@article{8708583,
  abstract     = {{Objective. To investigate the impact of living with a cleft lip and/or cleft palate (CL/P) on sociodemographic variables, quality of life, esthetics, life satisfaction, and social distress in Dutch-speaking adolescents and adults. Design. Cross-sectional study. Participants. Thirty Dutch-speaking participants with a CL/P with a mean age of 26.93 years (SD = 11.69) and an age and gender matched control group of 30 participants (19 men and 11 women) without a CL/P with a mean age of 26.87 years (SD = 11.73). Main outcome measures. Self-reported outcomes of sociodemographics, quality of life, esthetics, life satisfaction, social distress, and impact of cleft on well-being and functioning. Results. No significant differences in educational level, employment, monthly net income, marital status, and having children were found between participants with and without a CL/P. In addition, quality of life, overall esthetics, life satisfaction, and social distress did not differ between the two groups. Among participants with CL/P, there were no gender differences in the influence of their CL/P on daily functioning, well-being, social contacts, family life, applying for a job, work, education, or leisure time. Conclusion. The findings revealed no differences between participants with and without a CL/P with regard to sociodemographics, quality of life, esthetics, life satisfaction, or social distress. There were no gender differences in the influence of cleft on well-being and functioning. Longitudinal research can help determine possible fluctuations in the impact of living with a CL/P across the lifespan.}},
  author       = {{Alighieri, Cassandra and D'haeseleer, Evelien and Bettens, Kim and Bonte, Katrien and Vermeersch, Hubert and Vermeire, Nele and Claeys, Merel and Sseremba, Daniel and Galiwango, George and Van Lierde, Kristiane}},
  issn         = {{1055-6656}},
  journal      = {{CLEFT PALATE-CRANIOFACIAL JOURNAL}},
  keywords     = {{cleft lip and palate,outcomes,employment,functioning,FACIAL APPEARANCE,SCALE SWLS,SATISFACTION,PERCEPTIONS,ADJUSTMENT,DIFFERENCE,VALIDATION,IMPACT}},
  language     = {{eng}},
  number       = {{4}},
  pages        = {{S65--S73}},
  title        = {{Sociodemographics and quality of life in Dutch-speaking adolescents and adults with and without a cleft lip and/or palate}},
  url          = {{http://doi.org/10.1177/10556656211024513}},
  volume       = {{59}},
  year         = {{2022}},
}

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