Public views on genetics and genetic testing : a survey of the general public in Belgium
- Author
- Davit Chokoshvili, Carmen Belmans, Roxanne Poncelet, Sofie Sanders, Deborah Vaes, Danya Vears, Sandra Janssens (UGent) , Isabelle Huys and Pascal Borry
- Organization
- Abstract
- Aims: To explore the views of the Belgian public on various topics surrounding genetics and genetic testing (GT). Materials and Methods: A written questionnaire was administered to visitors of the annual cartoon festival in Knokke-Heist, Belgium, during the summer of 2014. The main theme of the festival was challenges and progress in human genetics and it was attended by more than 100,000 visitors. Results: The survey was completed by 1182 respondents, resulting in a demographically diverse sample with a mean age of 48.5 years. Our respondents expressed moderate interest in predictive GT, with 39.1% willing to learn about their predisposition to diseases through GT and 49.5% indicating interest in getting tested exclusively for treatable/preventable diseases. We observed higher interest in GT for reproductive purposes, such as preconception screening for recessive disorders (53.8%) and prenatal GT (60.7%). A substantial minority (46.4%) of the respondents were worried that GT could further stigmatize people with disabilities, while 39.7% believed that carrier screening for recessive diseases would lead to an inferior image of people affected by them. Conclusion: Paying due attention to the attitudes, beliefs, and concerns of the general public is important to ensure ethically sound and socially acceptable implementation of new genetic technologies.
- Keywords
- attitudes, survey, genetic testing, questionnaire
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Citation
Please use this url to cite or link to this publication: http://hdl.handle.net/1854/LU-8700797
- MLA
- Chokoshvili, Davit, et al. “Public Views on Genetics and Genetic Testing : A Survey of the General Public in Belgium.” GENETIC TESTING AND MOLECULAR BIOMARKERS, vol. 21, no. 3, 2017, pp. 195–201, doi:10.1089/gtmb.2016.0418.
- APA
- Chokoshvili, D., Belmans, C., Poncelet, R., Sanders, S., Vaes, D., Vears, D., … Borry, P. (2017). Public views on genetics and genetic testing : a survey of the general public in Belgium. GENETIC TESTING AND MOLECULAR BIOMARKERS, 21(3), 195–201. https://doi.org/10.1089/gtmb.2016.0418
- Chicago author-date
- Chokoshvili, Davit, Carmen Belmans, Roxanne Poncelet, Sofie Sanders, Deborah Vaes, Danya Vears, Sandra Janssens, Isabelle Huys, and Pascal Borry. 2017. “Public Views on Genetics and Genetic Testing : A Survey of the General Public in Belgium.” GENETIC TESTING AND MOLECULAR BIOMARKERS 21 (3): 195–201. https://doi.org/10.1089/gtmb.2016.0418.
- Chicago author-date (all authors)
- Chokoshvili, Davit, Carmen Belmans, Roxanne Poncelet, Sofie Sanders, Deborah Vaes, Danya Vears, Sandra Janssens, Isabelle Huys, and Pascal Borry. 2017. “Public Views on Genetics and Genetic Testing : A Survey of the General Public in Belgium.” GENETIC TESTING AND MOLECULAR BIOMARKERS 21 (3): 195–201. doi:10.1089/gtmb.2016.0418.
- Vancouver
- 1.Chokoshvili D, Belmans C, Poncelet R, Sanders S, Vaes D, Vears D, et al. Public views on genetics and genetic testing : a survey of the general public in Belgium. GENETIC TESTING AND MOLECULAR BIOMARKERS. 2017;21(3):195–201.
- IEEE
- [1]D. Chokoshvili et al., “Public views on genetics and genetic testing : a survey of the general public in Belgium,” GENETIC TESTING AND MOLECULAR BIOMARKERS, vol. 21, no. 3, pp. 195–201, 2017.
@article{8700797,
abstract = {{Aims: To explore the views of the Belgian public on various topics surrounding genetics and genetic testing (GT). Materials and Methods: A written questionnaire was administered to visitors of the annual cartoon festival in Knokke-Heist, Belgium, during the summer of 2014. The main theme of the festival was challenges and progress in human genetics and it was attended by more than 100,000 visitors. Results: The survey was completed by 1182 respondents, resulting in a demographically diverse sample with a mean age of 48.5 years. Our respondents expressed moderate interest in predictive GT, with 39.1% willing to learn about their predisposition to diseases through GT and 49.5% indicating interest in getting tested exclusively for treatable/preventable diseases. We observed higher interest in GT for reproductive purposes, such as preconception screening for recessive disorders (53.8%) and prenatal GT (60.7%). A substantial minority (46.4%) of the respondents were worried that GT could further stigmatize people with disabilities, while 39.7% believed that carrier screening for recessive diseases would lead to an inferior image of people affected by them. Conclusion: Paying due attention to the attitudes, beliefs, and concerns of the general public is important to ensure ethically sound and socially acceptable implementation of new genetic technologies.}},
author = {{Chokoshvili, Davit and Belmans, Carmen and Poncelet, Roxanne and Sanders, Sofie and Vaes, Deborah and Vears, Danya and Janssens, Sandra and Huys, Isabelle and Borry, Pascal}},
issn = {{1945-0265}},
journal = {{GENETIC TESTING AND MOLECULAR BIOMARKERS}},
keywords = {{attitudes,survey,genetic testing,questionnaire}},
language = {{eng}},
number = {{3}},
pages = {{195--201}},
title = {{Public views on genetics and genetic testing : a survey of the general public in Belgium}},
url = {{http://doi.org/10.1089/gtmb.2016.0418}},
volume = {{21}},
year = {{2017}},
}
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