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Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia

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Abstract
Objective: The Canadian province of Quebec has recently legalized medical aid in dying (MAID) for competent patients who satisfy strictly defined criteria. The province is considering extending the practice to incompetent patients. We compared the attitudes of four groups of stakeholders toward extending MAID to incompetent patients with dementia. Methods: We conducted a province-wide postal survey in random samples of older adults, informal caregivers of persons with dementia, nurses, and physicians caring for patients with dementia. Clinical vignettes featuring a patient with Alzheimer's disease were used to measure the acceptability of extending MAID to incompetent patients with dementia. Vignettes varied according to the stage of the disease (advanced or terminal) and type of request (written or oral only). We used the generalized estimating equation (GEE) approach to compare attitudes across groups and vignettes. Results: Response rates ranged from 25% for physicians to 69% for informal caregivers. In all four groups, the proportion of respondents who felt it was acceptable to extend MAID to an incompetent patient with dementia was highest when the patient was at the terminal stage, showed signs of distress, and had written a MAID request prior to losing capacity. In those circumstances, this proportion ranged from 71% among physicians to 91% among informal caregivers. Conclusion: We found high support in Quebec for extending the current MAID legislation to incompetent patients with dementia who have reached the terminal stage, appear to be suffering, and had requested MAID in writing while still competent.
Keywords
advance directive, attitude, Canada, decisional incapacity, dementia, euthanasia, law, survey, EUTHANASIA, ACCEPTANCE, SUICIDE, CONSENT, NURSES

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MLA
Bravo, Gina, et al. “Comparing the Attitudes of Four Groups of Stakeholders from Quebec, Canada, toward Extending Medical Aid in Dying to Incompetent Patients with Dementia.” INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, vol. 34, no. 7, 2019, pp. 1078–86, doi:10.1002/gps.5111.
APA
Bravo, G., Trottier, L., Rodrigue, C., Arcand, M., Downie, J., Dubois, M., … Van den Block, L. (2019). Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia. INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 34(7), 1078–1086. https://doi.org/10.1002/gps.5111
Chicago author-date
Bravo, Gina, Lise Trottier, Claudie Rodrigue, Marcel Arcand, Jocelyn Downie, Marie‐France Dubois, Sharon Kaasalainen, Cees M Hertogh, Sophie Pautex, and Lieve Van den Block. 2019. “Comparing the Attitudes of Four Groups of Stakeholders from Quebec, Canada, toward Extending Medical Aid in Dying to Incompetent Patients with Dementia.” INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY 34 (7): 1078–86. https://doi.org/10.1002/gps.5111.
Chicago author-date (all authors)
Bravo, Gina, Lise Trottier, Claudie Rodrigue, Marcel Arcand, Jocelyn Downie, Marie‐France Dubois, Sharon Kaasalainen, Cees M Hertogh, Sophie Pautex, and Lieve Van den Block. 2019. “Comparing the Attitudes of Four Groups of Stakeholders from Quebec, Canada, toward Extending Medical Aid in Dying to Incompetent Patients with Dementia.” INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY 34 (7): 1078–1086. doi:10.1002/gps.5111.
Vancouver
1.
Bravo G, Trottier L, Rodrigue C, Arcand M, Downie J, Dubois M, et al. Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia. INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY. 2019;34(7):1078–86.
IEEE
[1]
G. Bravo et al., “Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia,” INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, vol. 34, no. 7, pp. 1078–1086, 2019.
@article{8616428,
  abstract     = {{Objective: The Canadian province of Quebec has recently legalized medical aid in dying (MAID) for competent patients who satisfy strictly defined criteria. The province is considering extending the practice to incompetent patients. We compared the attitudes of four groups of stakeholders toward extending MAID to incompetent patients with dementia.
Methods: We conducted a province-wide postal survey in random samples of older adults, informal caregivers of persons with dementia, nurses, and physicians caring for patients with dementia. Clinical vignettes featuring a patient with Alzheimer's disease were used to measure the acceptability of extending MAID to incompetent patients with dementia. Vignettes varied according to the stage of the disease (advanced or terminal) and type of request (written or oral only). We used the generalized estimating equation (GEE) approach to compare attitudes across groups and vignettes.
Results: Response rates ranged from 25% for physicians to 69% for informal caregivers. In all four groups, the proportion of respondents who felt it was acceptable to extend MAID to an incompetent patient with dementia was highest when the patient was at the terminal stage, showed signs of distress, and had written a MAID request prior to losing capacity. In those circumstances, this proportion ranged from 71% among physicians to 91% among informal caregivers.
Conclusion: We found high support in Quebec for extending the current MAID legislation to incompetent patients with dementia who have reached the terminal stage, appear to be suffering, and had requested MAID in writing while still competent.}},
  author       = {{Bravo, Gina and Trottier, Lise and Rodrigue, Claudie and Arcand, Marcel and Downie, Jocelyn and Dubois, Marie‐France and Kaasalainen, Sharon and Hertogh, Cees M and Pautex, Sophie and Van den Block, Lieve}},
  issn         = {{0885-6230}},
  journal      = {{INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY}},
  keywords     = {{advance directive,attitude,Canada,decisional incapacity,dementia,euthanasia,law,survey,EUTHANASIA,ACCEPTANCE,SUICIDE,CONSENT,NURSES}},
  language     = {{eng}},
  number       = {{7}},
  pages        = {{1078--1086}},
  title        = {{Comparing the attitudes of four groups of stakeholders from Quebec, Canada, toward extending medical aid in dying to incompetent patients with dementia}},
  url          = {{http://doi.org/10.1002/gps.5111}},
  volume       = {{34}},
  year         = {{2019}},
}

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