Advanced search
Add to list

Developing and evaluating a participatory arts programme for cancer patients and their caregivers

Author
Organization
Abstract
Objectives Cancer patients, survivors and caregivers often encounter severe distress, having significant consequences to wellbeing, functionality and physical health. This study developed and evaluated a participatory arts programme to determine if such could help to improve the wellbeing of cancer patients and their caregivers. Methods To inform the development of a participatory arts programme, cancer patients and their caregivers at an Organisation of European Cancer Institute (OECI)-designated cancer centre were asked which activities they would wish to engage in (anonymous survey one). A programme was then developed and trialled for 1 year. Following participation, we explored the satisfaction and any benefits of taking part (anonymous survey two). Results Survey one had a participation rate of 70%. In this survey, participants indicated they preferred group-based activities (61%) over an individual approachto take place on a monthly basis (46%). The developed programme ran from December 2018 to December 2019, with 435 patients and caregivers taking part. Two hundred and eighteen completed survey two and revealed a positive response to both the structure and content of the programme and its impact on the wellbeing of patients and caregivers. The majority indicated they felt (much) betterfrom participating in the participatory arts programme. Conclusion This study points out the interest and potential value of a participatory arts programme to the perceived wellbeing. This suggests such programmes could be incorporated into cancer care provision, to serve as psychosocial support. The latter is particularly relevant for improving the lives, wellbeing and health of cancer patients and those supporting them.
Keywords
Participatory arts programme, cancer, satisfaction, patient, caregiver, DISTRESS, FATIGUE, IMPACT

Citation

Please use this url to cite or link to this publication:

MLA
Lefebvre, Tessa, et al. “Developing and Evaluating a Participatory Arts Programme for Cancer Patients and Their Caregivers.” ACTA CLINICA BELGICA, 2021, doi:10.1080/17843286.2020.1773653.
APA
Lefebvre, T., Tack, L., Meersman, M., Vanneste, H., Cool, L., Van Eygen, K., … R. Debruyne, P. (2021). Developing and evaluating a participatory arts programme for cancer patients and their caregivers. ACTA CLINICA BELGICA. https://doi.org/10.1080/17843286.2020.1773653
Chicago author-date
Lefebvre, Tessa, Laura Tack, Marlies Meersman, Hilde Vanneste, Lieselot Cool, Koen Van Eygen, Karin Stellamans, et al. 2021. “Developing and Evaluating a Participatory Arts Programme for Cancer Patients and Their Caregivers.” ACTA CLINICA BELGICA. https://doi.org/10.1080/17843286.2020.1773653.
Chicago author-date (all authors)
Lefebvre, Tessa, Laura Tack, Marlies Meersman, Hilde Vanneste, Lieselot Cool, Koen Van Eygen, Karin Stellamans, Sofie Derijcke, Philippe Vergauwe, Jos De Backer, Rebecca Chandler, Pauline Lane, Tom Boterberg, and Philip R. Debruyne. 2021. “Developing and Evaluating a Participatory Arts Programme for Cancer Patients and Their Caregivers.” ACTA CLINICA BELGICA. doi:10.1080/17843286.2020.1773653.
Vancouver
1.
Lefebvre T, Tack L, Meersman M, Vanneste H, Cool L, Van Eygen K, et al. Developing and evaluating a participatory arts programme for cancer patients and their caregivers. ACTA CLINICA BELGICA. 2021;
IEEE
[1]
T. Lefebvre et al., “Developing and evaluating a participatory arts programme for cancer patients and their caregivers,” ACTA CLINICA BELGICA, 2021.
@article{8688484,
  abstract     = {{Objectives
Cancer patients, survivors and caregivers often encounter severe distress, having significant consequences to wellbeing, functionality and physical health. This study developed and evaluated a participatory arts programme to determine if such could help to improve the wellbeing of cancer patients and their caregivers.

Methods
To inform the development of a participatory arts programme, cancer patients and their caregivers at an Organisation of European Cancer Institute (OECI)-designated cancer centre were asked which activities they would wish to engage in (anonymous survey one). A programme was then developed and trialled for 1 year. Following participation, we explored the satisfaction and any benefits of taking part (anonymous survey two).

Results
Survey one had a participation rate of 70%. In this survey, participants indicated they preferred group-based activities (61%) over an individual approachto take place on a monthly basis (46%). The developed programme ran from December 2018 to December 2019, with 435 patients and caregivers taking part. Two hundred and eighteen completed survey two and revealed a positive response to both the structure and content of the programme and its impact on the wellbeing of patients and caregivers. The majority indicated they felt (much) betterfrom participating in the participatory arts programme.

Conclusion
This study points out the interest and potential value of a participatory arts programme to the perceived wellbeing. This suggests such programmes could be incorporated into cancer care provision, to serve as psychosocial support. The latter is particularly relevant for improving the lives, wellbeing and health of cancer patients and those supporting them.}},
  author       = {{Lefebvre, Tessa and Tack, Laura and Meersman, Marlies and Vanneste, Hilde and Cool, Lieselot and Van Eygen, Koen and Stellamans, Karin and Derijcke, Sofie and Vergauwe, Philippe and De Backer, Jos and Chandler, Rebecca and Lane, Pauline and Boterberg, Tom and R. Debruyne, Philip}},
  issn         = {{1784-3286}},
  journal      = {{ACTA CLINICA BELGICA}},
  keywords     = {{Participatory arts programme,cancer,satisfaction,patient,caregiver,DISTRESS,FATIGUE,IMPACT}},
  language     = {{eng}},
  pages        = {{7}},
  title        = {{Developing and evaluating a participatory arts programme for cancer patients and their caregivers}},
  url          = {{http://dx.doi.org/10.1080/17843286.2020.1773653}},
  year         = {{2021}},
}

Altmetric
View in Altmetric
Web of Science
Times cited: