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Genetic databases and the future of donor anonymity

Guido Pennings (UGent)
(2019) HUMAN REPRODUCTION. 34(5). p.786-790
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Abstract
Anonymity is a multifaceted term. Anonymity is rarely eternal or absolute. The use of genetic databases increases the risk of identification of previously anonymous donors. Searches through genetic databases jeopardize the privacy of people who did and did not register on them. Three types of searches can be distinguished in the context of gamete donation: offspring looking for their donor, offspring looking for donor siblings and donors looking for their donor offspring. All three types of searches violate the rights of recipients and donors. It is argued that despite the existence of genetic databases, anonymity maintains the same function as it had before: it expresses a wish for distance and privacy by both donors and recipients and, even if not enforceable, should be respected by all parties in good faith.
Keywords
GAMETE DONATION, SPERM DONORS, DISCLOSURE, CONTACT, EXPERIENCES, INFORMATION, CONCEPTION, GAY, AGE, anonymity, disclosure, donor offspring, genealogy, genetic search, identification, privacy

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Citation

Please use this url to cite or link to this publication:

MLA
Pennings, Guido. “Genetic Databases and the Future of Donor Anonymity.” HUMAN REPRODUCTION, vol. 34, no. 5, 2019, pp. 786–90.
APA
Pennings, G. (2019). Genetic databases and the future of donor anonymity. HUMAN REPRODUCTION, 34(5), 786–790.
Chicago author-date
Pennings, Guido. 2019. “Genetic Databases and the Future of Donor Anonymity.” HUMAN REPRODUCTION 34 (5): 786–90.
Chicago author-date (all authors)
Pennings, Guido. 2019. “Genetic Databases and the Future of Donor Anonymity.” HUMAN REPRODUCTION 34 (5): 786–790.
Vancouver
1.
Pennings G. Genetic databases and the future of donor anonymity. HUMAN REPRODUCTION. 2019;34(5):786–90.
IEEE
[1]
G. Pennings, “Genetic databases and the future of donor anonymity,” HUMAN REPRODUCTION, vol. 34, no. 5, pp. 786–790, 2019.
@article{8635653,
  abstract     = {Anonymity is a multifaceted term. Anonymity is rarely eternal or absolute. The use of genetic databases increases the risk of identification of previously anonymous donors. Searches through genetic databases jeopardize the privacy of people who did and did not register on them. Three types of searches can be distinguished in the context of gamete donation: offspring looking for their donor, offspring looking for donor siblings and donors looking for their donor offspring. All three types of searches violate the rights of recipients and donors. It is argued that despite the existence of genetic databases, anonymity maintains the same function as it had before: it expresses a wish for distance and privacy by both donors and recipients and, even if not enforceable, should be respected by all parties in good faith.},
  author       = {Pennings, Guido},
  issn         = {0268-1161},
  journal      = {HUMAN REPRODUCTION},
  keywords     = {GAMETE DONATION,SPERM DONORS,DISCLOSURE,CONTACT,EXPERIENCES,INFORMATION,CONCEPTION,GAY,AGE,anonymity,disclosure,donor offspring,genealogy,genetic search,identification,privacy},
  language     = {eng},
  number       = {5},
  pages        = {786--790},
  title        = {Genetic databases and the future of donor anonymity},
  url          = {http://dx.doi.org/10.1093/humrep/dez029},
  volume       = {34},
  year         = {2019},
}

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