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Pilot study to develop and test palliative care quality indicators for nursing homes

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Abstract
An increasingly frail population in nursing homes accentuates the need for high quality care at the end of life and better access to palliative care in this context. Implementation of palliative care and its outcomes can be monitored by using quality indicators. Therefore, we developed a quality indicator set for palliative care in nursing homes and a tailored measurement procedure while using a mixed-methods design. We developed the instrument in three phases: (1) literature search, (2) interviews with experts, and (3) indicator and measurement selection by expert consensus (RAND/UCLA). Second, we pilot tested and evaluated the instrument in nine nursing homes in Flanders, Belgium. After identifying 26 indicators in the literature and expert interviews, 19 of them were selected through expert consensus. Setting-specific themes were advance care planning, autonomy, and communication with family. The quantitative and qualitative analyses showed that the indicators were measurable, had good preliminary face validity and discriminative power, and were considered to be useful in terms of quality monitoring according to the caregivers. The quality indicators can be used in a large implementation study and process evaluation in order to achieve continuous monitoring of the access to palliative care for all of the residents in nursing homes.
Keywords
nursing homes, quality indicators, quality measurement, palliative care, quality of care, end of life care

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MLA
Dupont, Charless, et al. “Pilot Study to Develop and Test Palliative Care Quality Indicators for Nursing Homes.” INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, vol. 18, no. 2, 2021, doi:10.3390/ijerph18020829.
APA
Dupont, C., De Schreye, R., Cohen, J., De Ridder, M., Van den Block, L., Deliens, L., & Leemans, K. (2021). Pilot study to develop and test palliative care quality indicators for nursing homes. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 18(2). https://doi.org/10.3390/ijerph18020829
Chicago author-date
Dupont, Charless, R De Schreye, Joachim Cohen, M De Ridder, Lieve Van den Block, Luc Deliens, and K Leemans. 2021. “Pilot Study to Develop and Test Palliative Care Quality Indicators for Nursing Homes.” INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 18 (2). https://doi.org/10.3390/ijerph18020829.
Chicago author-date (all authors)
Dupont, Charless, R De Schreye, Joachim Cohen, M De Ridder, Lieve Van den Block, Luc Deliens, and K Leemans. 2021. “Pilot Study to Develop and Test Palliative Care Quality Indicators for Nursing Homes.” INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH 18 (2). doi:10.3390/ijerph18020829.
Vancouver
1.
Dupont C, De Schreye R, Cohen J, De Ridder M, Van den Block L, Deliens L, et al. Pilot study to develop and test palliative care quality indicators for nursing homes. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH. 2021;18(2).
IEEE
[1]
C. Dupont et al., “Pilot study to develop and test palliative care quality indicators for nursing homes,” INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, vol. 18, no. 2, 2021.
@article{8689716,
  abstract     = {{An increasingly frail population in nursing homes accentuates the need for high quality care at the end of life and better access to palliative care in this context. Implementation of palliative care and its outcomes can be monitored by using quality indicators. Therefore, we developed a quality indicator set for palliative care in nursing homes and a tailored measurement procedure while using a mixed-methods design. We developed the instrument in three phases: (1) literature search, (2) interviews with experts, and (3) indicator and measurement selection by expert consensus (RAND/UCLA). Second, we pilot tested and evaluated the instrument in nine nursing homes in Flanders, Belgium. After identifying 26 indicators in the literature and expert interviews, 19 of them were selected through expert consensus. Setting-specific themes were advance care planning, autonomy, and communication with family. The quantitative and qualitative analyses showed that the indicators were measurable, had good preliminary face validity and discriminative power, and were considered to be useful in terms of quality monitoring according to the caregivers. The quality indicators can be used in a large implementation study and process evaluation in order to achieve continuous monitoring of the access to palliative care for all of the residents in nursing homes.}},
  articleno    = {{829}},
  author       = {{Dupont, Charless and De Schreye, R and Cohen, Joachim and De Ridder, M and Van den Block, Lieve and Deliens, Luc and Leemans, K}},
  issn         = {{1661-7827}},
  journal      = {{INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH}},
  keywords     = {{nursing homes,quality indicators,quality measurement,palliative care,quality of care,end of life care}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{15}},
  title        = {{Pilot study to develop and test palliative care quality indicators for nursing homes}},
  url          = {{http://doi.org/10.3390/ijerph18020829}},
  volume       = {{18}},
  year         = {{2021}},
}

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