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The perception of people with cancer of starting a conversation about palliative care : a qualitative interview study

Anne-Lore Scherrens (UGent) , Joachim Cohen (UGent) , Annick Mahieu, Luc Deliens (UGent) , Benedicte Deforche (UGent) and Kim Beernaert (UGent)
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Abstract
Objective Communication and patient-centred care are important determinants for timely initiation of palliative care. Therefore, we aimed to understand and explain the behaviour "starting a conversation about palliative care with a professional carer" from the perspective of people with incurable cancer. Methods A qualitative study using semi-structured face-to-face interviews with 25 people with incurable cancer: 13 not (yet) receiving palliative care and 12 receiving palliative care; 4 started the conversation themselves. Determinants related to the defined behaviour were matched with concepts in existing behavioural theories. Results Both positive and negative stances towards starting a conversation about palliative care with a professional carer were found. Influencing behavioural factors were identified, such as knowledge (e.g. about palliative care), attitude (e.g. association of palliative care with quality of life) and social influence (e.g. relationship with the professional carer). We modelled the determinants into a behavioural model. Conclusion The behavioural model developed helps to explain why people with incurable cancer do or do not start a conversation about palliative care with their professional carer. By targeting the modifiable determinants of the model, promising interventions can be developed to help patients taken the initiative in communication about palliative care with a professional carer.
Keywords
Oncology, behaviour, behavioural theory, health communication, health promotion, neoplasms, palliative care, Qualitative research, terminal care, OF-LIFE CARE, FAMILY PHYSICIANS, ADVANCE CARE, COMMUNICATION, BARRIERS, NEEDS, END, PERSPECTIVES, DISCUSSIONS, OUTCOMES

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MLA
Scherrens, Anne-Lore, et al. “The Perception of People with Cancer of Starting a Conversation about Palliative Care : A Qualitative Interview Study.” EUROPEAN JOURNAL OF CANCER CARE, vol. 29, no. 5, 2020, doi:10.1111/ecc.13282.
APA
Scherrens, A.-L., Cohen, J., Mahieu, A., Deliens, L., Deforche, B., & Beernaert, K. (2020). The perception of people with cancer of starting a conversation about palliative care : a qualitative interview study. EUROPEAN JOURNAL OF CANCER CARE, 29(5). https://doi.org/10.1111/ecc.13282
Chicago author-date
Scherrens, Anne-Lore, Joachim Cohen, Annick Mahieu, Luc Deliens, Benedicte Deforche, and Kim Beernaert. 2020. “The Perception of People with Cancer of Starting a Conversation about Palliative Care : A Qualitative Interview Study.” EUROPEAN JOURNAL OF CANCER CARE 29 (5). https://doi.org/10.1111/ecc.13282.
Chicago author-date (all authors)
Scherrens, Anne-Lore, Joachim Cohen, Annick Mahieu, Luc Deliens, Benedicte Deforche, and Kim Beernaert. 2020. “The Perception of People with Cancer of Starting a Conversation about Palliative Care : A Qualitative Interview Study.” EUROPEAN JOURNAL OF CANCER CARE 29 (5). doi:10.1111/ecc.13282.
Vancouver
1.
Scherrens A-L, Cohen J, Mahieu A, Deliens L, Deforche B, Beernaert K. The perception of people with cancer of starting a conversation about palliative care : a qualitative interview study. EUROPEAN JOURNAL OF CANCER CARE. 2020;29(5).
IEEE
[1]
A.-L. Scherrens, J. Cohen, A. Mahieu, L. Deliens, B. Deforche, and K. Beernaert, “The perception of people with cancer of starting a conversation about palliative care : a qualitative interview study,” EUROPEAN JOURNAL OF CANCER CARE, vol. 29, no. 5, 2020.
@article{8669057,
  abstract     = {{Objective Communication and patient-centred care are important determinants for timely initiation of palliative care. Therefore, we aimed to understand and explain the behaviour "starting a conversation about palliative care with a professional carer" from the perspective of people with incurable cancer. Methods A qualitative study using semi-structured face-to-face interviews with 25 people with incurable cancer: 13 not (yet) receiving palliative care and 12 receiving palliative care; 4 started the conversation themselves. Determinants related to the defined behaviour were matched with concepts in existing behavioural theories. Results Both positive and negative stances towards starting a conversation about palliative care with a professional carer were found. Influencing behavioural factors were identified, such as knowledge (e.g. about palliative care), attitude (e.g. association of palliative care with quality of life) and social influence (e.g. relationship with the professional carer). We modelled the determinants into a behavioural model. Conclusion The behavioural model developed helps to explain why people with incurable cancer do or do not start a conversation about palliative care with their professional carer. By targeting the modifiable determinants of the model, promising interventions can be developed to help patients taken the initiative in communication about palliative care with a professional carer.}},
  articleno    = {{e13282}},
  author       = {{Scherrens, Anne-Lore and Cohen, Joachim and Mahieu, Annick and Deliens, Luc and Deforche, Benedicte and Beernaert, Kim}},
  issn         = {{0961-5423}},
  journal      = {{EUROPEAN JOURNAL OF CANCER CARE}},
  keywords     = {{Oncology,behaviour,behavioural theory,health communication,health promotion,neoplasms,palliative care,Qualitative research,terminal care,OF-LIFE CARE,FAMILY PHYSICIANS,ADVANCE CARE,COMMUNICATION,BARRIERS,NEEDS,END,PERSPECTIVES,DISCUSSIONS,OUTCOMES}},
  language     = {{eng}},
  number       = {{5}},
  pages        = {{14}},
  title        = {{The perception of people with cancer of starting a conversation about palliative care : a qualitative interview study}},
  url          = {{http://dx.doi.org/10.1111/ecc.13282}},
  volume       = {{29}},
  year         = {{2020}},
}

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