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Development and validation of a patient-reported outcome measure in vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES)

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Abstract
Background: The Vitiligo Extent Score (VES) has recently been introduced as a physicians' score for the clinical assessment of the extent of vitiligo, but a good patient self-assessment score is lacking. Objective: The objective is to develop and validate a simplified version of the VES as a patient-reported outcome measure (PROM). Methods: After extensive pilot testing, patients were asked to score their vitiligo extent twice with an interval of 2 weeks using the Self Assessment Vitiligo Extent Score (SA-VES). The scores were compared with the physicians' evaluation (VES). Results: The SA-VES demonstrated very good test-retest reliability (intraclass correlation = 0.948, 95% confidence interval [CI]: 0.911-0.970) that was not affected by age, skin type, or vitiligo distribution pattern. According to patients, this evaluation method was easy to use (22% very easy; 49% easy; 29% normal) and required <5 minutes in the majority of patients (73%,<5 minutes; 24%, 5-10 minutes; 2%, 10-15 minutes). Comparison of the SA-VES and the VES demonstrated excellent correlation (r = 0.986, P < . 001). Limitations: Few patients had a dark skin type. Conclusion: The results demonstrate excellent reliability of the SA-VES and excellent correlation with its investigator-reported counterpart (VES). This patient-oriented evaluation method provides a useful tool for the assessment of vitiligo extent.
Keywords
body surface area, outcome measurement, patient-reported outcomes, severity, vitiligo, RELIABILITY, QUALITY, COSMIN, TOOL

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MLA
van Geel, Nanja et al. “Development and Validation of a Patient-reported Outcome Measure in Vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES).” JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY 76.3 (2017): 464–471. Print.
APA
van Geel, Nanja, Lommerts, J. E., Bekkenk, M. W., Prinsen, C. A., Eleftheriadou, V., Taieb, A., Picardo, M., et al. (2017). Development and validation of a patient-reported outcome measure in vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES). JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 76(3), 464–471.
Chicago author-date
van Geel, Nanja, Janny E Lommerts, Marcel W Bekkenk, Cecilia AC Prinsen, Viktoria Eleftheriadou, Alain Taieb, Mauro Picardo, Khaled Ezzedine, Albert Wolkerstorfer, and Reinhart Speeckaert. 2017. “Development and Validation of a Patient-reported Outcome Measure in Vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES).” Journal of the American Academy of Dermatology 76 (3): 464–471.
Chicago author-date (all authors)
van Geel, Nanja, Janny E Lommerts, Marcel W Bekkenk, Cecilia AC Prinsen, Viktoria Eleftheriadou, Alain Taieb, Mauro Picardo, Khaled Ezzedine, Albert Wolkerstorfer, and Reinhart Speeckaert. 2017. “Development and Validation of a Patient-reported Outcome Measure in Vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES).” Journal of the American Academy of Dermatology 76 (3): 464–471.
Vancouver
1.
van Geel N, Lommerts JE, Bekkenk MW, Prinsen CA, Eleftheriadou V, Taieb A, et al. Development and validation of a patient-reported outcome measure in vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES). JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY. 2017;76(3):464–71.
IEEE
[1]
N. van Geel et al., “Development and validation of a patient-reported outcome measure in vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES),” JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, vol. 76, no. 3, pp. 464–471, 2017.
@article{8511365,
  abstract     = {Background: The Vitiligo Extent Score (VES) has recently been introduced as a physicians' score for the clinical assessment of the extent of vitiligo, but a good patient self-assessment score is lacking. 
Objective: The objective is to develop and validate a simplified version of the VES as a patient-reported outcome measure (PROM). 
Methods: After extensive pilot testing, patients were asked to score their vitiligo extent twice with an interval of 2 weeks using the Self Assessment Vitiligo Extent Score (SA-VES). The scores were compared with the physicians' evaluation (VES). 
Results: The SA-VES demonstrated very good test-retest reliability (intraclass correlation = 0.948, 95% confidence interval [CI]: 0.911-0.970) that was not affected by age, skin type, or vitiligo distribution pattern. According to patients, this evaluation method was easy to use (22% very easy; 49% easy; 29% normal) and required <5 minutes in the majority of patients (73%,<5 minutes; 24%, 5-10 minutes; 2%, 10-15 minutes). Comparison of the SA-VES and the VES demonstrated excellent correlation (r = 0.986, P < . 001). 
Limitations: Few patients had a dark skin type. 
Conclusion: The results demonstrate excellent reliability of the SA-VES and excellent correlation with its investigator-reported counterpart (VES). This patient-oriented evaluation method provides a useful tool for the assessment of vitiligo extent.},
  author       = {van Geel, Nanja and Lommerts, Janny E and Bekkenk, Marcel W and Prinsen, Cecilia AC and Eleftheriadou, Viktoria and Taieb, Alain and Picardo, Mauro and Ezzedine, Khaled and Wolkerstorfer, Albert and Speeckaert, Reinhart},
  issn         = {0190-9622},
  journal      = {JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY},
  keywords     = {body surface area,outcome measurement,patient-reported outcomes,severity,vitiligo,RELIABILITY,QUALITY,COSMIN,TOOL},
  language     = {eng},
  number       = {3},
  pages        = {464--471},
  title        = {Development and validation of a patient-reported outcome measure in vitiligo : the Self Assessment Vitiligo Extent Score (SA-VES)},
  url          = {http://dx.doi.org/10.1016/j.jaad.2016.09.034},
  volume       = {76},
  year         = {2017},
}

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