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Measuring participation based on the insiders and the outsiders perspective

Stijn De Baets (UGent) , Dominique Van de Velde (UGent) , Pascal Coorevits (UGent) , Lode Sabbe (UGent) and Guy Vanderstraeten (UGent)
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Abstract
Introduction/Background: Despite the consensus on the importance of participation as an outcome measure of rehabilitation a lot of problems remain in the operational application of the concept. There is still a need for a comprehensive participation measure combining the insiders and the outsiders perspective of the patient. Therefore a new participation measure, the GPS (The Ghent Participation scale) has been developed. Material and Methods: Objective: To examine the psychometric of the Ghent Participation Scale (GPS). Design: Cross sectional study with a test-retest sample. Patients: 365 former rehabilitation outpatients from 8 diagnostic groups in 6 rehabilitation centers. Material: The GPS and the IPA (Impact on participation and autonomy), the USER-Participation (The Utrecht Scale for Evaluation of Rehabilitation Participation - USER) and the SF-36 (Medical outcome study Short Form). Results: The GPS addresses participation in 3 dimensions: (1) performing activities according to preferred choices and wishes, (2) performing activities leading to social appreciation and acceptance (3) the need to delegate activities. The GPS shows a good internal consistency (Cronbach’s α between 0.752 and 0.83). On item level, the test retest reliability was good, weighted kappa’s ranged between 0.57 and 0.88. On the dimension level: intraclass correlation coefficients (ICC) ranged between 0.80 and 0.90. The construct validity was supported by high correlations between subscales form the GPS and 4 subscales of the IPA (range, r= -0.71 to -0.87) and 2 subscales of the USER-P (range, r= 0.54 to 0.72). Standardized response mean (SRM) ranged between 0.23 and 0.68 and the Area Under the Curve (AUC) ranged between 68 and 88%. Conclusion: The GPS appears to be a reliable and valid measure to rate participation irrespective of the individual’s health condition. The GPS is responsive and is able to detect changes over time.

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Chicago
De Baets, Stijn, Dominique Van de Velde, Pascal Coorevits, LODE SABBE, and Guy Vanderstraeten. 2016. “Measuring Participation Based on the Insiders and the Outsiders Perspective.” In International Society of Physical and Rehabilitation Medicine, 10th World Congress, Abstracts.
APA
De Baets, Stijn, Van de Velde, D., Coorevits, P., SABBE, L., & Vanderstraeten, G. (2016). Measuring participation based on the insiders and the outsiders perspective. International Society of Physical and Rehabilitation Medicine, 10th World congress, Abstracts. Presented at the 10th International Society of Physical and Rehabilitation Medicine world congress (ISPRM 2016).
Vancouver
1.
De Baets S, Van de Velde D, Coorevits P, SABBE L, Vanderstraeten G. Measuring participation based on the insiders and the outsiders perspective. International Society of Physical and Rehabilitation Medicine, 10th World congress, Abstracts. 2016.
MLA
De Baets, Stijn, Dominique Van de Velde, Pascal Coorevits, et al. “Measuring Participation Based on the Insiders and the Outsiders Perspective.” International Society of Physical and Rehabilitation Medicine, 10th World Congress, Abstracts. 2016. Print.
@inproceedings{8050236,
  abstract     = {Introduction/Background: Despite the consensus on the importance of participation as an outcome measure of rehabilitation a lot of problems remain in the operational application of the concept. There is still a need for a comprehensive participation measure combining the insiders and the outsiders perspective of the patient. Therefore a new participation measure, the GPS (The Ghent Participation scale) has been developed.
Material and Methods:
Objective: To examine the psychometric of the Ghent Participation Scale (GPS).
Design: Cross sectional study with a test-retest sample.
Patients: 365 former rehabilitation outpatients from 8 diagnostic groups in 6 rehabilitation centers.
Material: The GPS and the IPA (Impact on participation and autonomy), the USER-Participation (The Utrecht Scale for Evaluation of Rehabilitation Participation - USER) and the SF-36 (Medical outcome study Short Form).
Results: The GPS addresses participation in 3 dimensions: (1) performing activities according to preferred choices and wishes, (2) performing activities leading to social appreciation and acceptance (3) the need to delegate activities. The GPS shows a good internal consistency (Cronbach{\textquoteright}s \ensuremath{\alpha} between 0.752 and 0.83). On item level, the test retest reliability was good, weighted kappa{\textquoteright}s ranged between 0.57 and 0.88. On the dimension level: intraclass correlation coefficients (ICC) ranged between 0.80 and 0.90. The construct validity was supported by high correlations between subscales form the GPS and 4 subscales of the IPA (range, r= -0.71 to -0.87) and 2 subscales of the USER-P (range, r= 0.54 to 0.72). Standardized response mean (SRM) ranged between 0.23 and 0.68 and the Area Under the Curve (AUC) ranged between 68 and 88\%.
Conclusion: The GPS appears to be a reliable and valid measure to rate participation irrespective of the individual{\textquoteright}s health condition. The GPS is responsive and is able to detect changes over time.},
  author       = {De Baets, Stijn and Van de Velde, Dominique and Coorevits, Pascal and Sabbe, Lode and Vanderstraeten, Guy},
  booktitle    = {International Society of Physical and Rehabilitation Medicine, 10th World congress, Abstracts},
  language     = {eng},
  location     = {Kuala Lumpur, Malaysia},
  title        = {Measuring participation based on the insiders and the outsiders perspective},
  year         = {2016},
}