. O’Doherty, Mahsa Shabani (UGent) , Edward S. Dove, Heidi Beate Bentzen, Pascal Borry, Michael M. Burgess, Don Chalmers, Jantina De Vries, Lisa Eckstein, Stephanie M. Fullerton, et al.

(2021) NATURE GENETICS. 53(1). p.2-8
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- Miscellaneous
Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?

Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, Lee Andrew Bygrave, Jessica Bell, Edward S. Dove, Christian Fuchsberger, Kristian Hveem, Michaela Th. Mayrhofer, Viviana Meraviglia, et al.

(2019) ANNALS OF INTERNAL MEDICINE. 170(5). p.332-335
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Consent insufficient for data release

Dianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, Pascal Borry, Mike Burgess, Wylie Burke, Don Chalmers, Mildred Cho, Edward Dove, Stephanie Fullerton, et al.

(2019) SCIENCE. 364(6439). p.445-446
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- Journal Article
- A1
- open access
Including all voices in international data-sharing governance

Jane Kaye, Sharon F Terry, Eric Juengst, Sarah Coy, Jennifer R Harris, Don Chalmers, Edward S Dove, Isabelle Budin-Ljøsne, Clement Adebamowo, Emilomo Ogbe (UGent) , et al.

(2018) HUMAN GENOMICS. 12.
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- Journal Article
- A1
- open access
Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives

Patrick Woolley, Michelle mcgowan, Harriet Teare, Victoria Coathup, jennifer Fishman, Richard Settersten, Sigrid Sterckx (UGent) , Jane kaye and Eric Juengst

(2016) BMC MEDICAL ETHICS. 17(33).
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- Journal Article
- A1
- open access
eRegistries : electronic registries for maternal and child health

J Frederik Frøen, Sonja L Myhre, Michael J Frost, Doris Chou, Garrett Mehl, Lale Say, Socheat Cheng, Ingvild Fjeldheim, Ingrid K Friberg, Steve French, et al.

(2016) BMC PREGNANCY AND CHILDBIRTH. 16.
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- Journal Article
- A1
- open access
A review of the key issues associated with the commercialization of biobanks

Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani (UGent) , Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley, et al.

(2014) JOURNAL OF LAW AND THE BIOSCIENCES. 1(1). p.94-110

Academic Bibliography

Toward better governance of human genomic data

Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?

Consent insufficient for data release

Including all voices in international data-sharing governance

Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives

eRegistries : electronic registries for maternal and child health

A review of the key issues associated with the commercialization of biobanks

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