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Self-reported needs and experiences of people with dementia living in nursing homes : a scoping review

(2020) AGING & MENTAL HEALTH. 24(10). p.1553-1568
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Abstract
Objectives: With rates of dementia continuing to rise, the impetus on improving care for people with dementia is growing. Unmet needs of people with dementia living in nursing homes have been linked with worsening neuropsychiatric symptoms, higher levels of depression, and reduced quality of life. Furthermore, proxy accounts exploring the needs of people with dementia have frequently been shown to be unreliable. Therefore, this literature review aims to explore the self-reported needs and experiences of people with dementia in nursing homes. Method: A scoping review of the literature was carried out using the databases PubMed and PsycINFO to search for relevant articles according to PRISMA guidelines. Search terms were designed to include both quantitative and qualitative study designs. Thematic synthesis was used to categorise findings into themes related to self-reported needs and experiences. Results: A total of 41 articles met the eligibility criteria. An analysis of study characteristics revealed more than half of studies used a qualitative design. Thematic synthesis resulted in eight themes: activities, maintaining previous roles, reminiscence, freedom and choice, appropriate environment, meaningful relationships, support with grief and loss, end-of-life care. Conclusion: Whilst the voice of people with dementia has previously been neglected in research, this review has shown that people with dementia in nursing homes are able to describe their experiences and communicate their needs. The findings in this review have provided a contribution towards guiding evidence-based practice that is tailored to the needs of nursing home residents with dementia.
Keywords
Dementia, experiences, long-term care, nursing home, subjective needs, QUALITY-OF-LIFE, LONG-TERM-CARE, OLDER-PEOPLE, RESIDENTIAL CARE, AGED CARE, COGNITIVE IMPAIRMENT, PERSPECTIVES, FAMILY, FACILITIES, BENEFITS

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MLA
Shiells, Kate, et al. “Self-Reported Needs and Experiences of People with Dementia Living in Nursing Homes : A Scoping Review.” AGING & MENTAL HEALTH, vol. 24, no. 10, 2020, pp. 1553–68, doi:10.1080/13607863.2019.1625303.
APA
Shiells, K., Pivodic, L., Holmerová, I., & Van den Block, L. (2020). Self-reported needs and experiences of people with dementia living in nursing homes : a scoping review. AGING & MENTAL HEALTH, 24(10), 1553–1568. https://doi.org/10.1080/13607863.2019.1625303
Chicago author-date
Shiells, Kate, Lara Pivodic, Iva Holmerová, and Lieve Van den Block. 2020. “Self-Reported Needs and Experiences of People with Dementia Living in Nursing Homes : A Scoping Review.” AGING & MENTAL HEALTH 24 (10): 1553–68. https://doi.org/10.1080/13607863.2019.1625303.
Chicago author-date (all authors)
Shiells, Kate, Lara Pivodic, Iva Holmerová, and Lieve Van den Block. 2020. “Self-Reported Needs and Experiences of People with Dementia Living in Nursing Homes : A Scoping Review.” AGING & MENTAL HEALTH 24 (10): 1553–1568. doi:10.1080/13607863.2019.1625303.
Vancouver
1.
Shiells K, Pivodic L, Holmerová I, Van den Block L. Self-reported needs and experiences of people with dementia living in nursing homes : a scoping review. AGING & MENTAL HEALTH. 2020;24(10):1553–68.
IEEE
[1]
K. Shiells, L. Pivodic, I. Holmerová, and L. Van den Block, “Self-reported needs and experiences of people with dementia living in nursing homes : a scoping review,” AGING & MENTAL HEALTH, vol. 24, no. 10, pp. 1553–1568, 2020.
@article{8619067,
  abstract     = {Objectives: With rates of dementia continuing to rise, the impetus on improving care for people with dementia is growing. Unmet needs of people with dementia living in nursing homes have been linked with worsening neuropsychiatric symptoms, higher levels of depression, and reduced quality of life. Furthermore, proxy accounts exploring the needs of people with dementia have frequently been shown to be unreliable. Therefore, this literature review aims to explore the self-reported needs and experiences of people with dementia in nursing homes.

Method: A scoping review of the literature was carried out using the databases PubMed and PsycINFO to search for relevant articles according to PRISMA guidelines. Search terms were designed to include both quantitative and qualitative study designs. Thematic synthesis was used to categorise findings into themes related to self-reported needs and experiences.

Results: A total of 41 articles met the eligibility criteria. An analysis of study characteristics revealed more than half of studies used a qualitative design. Thematic synthesis resulted in eight themes: activities, maintaining previous roles, reminiscence, freedom and choice, appropriate environment, meaningful relationships, support with grief and loss, end-of-life care.

Conclusion: Whilst the voice of people with dementia has previously been neglected in research, this review has shown that people with dementia in nursing homes are able to describe their experiences and communicate their needs. The findings in this review have provided a contribution towards guiding evidence-based practice that is tailored to the needs of nursing home residents with dementia.},
  author       = {Shiells, Kate and Pivodic, Lara and Holmerová, Iva and Van den Block, Lieve},
  issn         = {1360-7863},
  journal      = {AGING & MENTAL HEALTH},
  keywords     = {Dementia,experiences,long-term care,nursing home,subjective needs,QUALITY-OF-LIFE,LONG-TERM-CARE,OLDER-PEOPLE,RESIDENTIAL CARE,AGED CARE,COGNITIVE IMPAIRMENT,PERSPECTIVES,FAMILY,FACILITIES,BENEFITS},
  language     = {eng},
  number       = {10},
  pages        = {1553--1568},
  title        = {Self-reported needs and experiences of people with dementia living in nursing homes : a scoping review},
  url          = {http://dx.doi.org/10.1080/13607863.2019.1625303},
  volume       = {24},
  year         = {2020},
}

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