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Parents’ perspectives of changes within the family functioning after a pediatric cancer diagnosis : a multi family member interview analysis

Marieke Van Schoors (UGent) , Jan De Mol (UGent) , Hanne Morren (UGent) , Lesley Verhofstadt (UGent) , Liesbet Goubert (UGent) and Hanna Van Parys (UGent)
(2018) QUALITATIVE HEALTH RESEARCH . 28(8). p.1229-1241
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Abstract
Pediatric cancer is a life-threatening disease that challenges the life of the diagnosed child, the parents, and possible siblings. Moreover, it also places considerable demands on family life. The aim of this study was to explore changes in the family functioning after a pediatric cancer diagnosis. Ten couples who had a child with leukemia or non-Hodgkin lymphoma were interviewed individually about their experiences. Interviews were semistructured, and the data were analyzed using Multi Family Member Interview Analysis. Three themes emerged from the data: (a) Family Cohesion: Strengthened Versus Fragmented; (b) Educational Norms and Values: Overindulgence Versus Being Stricter, and (c) Normality: Loss Versus Preservation. The conflicting dynamics present in these emerging themes exemplify the complexity of this process of family adaptation. This study illustrates the need to take into account the family level, as well as the conflicting feelings parents may experience after a pediatric cancer diagnosis.
Keywords
children, illness and disease, cancer, families, qualitative research, interviews, Western Europe, CHILDHOOD-CANCER, POSTTRAUMATIC-STRESS, ADOLESCENT SURVIVORS, QUALITATIVE RESEARCH, GENDER-DIFFERENCES, BRAIN-TUMOR, CHILDREN, ADJUSTMENT, DISTRESS, SIBLINGS

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Chicago
Van Schoors, Marieke, Jan De Mol, Hanne Morren, Lesley Verhofstadt, Liesbet Goubert, and Hanna Van Parys. 2018. “Parents’ Perspectives of Changes Within the Family Functioning After a Pediatric Cancer Diagnosis : a Multi Family Member Interview Analysis.” Qualitative Health Research  28 (8): 1229–1241.
APA
Van Schoors, M., De Mol, J., Morren, H., Verhofstadt, L., Goubert, L., & Van Parys, H. (2018). Parents’ perspectives of changes within the family functioning after a pediatric cancer diagnosis : a multi family member interview analysis. QUALITATIVE HEALTH RESEARCH  , 28(8), 1229–1241.
Vancouver
1.
Van Schoors M, De Mol J, Morren H, Verhofstadt L, Goubert L, Van Parys H. Parents’ perspectives of changes within the family functioning after a pediatric cancer diagnosis : a multi family member interview analysis. QUALITATIVE HEALTH RESEARCH  . 2018;28(8):1229–41.
MLA
Van Schoors, Marieke, Jan De Mol, Hanne Morren, et al. “Parents’ Perspectives of Changes Within the Family Functioning After a Pediatric Cancer Diagnosis : a Multi Family Member Interview Analysis.” QUALITATIVE HEALTH RESEARCH  28.8 (2018): 1229–1241. Print.
@article{8552321,
  abstract     = {Pediatric cancer is a life-threatening disease that challenges the life of the diagnosed child, the parents, and possible siblings. Moreover, it also places considerable demands on family life. The aim of this study was to explore changes in the family functioning after a pediatric cancer diagnosis. Ten couples who had a child with leukemia or non-Hodgkin lymphoma were interviewed individually about their experiences. Interviews were semistructured, and the data were analyzed using Multi Family Member Interview Analysis. Three themes emerged from the data: (a) Family Cohesion: Strengthened Versus Fragmented; (b) Educational Norms and Values: Overindulgence Versus Being Stricter, and (c) Normality: Loss Versus Preservation. The conflicting dynamics present in these emerging themes exemplify the complexity of this process of family adaptation. This study illustrates the need to take into account the family level, as well as the conflicting feelings parents may experience after a pediatric cancer diagnosis.},
  author       = {Van Schoors, Marieke and De Mol, Jan and Morren, Hanne and Verhofstadt, Lesley and Goubert, Liesbet and Van Parys, Hanna},
  issn         = {1049-7323},
  journal      = {QUALITATIVE HEALTH RESEARCH                                    },
  language     = {eng},
  number       = {8},
  pages        = {1229--1241},
  title        = {Parents{\textquoteright} perspectives of changes within the family functioning after a pediatric cancer diagnosis : a multi family member interview analysis},
  url          = {http://dx.doi.org/10.1177/1049732317753587},
  volume       = {28},
  year         = {2018},
}

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