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A Q-sort analysis investigating the social perception of a chronic disease : between sympathy and stigma

Author
Organization
Abstract
Although epilepsy has nowadays an optimist clinical prognosis (Jacoby, Snape, & Baker, 2005), several recent studies point out that the social prognosis of epilepsy appears to be less encouraging. Our study aims at employing a different approach in the investigation of both knowledge and attitudes in the social representation of this disorder: Q-methodology (Stephenson, 1935). According to the general principles of Qmethodology, we first conducted semi-structured interviews regarding the perception of children with epilepsy. The interviews tackled 3 main domains: the children's (perceived) neuropsychological functioning, their academic performance and their social interactions. For each dimension, two types of statements were included: knowledge (true or false) and stigma statements. 40 of these statements were included in a Q-sort procedure applied to 34 respondents: medical staff, parents of children with epilepsy and of non-epileptic children. Their views on children with epilepsy aggregated in three different types of social perception: the rationalist-optimists, the protective-ignorants and the stigmatizers. The meaning and the impact of these social perceptions are discussed in relation to their implications for public health interventions directed at improving the quality of life for people with epilepsy.
Keywords
childhood epilepsy, Q-methodology, social perception, stigma

Citation

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MLA
Boroş, Smaranda, et al. “A Q-Sort Analysis Investigating the Social Perception of a Chronic Disease : Between Sympathy and Stigma.” COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR, vol. 11, no. 2, 2007, pp. 437–59.
APA
Boroş, S., Visu-Petra, L., & Cheie, L. (2007). A Q-sort analysis investigating the social perception of a chronic disease : between sympathy and stigma. COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR, 11(2), 437–459.
Chicago author-date
Boroş, Smaranda, Laura Visu-Petra, and Lavinia Cheie. 2007. “A Q-Sort Analysis Investigating the Social Perception of a Chronic Disease : Between Sympathy and Stigma.” COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR 11 (2): 437–59.
Chicago author-date (all authors)
Boroş, Smaranda, Laura Visu-Petra, and Lavinia Cheie. 2007. “A Q-Sort Analysis Investigating the Social Perception of a Chronic Disease : Between Sympathy and Stigma.” COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR 11 (2): 437–459.
Vancouver
1.
Boroş S, Visu-Petra L, Cheie L. A Q-sort analysis investigating the social perception of a chronic disease : between sympathy and stigma. COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR. 2007;11(2):437–59.
IEEE
[1]
S. Boroş, L. Visu-Petra, and L. Cheie, “A Q-sort analysis investigating the social perception of a chronic disease : between sympathy and stigma,” COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR, vol. 11, no. 2, pp. 437–459, 2007.
@article{8697451,
  abstract     = {{Although epilepsy has nowadays an optimist clinical prognosis (Jacoby, Snape, & Baker, 2005), several recent studies point out that the social prognosis of epilepsy appears to be less encouraging. Our study aims at employing a different approach in the investigation of both knowledge and attitudes in the social representation of this disorder: Q-methodology (Stephenson, 1935). According to the general principles of Qmethodology, we first conducted semi-structured interviews regarding the perception of children with epilepsy. The interviews tackled 3 main domains: the children's (perceived) neuropsychological functioning, their academic performance and their social interactions. For each dimension, two types of statements were included: knowledge (true or false) and stigma statements. 40 of these statements were included in a Q-sort procedure applied to 34 respondents: medical staff, parents of children with epilepsy and of non-epileptic children. Their views on children with epilepsy aggregated in three different types of social perception: the rationalist-optimists, the protective-ignorants and the stigmatizers. The meaning and the impact of these social perceptions are discussed in relation to their implications for public health interventions directed at improving the quality of life for people with epilepsy.}},
  author       = {{Boroş, Smaranda and Visu-Petra, Laura and Cheie, Lavinia}},
  issn         = {{1224-8398}},
  journal      = {{COGNIŢIE, CREIER, COMPORTAMENT = COGNITION, BRAIN, BEHAVIOR}},
  keywords     = {{childhood epilepsy,Q-methodology,social perception,stigma}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{437--459}},
  title        = {{A Q-sort analysis investigating the social perception of a chronic disease : between sympathy and stigma}},
  volume       = {{11}},
  year         = {{2007}},
}