Pain-related injustice appraisals in youth with sickle cell disease : a preliminary investigation
- Author
- Megan M. Miller, Deanna D. Rumble, Adam T. Hirsh, Tine Vervoort (UGent) , Lori E. Crosby, Avi Madan-Swain, Jeffrey Lebensburger, Anna M. Hood and Zina Trost
- Organization
- Abstract
- Objectives. Sickle cell disease (SCD) is a genetic disorder that affects approximately 100,000 Americans, the majority of whom are African American. SCD-related pain often has deleterious effects on functioning and quality of life. The inherited nature of SCD, SCD-related stigma, and serious physical and functional impact of SCD-related pain create a situation ripe for individuals to appraise their SCD-related pain as unfair or unjust. The aim of this preliminary investigation is to explore the extent to which pediatric patients with SCD appraise their pain as unjust and how these appraisals relate to functioning. Methods. Participants were youth with SCD (N=30, mean age=11.3, 57% boys) who attended a hematology clinic visit. Patients were invited to complete paper-based questionnaires assessing pain-related injustice appraisals, pain catastrophizing, pain and hurt, functional disability, depression, anxiety, and peer relationships. Results. Results of hierarchical regressions indicate that pain-related injustice significantly predicted functional disability, depression, and anxiety after controlling for patient pain and catastrophizing. Conclusions. These findings suggest that pain-related injustice appraisals are an important contributor to the pain experience of youth with SCD. Early identification and remediation of pain-related injustice appraisals could have long-term functional benefits for youth with SCD.
- Keywords
- QUALITY-OF-LIFE, HEALTH-RELATED STIGMA, PERCEIVED INJUSTICE, RACIAL, DISPARITIES, DEPRESSIVE SYMPTOMS, FUNCTIONAL OUTCOMES, HOPELESSNESS, THEORY, SCALE DEVELOPMENT, YOUNG-ADULTS, CHILDREN, Injustice, Sickle Cell, Functioning, Anxiety, Depression, Youth
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Citation
Please use this url to cite or link to this publication: http://hdl.handle.net/1854/LU-8741355
- MLA
- Miller, Megan M., et al. “Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease : A Preliminary Investigation.” PAIN MEDICINE, vol. 22, no. 10, 2021, pp. 2207–17, doi:10.1093/pm/pnab001.
- APA
- Miller, M. M., Rumble, D. D., Hirsh, A. T., Vervoort, T., Crosby, L. E., Madan-Swain, A., … Trost, Z. (2021). Pain-related injustice appraisals in youth with sickle cell disease : a preliminary investigation. PAIN MEDICINE, 22(10), 2207–2217. https://doi.org/10.1093/pm/pnab001
- Chicago author-date
- Miller, Megan M., Deanna D. Rumble, Adam T. Hirsh, Tine Vervoort, Lori E. Crosby, Avi Madan-Swain, Jeffrey Lebensburger, Anna M. Hood, and Zina Trost. 2021. “Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease : A Preliminary Investigation.” PAIN MEDICINE 22 (10): 2207–17. https://doi.org/10.1093/pm/pnab001.
- Chicago author-date (all authors)
- Miller, Megan M., Deanna D. Rumble, Adam T. Hirsh, Tine Vervoort, Lori E. Crosby, Avi Madan-Swain, Jeffrey Lebensburger, Anna M. Hood, and Zina Trost. 2021. “Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease : A Preliminary Investigation.” PAIN MEDICINE 22 (10): 2207–2217. doi:10.1093/pm/pnab001.
- Vancouver
- 1.Miller MM, Rumble DD, Hirsh AT, Vervoort T, Crosby LE, Madan-Swain A, et al. Pain-related injustice appraisals in youth with sickle cell disease : a preliminary investigation. PAIN MEDICINE. 2021;22(10):2207–17.
- IEEE
- [1]M. M. Miller et al., “Pain-related injustice appraisals in youth with sickle cell disease : a preliminary investigation,” PAIN MEDICINE, vol. 22, no. 10, pp. 2207–2217, 2021.
@article{8741355,
abstract = {{Objectives. Sickle cell disease (SCD) is a genetic disorder that affects approximately 100,000 Americans, the majority of whom are African American. SCD-related pain often has deleterious effects on functioning and quality of life. The inherited nature of SCD, SCD-related stigma, and serious physical and functional impact of SCD-related pain create a situation ripe for individuals to appraise their SCD-related pain as unfair or unjust. The aim of this preliminary investigation is to explore the extent to which pediatric patients with SCD appraise their pain as unjust and how these appraisals relate to functioning. Methods. Participants were youth with SCD (N=30, mean age=11.3, 57% boys) who attended a hematology clinic visit. Patients were invited to complete paper-based questionnaires assessing pain-related injustice appraisals, pain catastrophizing, pain and hurt, functional disability, depression, anxiety, and peer relationships. Results. Results of hierarchical regressions indicate that pain-related injustice significantly predicted functional disability, depression, and anxiety after controlling for patient pain and catastrophizing. Conclusions. These findings suggest that pain-related injustice appraisals are an important contributor to the pain experience of youth with SCD. Early identification and remediation of pain-related injustice appraisals could have long-term functional benefits for youth with SCD.}},
author = {{Miller, Megan M. and Rumble, Deanna D. and Hirsh, Adam T. and Vervoort, Tine and Crosby, Lori E. and Madan-Swain, Avi and Lebensburger, Jeffrey and Hood, Anna M. and Trost, Zina}},
issn = {{1526-2375}},
journal = {{PAIN MEDICINE}},
keywords = {{QUALITY-OF-LIFE,HEALTH-RELATED STIGMA,PERCEIVED INJUSTICE,RACIAL,DISPARITIES,DEPRESSIVE SYMPTOMS,FUNCTIONAL OUTCOMES,HOPELESSNESS,THEORY,SCALE DEVELOPMENT,YOUNG-ADULTS,CHILDREN,Injustice,Sickle Cell,Functioning,Anxiety,Depression,Youth}},
language = {{eng}},
number = {{10}},
pages = {{2207--2217}},
title = {{Pain-related injustice appraisals in youth with sickle cell disease : a preliminary investigation}},
url = {{http://doi.org/10.1093/pm/pnab001}},
volume = {{22}},
year = {{2021}},
}
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