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Facing a new face : an interpretative phenomenological analysis of the experiences of a blind face transplant patient and his partner

Hannelore Hendrickx (UGent) , Phillip Blondeel (UGent) , Hanna Van Parys (UGent) , Nathalie Roche (UGent) , Patrick Peeters (UGent) , Hubert Vermeersch (UGent) , Xavier Rogiers (UGent) , Kristiane Van Lierde (UGent) and Gilbert Lemmens (UGent)
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Abstract
Increasing evidence points to good functional, aesthetic, and psychosocial outcomes after face transplantation. However, research investigating how patients and their families subjectively experience the transplantation process is lacking thus far. This study aims to investigate the personal experiences of a blind face transplant patient and his partner. In-depth interviews exploring different experiences were conducted with both partners separately 20 months after face transplantation. The interviews were analyzed using interpretative phenomenological analysis. Seven themes were identified in both interviews: coping with the facial trauma, motivation for the face transplantation, outcomes of the face transplantation, acceptance of the new face, gratitude toward the donor family, relation to the medical team, and dealing with the media. Two further themes were only mentioned by the patient (coping with complications and coping with blindness) and one theme only by the partner (loss of choices). The results of this study increase our understanding of the transplantation process as experienced by a face transplant recipient and his partner. They may help to better inform professionals to optimize transplantation procedures or supportive interventions.
Keywords
Face transplantation, interpretative phenomenological analysis, transplant experiences, VASCULARIZED COMPOSITE ALLOTRANSPLANTATION, FOLLOW-UP, PSYCHOLOGICAL OUTCOMES, RECOMMENDATIONS, UPDATE, RISKS

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Chicago
Hendrickx, Hannelore, Phillip Blondeel, Hanna Van Parys, Nathalie Roche, Patrick Peeters, Hubert Vermeersch, Xavier Rogiers, Kristiane Van Lierde, and Gilbert Lemmens. 2018. “Facing a New Face : an Interpretative Phenomenological Analysis of the Experiences of a Blind Face Transplant Patient and His Partner.” Journal of Craniofacial Surgery 29 (4): 826–831.
APA
Hendrickx, Hannelore, Blondeel, P., Van Parys, H., Roche, N., Peeters, P., Vermeersch, H., Rogiers, X., et al. (2018). Facing a new face : an interpretative phenomenological analysis of the experiences of a blind face transplant patient and his partner. JOURNAL OF CRANIOFACIAL SURGERY, 29(4), 826–831.
Vancouver
1.
Hendrickx H, Blondeel P, Van Parys H, Roche N, Peeters P, Vermeersch H, et al. Facing a new face : an interpretative phenomenological analysis of the experiences of a blind face transplant patient and his partner. JOURNAL OF CRANIOFACIAL SURGERY. 2018;29(4):826–31.
MLA
Hendrickx, Hannelore, Phillip Blondeel, Hanna Van Parys, et al. “Facing a New Face : an Interpretative Phenomenological Analysis of the Experiences of a Blind Face Transplant Patient and His Partner.” JOURNAL OF CRANIOFACIAL SURGERY 29.4 (2018): 826–831. Print.
@article{8545000,
  abstract     = {Increasing evidence points to good functional, aesthetic, and psychosocial outcomes after face transplantation. However, research investigating how patients and their families subjectively experience the transplantation process is lacking thus far. This study aims to investigate the personal experiences of a blind face transplant patient and his partner. In-depth interviews exploring different experiences were conducted with both partners separately 20 months after face transplantation. The interviews were analyzed using interpretative phenomenological analysis. Seven themes were identified in both interviews: coping with the facial trauma, motivation for the face transplantation, outcomes of the face transplantation, acceptance of the new face, gratitude toward the donor family, relation to the medical team, and dealing with the media. Two further themes were only mentioned by the patient (coping with complications and coping with blindness) and one theme only by the partner (loss of choices). The results of this study increase our understanding of the transplantation process as experienced by a face transplant recipient and his partner. They may help to better inform professionals to optimize transplantation procedures or supportive interventions.},
  author       = {Hendrickx, Hannelore and Blondeel, Phillip and Van Parys, Hanna and Roche, Nathalie and Peeters, Patrick and Vermeersch, Hubert and Rogiers, Xavier and Van Lierde, Kristiane and Lemmens, Gilbert},
  issn         = {1049-2275},
  journal      = {JOURNAL OF CRANIOFACIAL SURGERY},
  keyword      = {Face transplantation,interpretative phenomenological analysis,transplant experiences,VASCULARIZED COMPOSITE ALLOTRANSPLANTATION,FOLLOW-UP,PSYCHOLOGICAL OUTCOMES,RECOMMENDATIONS,UPDATE,RISKS},
  language     = {eng},
  number       = {4},
  pages        = {826--831},
  title        = {Facing a new face : an interpretative phenomenological analysis of the experiences of a blind face transplant patient and his partner},
  url          = {http://dx.doi.org/10.1097/scs.0000000000004297},
  volume       = {29},
  year         = {2018},
}

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