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Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems?

Mahsa Shabani (UGent)
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Abstract
Blockchain-based platforms are emerging to provide solutions for technical and governance challenges associated with genomic data sharing. Providing capabilities for distributed data stewardship and participatory access control along with effective ways for enforcement of the data access agreements and data ownership are among the major promises of these platforms.
Keywords
ethics, policy, data sharing, decentralized, privacy, ACCESS

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Please use this url to cite or link to this publication:

MLA
Shabani, Mahsa. “Blockchain-Based Platforms for Genomic Data Sharing : A de-Centralized Approach in Response to the Governance Problems?” JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, vol. 26, no. 1, 2019, pp. 76–80.
APA
Shabani, M. (2019). Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems? JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, 26(1), 76–80.
Chicago author-date
Shabani, Mahsa. 2019. “Blockchain-Based Platforms for Genomic Data Sharing : A de-Centralized Approach in Response to the Governance Problems?” JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION 26 (1): 76–80.
Chicago author-date (all authors)
Shabani, Mahsa. 2019. “Blockchain-Based Platforms for Genomic Data Sharing : A de-Centralized Approach in Response to the Governance Problems?” JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION 26 (1): 76–80.
Vancouver
1.
Shabani M. Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems? JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION. 2019;26(1):76–80.
IEEE
[1]
M. Shabani, “Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems?,” JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, vol. 26, no. 1, pp. 76–80, 2019.
@article{8630050,
  abstract     = {Blockchain-based platforms are emerging to provide solutions for technical and governance challenges associated with genomic data sharing. Providing capabilities for distributed data stewardship and participatory access control along with effective ways for enforcement of the data access agreements and data ownership are among the major promises of these platforms.},
  author       = {Shabani, Mahsa},
  issn         = {1067-5027},
  journal      = {JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION},
  keywords     = {ethics,policy,data sharing,decentralized,privacy,ACCESS},
  language     = {eng},
  number       = {1},
  pages        = {76--80},
  title        = {Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems?},
  url          = {http://dx.doi.org/10.1093/jamia/ocy149},
  volume       = {26},
  year         = {2019},
}

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