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Development and evaluation of an integrated digital patient platform during oncology treatment

Melissa De Regge (UGent) , Elsie Decoene (UGent) , Kristof Eeckloo (UGent) and Ann Van Hecke (UGent)
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Abstract
Background: Patient platforms are seen as promising technologies in an integrated care approach to involve cancer patients in their own health care and to support them in managing their personal health information. However, few digital platforms have been codesigned with patients and caregivers. Objective: To develop, implement, and evaluate the feasibility and applicability of a digital oncology platform (DOP) for patients with cancer. Method: A mixed-method study was used, employing a survey, interviews, and logged data from caregivers and patients. The DOP was designed in cooperation with Information Technology (IT) staff, caregivers, and patients. Results: The DOP was actively used by half of the patients. These active patients were positive about the DOP. Caregivers acknowledged the added value but also indicate that additional workload was involved. Oncology nurse specialists are the users of the platform. General practitioners have indicated their interest in the platform. Conclusion: Thanks to the codesign process, the DOP could be tailored to the expectations of the end users. This study provides insight into which DOP functionalities the patients were interested in and includes further recommendations for implementation.

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Please use this url to cite or link to this publication:

MLA
De Regge, Melissa et al. “Development and Evaluation of an Integrated Digital Patient Platform During Oncology Treatment.” JOURNAL OF PATIENT EXPERIENCE (2019): n. pag. Print.
APA
De Regge, M., Decoene, E., Eeckloo, K., & Van Hecke, A. (2019). Development and evaluation of an integrated digital patient platform during oncology treatment. JOURNAL OF PATIENT EXPERIENCE.
Chicago author-date
De Regge, Melissa, Elsie Decoene, Kristof Eeckloo, and Ann Van Hecke. 2019. “Development and Evaluation of an Integrated Digital Patient Platform During Oncology Treatment.” Journal of Patient Experience.
Chicago author-date (all authors)
De Regge, Melissa, Elsie Decoene, Kristof Eeckloo, and Ann Van Hecke. 2019. “Development and Evaluation of an Integrated Digital Patient Platform During Oncology Treatment.” Journal of Patient Experience.
Vancouver
1.
De Regge M, Decoene E, Eeckloo K, Van Hecke A. Development and evaluation of an integrated digital patient platform during oncology treatment. JOURNAL OF PATIENT EXPERIENCE. 2019;
IEEE
[1]
M. De Regge, E. Decoene, K. Eeckloo, and A. Van Hecke, “Development and evaluation of an integrated digital patient platform during oncology treatment,” JOURNAL OF PATIENT EXPERIENCE, 2019.
@article{8589814,
  abstract     = {Background: Patient platforms are seen as promising technologies in an integrated care approach to involve cancer patients in their own health care and to support them in managing their personal health information. However, few digital platforms have been codesigned with patients and caregivers.
Objective: To develop, implement, and evaluate the feasibility and applicability of a digital oncology platform (DOP) for patients with cancer.
Method: A mixed-method study was used, employing a survey, interviews, and logged data from caregivers and patients. The DOP was designed in cooperation with Information Technology (IT) staff, caregivers, and patients.
Results: The DOP was actively used by half of the patients. These active patients were positive about the DOP. Caregivers acknowledged the added value but also indicate that additional workload was involved. Oncology nurse specialists are the users of the platform. General practitioners have indicated their interest in the platform.
Conclusion: Thanks to the codesign process, the DOP could be tailored to the expectations of the end users. This study provides insight into which DOP functionalities the patients were interested in and includes further recommendations for implementation.},
  author       = {De Regge, Melissa and Decoene, Elsie and Eeckloo, Kristof and Van Hecke, Ann},
  issn         = {2374-3735},
  journal      = {JOURNAL OF PATIENT EXPERIENCE},
  language     = {eng},
  title        = {Development and evaluation of an integrated digital patient platform during oncology treatment},
  url          = {http://dx.doi.org/10.1177/2374373518825142},
  year         = {2019},
}

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