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Antiphospholipid syndrome : state of the art on clinical practice guidelines

(2018) RMD OPEN. 4(suppl. 1).
Author
Organization
Abstract
Antiphospholipid syndrome (APS) is a rare disease characterised by venous and/or arterial thrombosis, pregnancy complications and the presence of specific autoantibodies called antiphospholipid antibodies. This review aims to identify existing clinical practice guidelines (CPG) as part of the ERN ReCONNET project, aimed at evaluating existing CPGs or recommendations in rare and complex diseases. Seventeen papers providing important data were identified; however, the literature search highlighted the scarceness of reliable clinical data to develop CPGs. With no formal clinical guidelines in place, diagnosis and treatment of APS is largely based on consensus and expert opinion. Patients' unmet need refers to the understanding of the disease and its clinical picture and implications, the need of education for patients, family members and healthcare providers, as well as to the development of monitoring pathways involving multiple healthcare providers.
Keywords
14TH INTERNATIONAL-CONGRESS, EVIDENCE-BASED RECOMMENDATIONS, SYSTEMIC-LUPUS-ERYTHEMATOSUS, TASK-FORCE REPORT, EULAR RECOMMENDATIONS, ANTIBODIES, MANAGEMENT, PREGNANCY, PREVENTION, THROMBOSIS

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Chicago
Limper, Marteen, Carlo Alberto Scirè, Rosaria Talarico, Zahir Amoura, Tadej Avcin, Martina Basile, Gerd Burmester, et al. 2018. “Antiphospholipid Syndrome : State of the Art on Clinical Practice Guidelines.” Rmd Open 4 (suppl. 1).
APA
Limper, M., Scirè, C. A., Talarico, R., Amoura, Z., Avcin, T., Basile, M., Burmester, G., et al. (2018). Antiphospholipid syndrome : state of the art on clinical practice guidelines. RMD OPEN, 4(suppl. 1).
Vancouver
1.
Limper M, Scirè CA, Talarico R, Amoura Z, Avcin T, Basile M, et al. Antiphospholipid syndrome : state of the art on clinical practice guidelines. RMD OPEN. 2018;4(suppl. 1).
MLA
Limper, Marteen et al. “Antiphospholipid Syndrome : State of the Art on Clinical Practice Guidelines.” RMD OPEN 4.suppl. 1 (2018): n. pag. Print.
@article{8579123,
  abstract     = {Antiphospholipid syndrome (APS) is a rare disease characterised by venous and/or arterial thrombosis, pregnancy complications and the presence of specific autoantibodies called antiphospholipid antibodies. This review aims to identify existing clinical practice guidelines (CPG) as part of the ERN ReCONNET project, aimed at evaluating existing CPGs or recommendations in rare and complex diseases. Seventeen papers providing important data were identified; however, the literature search highlighted the scarceness of reliable clinical data to develop CPGs. With no formal clinical guidelines in place, diagnosis and treatment of APS is largely based on consensus and expert opinion. Patients' unmet need refers to the understanding of the disease and its clinical picture and implications, the need of education for patients, family members and healthcare providers, as well as to the development of monitoring pathways involving multiple healthcare providers.},
  articleno    = {e000785},
  author       = {Limper, Marteen and Scir{\`e}, Carlo Alberto and Talarico, Rosaria and Amoura, Zahir and Avcin, Tadej and Basile, Martina and Burmester, Gerd and Carli, Linda and Cervera, Ricard and Costedoat-Chalumeau, Nathalie and Doria, Andrea and D{\"o}rner, Thomas and Fonseca, Jo{\~a}o Eurico and Galetti, Ilaria and Hachulla, Eric and Launay, David and Lourenco, Filipa and Macieira, Carla and Meroni, Pierluigi and Montecucco, Carlo Maurizio and Moraes-Fontes, Maria Francisca and Mouthon, Luc and Nalli, Cecilia and Ramoni, Veronique and Tektonidou, Maria and van Laar, Jacob M and Bombardieri, Stefano and Schneider, Matthias and Smith, Vanessa and Vieira, Ana and Cutolo, Maurizio and Mosca, Marta and Tincani, Angela},
  issn         = {2056-5933},
  journal      = {RMD OPEN},
  language     = {eng},
  number       = {suppl. 1},
  pages        = {7},
  title        = {Antiphospholipid syndrome : state of the art on clinical practice guidelines},
  url          = {http://dx.doi.org/10.1136/rmdopen-2018-000785},
  volume       = {4},
  year         = {2018},
}

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