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A qualitative photo elicitation research study to elicit the perception of young children with developmental disabilities such as ADHD and/or DCD and/or ASD on their participation

Marieke Coussens (UGent) , Birger Destoop, Stijn De Baets (UGent) , Annemie Desoete (UGent) , Ann Oostra (UGent) , Guy Vanderstraeten (UGent) , Hilde Van Waelvelde (UGent) and Dominique Van de Velde (UGent)
(2020) PLOS ONE. 15(3).
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Abstract
Participation, defined as 'involvement in life situations' according to the World Health Organisation, is a well-recognized concept and critical indicator of quality of life. In addition it has become an important outcome measure in child rehabilitation. However, little is known about the level of participation of young children with Developmental Disabilities. The aim of this study was to capture their subjective experiences of participation. An adapted informed consent based on a comic strip was used to get the children's assent. A Photo Elicitation study was used, in which photographs were taken by the children when they were involved in meaningful activities. The photographs were then used to facilitate communication with the children and to initiate in depth-interviews. Forty-seven interviews with 16 children between five and nine years were conducted based on their photographs. This method generated rich data, confirming that young children with Developmental Disabilities were able to inform us accurately on their experiences of participation. Data was analysed by means of an inductive thematic analysis. Results showed that children perceived their participation as satisfying when they can play, learn and join in family gatherings resulting in feelings of inclusion, recognition and belonging. When there are-on occasions-moments that their participation was obstructed, the children used two strategies to resolve it. Or they walked away from it and choose not to participate, or when autonomously motivated for the activity, they relied primarily on their context (i.e. mothers) as enabling their participation. Related to the data, children discussed themes related to their person, activities, connections and mediators between those themes. These themes fit well within earlier and current research on the subject of participation.
Keywords
General Biochemistry, Genetics and Molecular Biology, General Agricultural and Biological Sciences, General Medicine, COORDINATION DISORDER, PSYCHOMETRIC PROPERTIES, OF-LIFE, YOUTH, ISSUES, SCHOOL, PERFORMANCE, SIBLINGS, OUTCOMES, CONTEXT

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MLA
Coussens, Marieke, et al. “A Qualitative Photo Elicitation Research Study to Elicit the Perception of Young Children with Developmental Disabilities Such as ADHD and/or DCD and/or ASD on Their Participation.” PLOS ONE, edited by Stefano Federici, vol. 15, no. 3, 2020, doi:10.1371/journal.pone.0229538.
APA
Coussens, M., Destoop, B., De Baets, S., Desoete, A., Oostra, A., Vanderstraeten, G., … Van de Velde, D. (2020). A qualitative photo elicitation research study to elicit the perception of young children with developmental disabilities such as ADHD and/or DCD and/or ASD on their participation. PLOS ONE, 15(3). https://doi.org/10.1371/journal.pone.0229538
Chicago author-date
Coussens, Marieke, Birger Destoop, Stijn De Baets, Annemie Desoete, Ann Oostra, Guy Vanderstraeten, Hilde Van Waelvelde, and Dominique Van de Velde. 2020. “A Qualitative Photo Elicitation Research Study to Elicit the Perception of Young Children with Developmental Disabilities Such as ADHD and/or DCD and/or ASD on Their Participation.” Edited by Stefano Federici. PLOS ONE 15 (3). https://doi.org/10.1371/journal.pone.0229538.
Chicago author-date (all authors)
Coussens, Marieke, Birger Destoop, Stijn De Baets, Annemie Desoete, Ann Oostra, Guy Vanderstraeten, Hilde Van Waelvelde, and Dominique Van de Velde. 2020. “A Qualitative Photo Elicitation Research Study to Elicit the Perception of Young Children with Developmental Disabilities Such as ADHD and/or DCD and/or ASD on Their Participation.” Ed by. Stefano Federici. PLOS ONE 15 (3). doi:10.1371/journal.pone.0229538.
Vancouver
1.
Coussens M, Destoop B, De Baets S, Desoete A, Oostra A, Vanderstraeten G, et al. A qualitative photo elicitation research study to elicit the perception of young children with developmental disabilities such as ADHD and/or DCD and/or ASD on their participation. Federici S, editor. PLOS ONE. 2020;15(3).
IEEE
[1]
M. Coussens et al., “A qualitative photo elicitation research study to elicit the perception of young children with developmental disabilities such as ADHD and/or DCD and/or ASD on their participation,” PLOS ONE, vol. 15, no. 3, 2020.
@article{8656824,
  abstract     = {{Participation, defined as 'involvement in life situations' according to the World Health Organisation, is a well-recognized concept and critical indicator of quality of life. In addition it has become an important outcome measure in child rehabilitation. However, little is known about the level of participation of young children with Developmental Disabilities. The aim of this study was to capture their subjective experiences of participation. An adapted informed consent based on a comic strip was used to get the children's assent. A Photo Elicitation study was used, in which photographs were taken by the children when they were involved in meaningful activities. The photographs were then used to facilitate communication with the children and to initiate in depth-interviews. Forty-seven interviews with 16 children between five and nine years were conducted based on their photographs. This method generated rich data, confirming that young children with Developmental Disabilities were able to inform us accurately on their experiences of participation. Data was analysed by means of an inductive thematic analysis. Results showed that children perceived their participation as satisfying when they can play, learn and join in family gatherings resulting in feelings of inclusion, recognition and belonging. When there are-on occasions-moments that their participation was obstructed, the children used two strategies to resolve it. Or they walked away from it and choose not to participate, or when autonomously motivated for the activity, they relied primarily on their context (i.e. mothers) as enabling their participation. Related to the data, children discussed themes related to their person, activities, connections and mediators between those themes. These themes fit well within earlier and current research on the subject of participation.}},
  articleno    = {{e0229538}},
  author       = {{Coussens, Marieke and Destoop, Birger and De Baets, Stijn and Desoete, Annemie and Oostra, Ann and Vanderstraeten, Guy and Van Waelvelde, Hilde and Van de Velde, Dominique}},
  editor       = {{Federici, Stefano}},
  issn         = {{1932-6203}},
  journal      = {{PLOS ONE}},
  keywords     = {{General Biochemistry,Genetics and Molecular Biology,General Agricultural and Biological Sciences,General Medicine,COORDINATION DISORDER,PSYCHOMETRIC PROPERTIES,OF-LIFE,YOUTH,ISSUES,SCHOOL,PERFORMANCE,SIBLINGS,OUTCOMES,CONTEXT}},
  language     = {{eng}},
  number       = {{3}},
  pages        = {{20}},
  title        = {{A qualitative photo elicitation research study to elicit the perception of young children with developmental disabilities such as ADHD and/or DCD and/or ASD on their participation}},
  url          = {{http://doi.org/10.1371/journal.pone.0229538}},
  volume       = {{15}},
  year         = {{2020}},
}
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