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How do people living with chronic conditions and their informal caregivers experience primary care? A phenomenological‐hermeneutical study

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Abstract
Aims and objectives Gaining insight in how people living with chronic conditions experience primary healthcare within their informal network. Background The primary healthcare system is challenged by the increasing number of people living with chronic conditions. To strengthen chronic care management, literature and policy plans point to a person-centred approach of care (PCC). A first step to identify an appropriate strategy to implement PCC is to gain more insight into the care experiences of these people and their informal caregivers. Design A phenomenological-hermeneutical philosophy is used. The study is in line with the Consolidated Criteria for Reporting Qualitative Research Guidelines (COREQ). Method In-depth, semi-structured interviews with people living with chronic conditions and informal caregiver dyads (PCDs) (n = 16; 32 individuals) were conducted. An open-ended interview guide was used to elaborate on the PCDs' experiences regarding primary care. A purposive, maximal variation sampling was applied to recruit the participants. Results Based on sixteen PCDs' reflections, ten themes were identified presenting their experiences with primary care and described quality care as listening and giving attention to what people with chronic conditions want, to what they strive for, and above all to promote their autonomy in a context wherein they are supported by a team of formal caregivers, family and friends. Conclusion To meet the PCDs' needs, self-management should be addressed in an interprofessional environment in which the PCD is an important partner. The findings may facilitate a shift to encourage PCDs in their strengths by enabling them to share their personal goals and by working towards meaningful activities in team collaboration. Relevance to clinical practice Three strategies-self-management support, goal-oriented care, and interprofessional collaboration-have been suggested to improve the PCDs' primary care experiences. These strategies could guide nursing practice in using more and improve high-quality nursing care.
Keywords
General Medicine, General Nursing, chronic illness, lived experiences, nursing practice, phenomenological-hermeneutical, primary care, qualitative study, PERSON-CENTERED CARE, CHRONIC ILLNESS, DECISION-MAKING, SELF-MANAGEMENT, OLDER-ADULTS, COMMUNICATION, PERCEPTIONS, INTEGRATION, INTERVIEWS, QUALITY

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MLA
Boeykens, Dagje, et al. “How Do People Living with Chronic Conditions and Their Informal Caregivers Experience Primary Care? A Phenomenological‐hermeneutical Study.” JOURNAL OF CLINICAL NURSING, 2022, doi:10.1111/jocn.16243.
APA
Boeykens, D., Sirimsi, M. M., Timmermans, L., Hartmann, M. L., Anthierens, S., De Loof, H., … De Vriendt, P. (2022). How do people living with chronic conditions and their informal caregivers experience primary care? A phenomenological‐hermeneutical study. JOURNAL OF CLINICAL NURSING. https://doi.org/10.1111/jocn.16243
Chicago author-date
Boeykens, Dagje, Muhammed Mustafa Sirimsi, Lotte Timmermans, Maja Lopez Hartmann, Sibyl Anthierens, Hans De Loof, Kristel De Vliegher, et al. 2022. “How Do People Living with Chronic Conditions and Their Informal Caregivers Experience Primary Care? A Phenomenological‐hermeneutical Study.” JOURNAL OF CLINICAL NURSING. https://doi.org/10.1111/jocn.16243.
Chicago author-date (all authors)
Boeykens, Dagje, Muhammed Mustafa Sirimsi, Lotte Timmermans, Maja Lopez Hartmann, Sibyl Anthierens, Hans De Loof, Kristel De Vliegher, Veerle Foulon, Ine Huybrechts, Lies Lahousse, Peter Pype, Birgitte Schoenmakers, Peter Van Bogaert, Kris Van de Broeck, Ann Van Hecke, Nick Verhaeghe, Mieke Vermandere, Emily Verté, Dominique Van de Velde, and Patricia De Vriendt. 2022. “How Do People Living with Chronic Conditions and Their Informal Caregivers Experience Primary Care? A Phenomenological‐hermeneutical Study.” JOURNAL OF CLINICAL NURSING. doi:10.1111/jocn.16243.
Vancouver
1.
Boeykens D, Sirimsi MM, Timmermans L, Hartmann ML, Anthierens S, De Loof H, et al. How do people living with chronic conditions and their informal caregivers experience primary care? A phenomenological‐hermeneutical study. JOURNAL OF CLINICAL NURSING. 2022;
IEEE
[1]
D. Boeykens et al., “How do people living with chronic conditions and their informal caregivers experience primary care? A phenomenological‐hermeneutical study,” JOURNAL OF CLINICAL NURSING, 2022.
@article{8741484,
  abstract     = {{Aims and objectives Gaining insight in how people living with chronic conditions experience primary healthcare within their informal network. Background The primary healthcare system is challenged by the increasing number of people living with chronic conditions. To strengthen chronic care management, literature and policy plans point to a person-centred approach of care (PCC). A first step to identify an appropriate strategy to implement PCC is to gain more insight into the care experiences of these people and their informal caregivers. Design A phenomenological-hermeneutical philosophy is used. The study is in line with the Consolidated Criteria for Reporting Qualitative Research Guidelines (COREQ). Method In-depth, semi-structured interviews with people living with chronic conditions and informal caregiver dyads (PCDs) (n = 16; 32 individuals) were conducted. An open-ended interview guide was used to elaborate on the PCDs' experiences regarding primary care. A purposive, maximal variation sampling was applied to recruit the participants. Results Based on sixteen PCDs' reflections, ten themes were identified presenting their experiences with primary care and described quality care as listening and giving attention to what people with chronic conditions want, to what they strive for, and above all to promote their autonomy in a context wherein they are supported by a team of formal caregivers, family and friends. Conclusion To meet the PCDs' needs, self-management should be addressed in an interprofessional environment in which the PCD is an important partner. The findings may facilitate a shift to encourage PCDs in their strengths by enabling them to share their personal goals and by working towards meaningful activities in team collaboration. Relevance to clinical practice Three strategies-self-management support, goal-oriented care, and interprofessional collaboration-have been suggested to improve the PCDs' primary care experiences. These strategies could guide nursing practice in using more and improve high-quality nursing care.}},
  author       = {{Boeykens, Dagje and Sirimsi, Muhammed Mustafa and Timmermans, Lotte and Hartmann, Maja Lopez and Anthierens, Sibyl and De Loof, Hans and De Vliegher, Kristel and Foulon, Veerle and Huybrechts, Ine and Lahousse, Lies and Pype, Peter and Schoenmakers, Birgitte and Van Bogaert, Peter and Van de Broeck, Kris and Van Hecke, Ann and Verhaeghe, Nick and Vermandere, Mieke and Verté, Emily and Van de Velde, Dominique and De Vriendt, Patricia}},
  issn         = {{0962-1067}},
  journal      = {{JOURNAL OF CLINICAL NURSING}},
  keywords     = {{General Medicine,General Nursing,chronic illness,lived experiences,nursing practice,phenomenological-hermeneutical,primary care,qualitative study,PERSON-CENTERED CARE,CHRONIC ILLNESS,DECISION-MAKING,SELF-MANAGEMENT,OLDER-ADULTS,COMMUNICATION,PERCEPTIONS,INTEGRATION,INTERVIEWS,QUALITY}},
  language     = {{eng}},
  title        = {{How do people living with chronic conditions and their informal caregivers experience primary care? A phenomenological‐hermeneutical study}},
  url          = {{http://dx.doi.org/10.1111/jocn.16243}},
  year         = {{2022}},
}

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