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Parents' perspectives on participation of young children with attention deficit hyperactivity disorder, developmental coordination disorder, and/ or autism spectrum disorder : a systematic scoping review

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Abstract
Background During the early years of a child's life, participation is essential for learning and development. Children with disabilities are at risk for decreased participation. The interplay between environment and participation is identified as one of the most important factors influencing successful participation. The objective of this scoping review was to synthesize peer-reviewed literature about barriers and facilitators of participation according to the perspective of parents of children younger than 6 years with Attention Deficit Hyperactivity Disorder (ADHD), Autism Spectrum Disorder (ASD), and/ or Developmental Coordination Disorder (DCD). Methods The scoping review followed Arksey and O'Malley's framework. Relevant studies were identified by a comprehensive search of scientific databases (PubMed and Web of Science). Studies describing perspectives of parents regarding their child's participation, written in English, and published between 2001 and September 2017 were included. Results A total of 854 articles were retrieved, with 13 meeting the criteria. Elements contributing to perceived barriers and facilitators were identified and organized according to the International Classification of Functioning, Child-Youth framework. Concepts contained in these studies were linked to "activities and participation" (general tasks and demands, such as bedtime and dinner routines, and social, civic life, such as play and leisure). Environment-focused factors identified were situated on "support and relationships, " "attitudes, " and "services, systems, and policies." Conclusion The review revealed guidelines focusing on family-centred care, communication with, and providing information to parents with young children with developmental disabilities (ADHD, DCD, and/ or ASD).
Keywords
ADHD, ASD, children, DCD, parents' perspectives, participation, PHYSICAL-DISABILITIES, CEREBRAL-PALSY, IMPROVING PARTICIPATION, OCCUPATIONAL-THERAPY, LEISURE ACTIVITIES, SCHOOL, YOUTH, RECREATION, PEOPLE, ENVIRONMENTS

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MLA
Coussens, Marieke, et al. “Parents’ Perspectives on Participation of Young Children with Attention Deficit Hyperactivity Disorder, Developmental Coordination Disorder, and/ or Autism Spectrum Disorder : A Systematic Scoping Review.” CHILD CARE HEALTH AND DEVELOPMENT, vol. 46, no. 2, 2020, pp. 232–43, doi:10.1111/cch.12735.
APA
Coussens, M., Van Driessen, E., De Baets, S., Van Regenmortel, J., Desoete, A., Oostra, A., … Van de Velde, D. (2020). Parents’ perspectives on participation of young children with attention deficit hyperactivity disorder, developmental coordination disorder, and/ or autism spectrum disorder : a systematic scoping review. CHILD CARE HEALTH AND DEVELOPMENT, 46(2), 232–243. https://doi.org/10.1111/cch.12735
Chicago author-date
Coussens, Marieke, Evy Van Driessen, Stijn De Baets, Jasmine Van Regenmortel, Annemie Desoete, Ann Oostra, Guy Vanderstraeten, Hilde Van Waelvelde, and Dominique Van de Velde. 2020. “Parents’ Perspectives on Participation of Young Children with Attention Deficit Hyperactivity Disorder, Developmental Coordination Disorder, and/ or Autism Spectrum Disorder : A Systematic Scoping Review.” CHILD CARE HEALTH AND DEVELOPMENT 46 (2): 232–43. https://doi.org/10.1111/cch.12735.
Chicago author-date (all authors)
Coussens, Marieke, Evy Van Driessen, Stijn De Baets, Jasmine Van Regenmortel, Annemie Desoete, Ann Oostra, Guy Vanderstraeten, Hilde Van Waelvelde, and Dominique Van de Velde. 2020. “Parents’ Perspectives on Participation of Young Children with Attention Deficit Hyperactivity Disorder, Developmental Coordination Disorder, and/ or Autism Spectrum Disorder : A Systematic Scoping Review.” CHILD CARE HEALTH AND DEVELOPMENT 46 (2): 232–243. doi:10.1111/cch.12735.
Vancouver
1.
Coussens M, Van Driessen E, De Baets S, Van Regenmortel J, Desoete A, Oostra A, et al. Parents’ perspectives on participation of young children with attention deficit hyperactivity disorder, developmental coordination disorder, and/ or autism spectrum disorder : a systematic scoping review. CHILD CARE HEALTH AND DEVELOPMENT. 2020;46(2):232–43.
IEEE
[1]
M. Coussens et al., “Parents’ perspectives on participation of young children with attention deficit hyperactivity disorder, developmental coordination disorder, and/ or autism spectrum disorder : a systematic scoping review,” CHILD CARE HEALTH AND DEVELOPMENT, vol. 46, no. 2, pp. 232–243, 2020.
@article{8656826,
  abstract     = {{Background During the early years of a child's life, participation is essential for learning and development. Children with disabilities are at risk for decreased participation. The interplay between environment and participation is identified as one of the most important factors influencing successful participation. The objective of this scoping review was to synthesize peer-reviewed literature about barriers and facilitators of participation according to the perspective of parents of children younger than 6 years with Attention Deficit Hyperactivity Disorder (ADHD), Autism Spectrum Disorder (ASD), and/ or Developmental Coordination Disorder (DCD). Methods The scoping review followed Arksey and O'Malley's framework. Relevant studies were identified by a comprehensive search of scientific databases (PubMed and Web of Science). Studies describing perspectives of parents regarding their child's participation, written in English, and published between 2001 and September 2017 were included. Results A total of 854 articles were retrieved, with 13 meeting the criteria. Elements contributing to perceived barriers and facilitators were identified and organized according to the International Classification of Functioning, Child-Youth framework. Concepts contained in these studies were linked to "activities and participation" (general tasks and demands, such as bedtime and dinner routines, and social, civic life, such as play and leisure). Environment-focused factors identified were situated on "support and relationships, " "attitudes, " and "services, systems, and policies." Conclusion The review revealed guidelines focusing on family-centred care, communication with, and providing information to parents with young children with developmental disabilities (ADHD, DCD, and/ or ASD).}},
  author       = {{Coussens, Marieke and Van Driessen, Evy and De Baets, Stijn and Van Regenmortel, Jasmine and Desoete, Annemie and Oostra, Ann and Vanderstraeten, Guy and Van Waelvelde, Hilde and Van de Velde, Dominique}},
  issn         = {{0305-1862}},
  journal      = {{CHILD CARE HEALTH AND DEVELOPMENT}},
  keywords     = {{ADHD,ASD,children,DCD,parents' perspectives,participation,PHYSICAL-DISABILITIES,CEREBRAL-PALSY,IMPROVING PARTICIPATION,OCCUPATIONAL-THERAPY,LEISURE ACTIVITIES,SCHOOL,YOUTH,RECREATION,PEOPLE,ENVIRONMENTS}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{232--243}},
  title        = {{Parents' perspectives on participation of young children with attention deficit hyperactivity disorder, developmental coordination disorder, and/ or autism spectrum disorder : a systematic scoping review}},
  url          = {{http://dx.doi.org/10.1111/cch.12735}},
  volume       = {{46}},
  year         = {{2020}},
}

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