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Families of adult people with disability : their experience in the use of services run by social cooperatives in Italy

Fiorella Bucci (UGent) and Stijn Vanheule (UGent)
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Abstract
Social cooperation has historically played a pivotal role in developing socio-educational services for people with disability, thereby contributing to counteracting the social isolation often associated with this condition. Using a mixed-method methodology, this study maps the diversity of perspectives on how the use of disability-related services run by social cooperatives impacts on and becomes meaningful to family life. One hundred twenty-nine interviews with family members of adults with different kinds of disability were studied using emotional textual analysis. It provides a multi-dimensional model to read and map the multiplicity of emotional meanings related to disability and the use of services, shedding light on key diversities in how family members emotionally make sense of care and support. The results reveal the importance of supporting family-carers on two main issues: accessing a less passive representation of their relative with disability; and being able to test and acknowledge limits without succumbing to a sense of powerlessness.
Keywords
INTELLECTUAL DISABILITY, DEVELOPMENTAL-DISABILITIES, FUTURE, SUPPORT, CARERS, RELATIVES, NEEDS, disability services, residential and day services, adult social care, family member's perspective, social cooperatives, organisational development, mixed-method research, psychosocial research

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Citation

Please use this url to cite or link to this publication:

MLA
Bucci, Fiorella, and Stijn Vanheule. “Families of Adult People with Disability : Their Experience in the Use of Services Run by Social Cooperatives in Italy.” INTERNATIONAL JOURNAL OF SOCIAL WELFARE, vol. 27, no. 2, Wiley, 2018, pp. 157–67.
APA
Bucci, F., & Vanheule, S. (2018). Families of adult people with disability : their experience in the use of services run by social cooperatives in Italy. INTERNATIONAL JOURNAL OF SOCIAL WELFARE, 27(2), 157–167.
Chicago author-date
Bucci, Fiorella, and Stijn Vanheule. 2018. “Families of Adult People with Disability : Their Experience in the Use of Services Run by Social Cooperatives in Italy.” INTERNATIONAL JOURNAL OF SOCIAL WELFARE 27 (2): 157–67.
Chicago author-date (all authors)
Bucci, Fiorella, and Stijn Vanheule. 2018. “Families of Adult People with Disability : Their Experience in the Use of Services Run by Social Cooperatives in Italy.” INTERNATIONAL JOURNAL OF SOCIAL WELFARE 27 (2): 157–167.
Vancouver
1.
Bucci F, Vanheule S. Families of adult people with disability : their experience in the use of services run by social cooperatives in Italy. INTERNATIONAL JOURNAL OF SOCIAL WELFARE. 2018;27(2):157–67.
IEEE
[1]
F. Bucci and S. Vanheule, “Families of adult people with disability : their experience in the use of services run by social cooperatives in Italy,” INTERNATIONAL JOURNAL OF SOCIAL WELFARE, vol. 27, no. 2, pp. 157–167, 2018.
@article{8529229,
  abstract     = {Social cooperation has historically played a pivotal role in developing socio-educational services for people with disability, thereby contributing to counteracting the social isolation often associated with this condition. Using a mixed-method methodology, this study maps the diversity of perspectives on how the use of disability-related services run by social cooperatives impacts on and becomes meaningful to family life. One hundred twenty-nine interviews with family members of adults with different kinds of disability were studied using emotional textual analysis. It provides a multi-dimensional model to read and map the multiplicity of emotional meanings related to disability and the use of services, shedding light on key diversities in how family members emotionally make sense of care and support. The results reveal the importance of supporting family-carers on two main issues: accessing a less passive representation of their relative with disability; and being able to test and acknowledge limits without succumbing to a sense of powerlessness.},
  author       = {Bucci, Fiorella and Vanheule, Stijn},
  issn         = {1369-6866},
  journal      = {INTERNATIONAL JOURNAL OF SOCIAL WELFARE},
  keywords     = {INTELLECTUAL DISABILITY,DEVELOPMENTAL-DISABILITIES,FUTURE,SUPPORT,CARERS,RELATIVES,NEEDS,disability services,residential and day services,adult social care,family member's perspective,social cooperatives,organisational development,mixed-method research,psychosocial research},
  language     = {eng},
  number       = {2},
  pages        = {157--167},
  publisher    = {Wiley},
  title        = {Families of adult people with disability : their experience in the use of services run by social cooperatives in Italy},
  url          = {http://dx.doi.org/10.1111/ijsw.12283},
  volume       = {27},
  year         = {2018},
}

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