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Estimating the need for palliative care at the population level : a cross-national study in 12 countries

Lucas Morin, Régis Aubry, Luisa Frova, Roderick MacLeod, Donna M Wilson, Martin Loucka, Agnes Csikos, Miguel Ruiz-Ramos, Marylou Cardenas-Turanzas, YongJoo Rhee, et al. (2017) PALLIATIVE MEDICINE. 31(6). p.526-536
abstract
Background: To implement the appropriate services and develop adequate interventions, detailed estimates of the needs for palliative care in the population are needed. Aim: To estimate the proportion of decedents potentially in need of palliative care across 12 European and non-European countries. Design: This is a cross-sectional study using death certificate data. Setting/participants: All adults (18years) who died in 2008 in Belgium, Czech Republic, France, Hungary, Italy, Spain (Andalusia, 2010), Sweden, Canada, the United States (2007), Korea, Mexico, and New Zealand (N=4,908,114). Underlying causes of death were used to apply three estimation methods developed by Rosenwax et al., the French National Observatory on End-of-Life Care, and Murtagh et al., respectively. Results: The proportion of individuals who died from diseases that indicate palliative care needs at the end of life ranged from 38% to 74%. We found important cross-country variation: the population potentially in need of palliative care was lower in Mexico (24%-58%) than in the United States (41%-76%) and varied from 31%-83% in Hungary to 42%-79% in Spain. Irrespective of the estimation methods, female sex and higher age were independently associated with the likelihood of being in need of palliative care near the end of life. Home and nursing home were the two places of deaths with the highest prevalence of palliative care needs. Conclusion: These estimations of the size of the population potentially in need of palliative care provide robust indications of the challenge countries are facing if they want to seriously address palliative care needs at the population level.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
Palliative care, needs assessment, end-of-life care, cause of death, OF-LIFE CARE, HEALTH-CARE, LAST YEAR, CANCER, DEATH, PEOPLE, END, TRAJECTORIES, PREVALENCE, QUALITy
journal title
PALLIATIVE MEDICINE
Palliat. Med.
volume
31
issue
6
pages
526 - 536
Web of Science type
Article
Web of Science id
000400196900004
ISSN
0269-2163
1477-030X
DOI
10.1177/0269216316671280
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
8502257
handle
http://hdl.handle.net/1854/LU-8502257
date created
2017-01-16 12:15:13
date last changed
2017-05-24 14:17:01
@article{8502257,
  abstract     = {Background: To implement the appropriate services and develop adequate interventions, detailed estimates of the needs for palliative care in the population are needed. 
Aim: To estimate the proportion of decedents potentially in need of palliative care across 12 European and non-European countries. 
Design: This is a cross-sectional study using death certificate data. 
Setting/participants: All adults (18years) who died in 2008 in Belgium, Czech Republic, France, Hungary, Italy, Spain (Andalusia, 2010), Sweden, Canada, the United States (2007), Korea, Mexico, and New Zealand (N=4,908,114). Underlying causes of death were used to apply three estimation methods developed by Rosenwax et al., the French National Observatory on End-of-Life Care, and Murtagh et al., respectively. 
Results: The proportion of individuals who died from diseases that indicate palliative care needs at the end of life ranged from 38\% to 74\%. We found important cross-country variation: the population potentially in need of palliative care was lower in Mexico (24\%-58\%) than in the United States (41\%-76\%) and varied from 31\%-83\% in Hungary to 42\%-79\% in Spain. Irrespective of the estimation methods, female sex and higher age were independently associated with the likelihood of being in need of palliative care near the end of life. Home and nursing home were the two places of deaths with the highest prevalence of palliative care needs. 
Conclusion: These estimations of the size of the population potentially in need of palliative care provide robust indications of the challenge countries are facing if they want to seriously address palliative care needs at the population level.},
  author       = {Morin, Lucas and Aubry, R{\'e}gis and Frova, Luisa and MacLeod, Roderick and Wilson, Donna M and Loucka, Martin and Csikos, Agnes and Ruiz-Ramos, Miguel and Cardenas-Turanzas, Marylou and Rhee, YongJoo and Teno, Joan and {\"O}hl{\'e}n, Joakim and Deliens, Luc and Houttekier, Dirk and Cohen, Joachim},
  issn         = {0269-2163},
  journal      = {PALLIATIVE MEDICINE},
  keyword      = {Palliative care,needs assessment,end-of-life care,cause of death,OF-LIFE CARE,HEALTH-CARE,LAST YEAR,CANCER,DEATH,PEOPLE,END,TRAJECTORIES,PREVALENCE,QUALITy},
  language     = {eng},
  number       = {6},
  pages        = {526--536},
  title        = {Estimating the need for palliative care at the population level : a cross-national study in 12 countries},
  url          = {http://dx.doi.org/10.1177/0269216316671280},
  volume       = {31},
  year         = {2017},
}

Chicago
Morin, Lucas, Régis Aubry, Luisa Frova, Roderick MacLeod, Donna M Wilson, Martin Loucka, Agnes Csikos, et al. 2017. “Estimating the Need for Palliative Care at the Population Level : a Cross-national Study in 12 Countries.” Palliative Medicine 31 (6): 526–536.
APA
Morin, Lucas, Aubry, R., Frova, L., MacLeod, R., Wilson, D. M., Loucka, M., Csikos, A., et al. (2017). Estimating the need for palliative care at the population level : a cross-national study in 12 countries. PALLIATIVE MEDICINE, 31(6), 526–536.
Vancouver
1.
Morin L, Aubry R, Frova L, MacLeod R, Wilson DM, Loucka M, et al. Estimating the need for palliative care at the population level : a cross-national study in 12 countries. PALLIATIVE MEDICINE. 2017;31(6):526–36.
MLA
Morin, Lucas, Régis Aubry, Luisa Frova, et al. “Estimating the Need for Palliative Care at the Population Level : a Cross-national Study in 12 Countries.” PALLIATIVE MEDICINE 31.6 (2017): 526–536. Print.