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Information preferences of the general population when faced with life-limiting illness

Aline De Vleminck UGent, Koen Pardon UGent, Marc Roelands, Dirk Houttekier UGent, Lieve Van den Block UGent, Robert Vander Stichele UGent and Luc Deliens UGent (2015) EUROPEAN JOURNAL OF PUBLIC HEALTH. 25(3). p.532-538
abstract
Background: Giving the public and the patients good information enables them to make effective choices about their care. This study describes public preferences for both themselves and their relatives on receiving information on end-of-life care topics when faced with a life-limiting illness and to identify associated factors. Method: This study used data from the cross-sectional Health Interview Study (HIS) 2008 that collected data from a representative sample (N= 9651) of the Belgian population. Results: Around 82% of respondents wanted to be informed always about diagnosis, chances of cure and available treatments, 77% wanted to be informed on life expectancy, 72% on options regarding palliative care and 67% on possibilities of prolonging or shortening life. Around 55% wanted their relative to be informed always about diagnosis, chances of cure, life expectancy and different treatments available, whereas 50% wanted this in relation to the options regarding palliative care and 46% on the possibilities of prolonging or shortening life. Younger adults, people with more education and people with a regular GP were more likely to want to be informed always. Younger adults and women were less likely to want their relatives to be informed always. Conclusion: The majority of the Belgian population wants to be informed always about end-of-life care topics when faced with a life-limiting illness. Physicians should be aware of the desired level of information and tailor information to individual patient preferences. Understanding population preferences may help to tailor patient education and health promotion programmes appropriately.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
DECISION-MAKING, PUBLIC PREFERENCES, CARE, END, COMMUNICATION, PRACTITIONERS, CANCER, PERSPECTIVES, CAREGIVERS, BELGIUM
journal title
EUROPEAN JOURNAL OF PUBLIC HEALTH
Eur. J. Public Health
volume
25
issue
3
pages
532 - 538
Web of Science type
Article
Web of Science id
000355838000039
JCR category
PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
JCR impact factor
2.751 (2015)
JCR rank
18/153 (2015)
JCR quartile
1 (2015)
ISSN
1101-1262
DOI
10.1093/eurpub/cku158
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
7036464
handle
http://hdl.handle.net/1854/LU-7036464
date created
2016-01-13 14:08:55
date last changed
2016-12-19 15:42:06
@article{7036464,
  abstract     = {Background: Giving the public and the patients good information enables them to make effective choices about their care. This study describes public preferences for both themselves and their relatives on receiving information on end-of-life care topics when faced with a life-limiting illness and to identify associated factors.
Method: This study used data from the cross-sectional Health Interview Study (HIS) 2008 that collected data from a representative sample (N= 9651) of the Belgian population.
Results: Around 82\% of respondents wanted to be informed always about diagnosis, chances of cure and available treatments, 77\% wanted to be informed on life expectancy, 72\% on options regarding palliative care and 67\% on possibilities of prolonging or shortening life. Around 55\% wanted their relative to be informed always about diagnosis, chances of cure, life expectancy and different treatments available, whereas 50\% wanted this in relation to the options regarding palliative care and 46\% on the possibilities of prolonging or shortening life. Younger adults, people with more education and people with a regular GP were more likely to want to be informed always. Younger adults and women were less likely to want their relatives to be informed always.
Conclusion: The majority of the Belgian population wants to be informed always about end-of-life care topics when faced with a life-limiting illness. Physicians should be aware of the desired level of information and tailor information to individual patient preferences. Understanding population preferences may help to tailor patient education and health promotion programmes appropriately.},
  author       = {De Vleminck, Aline and Pardon, Koen and Roelands, Marc and Houttekier, Dirk and Van den Block, Lieve and Vander Stichele, Robert and Deliens, Luc},
  issn         = {1101-1262},
  journal      = {EUROPEAN JOURNAL OF PUBLIC HEALTH},
  keyword      = {DECISION-MAKING,PUBLIC PREFERENCES,CARE,END,COMMUNICATION,PRACTITIONERS,CANCER,PERSPECTIVES,CAREGIVERS,BELGIUM},
  language     = {eng},
  number       = {3},
  pages        = {532--538},
  title        = {Information preferences of the general population when faced with life-limiting illness},
  url          = {http://dx.doi.org/10.1093/eurpub/cku158},
  volume       = {25},
  year         = {2015},
}

Chicago
De Vleminck, Aline, Koen Pardon, Marc Roelands, Dirk Houttekier, Lieve Van den Block, Robert Vander Stichele, and Luc Deliens. 2015. “Information Preferences of the General Population When Faced with Life-limiting Illness.” European Journal of Public Health 25 (3): 532–538.
APA
De Vleminck, A., Pardon, K., Roelands, M., Houttekier, D., Van den Block, L., Vander Stichele, R., & Deliens, L. (2015). Information preferences of the general population when faced with life-limiting illness. EUROPEAN JOURNAL OF PUBLIC HEALTH, 25(3), 532–538.
Vancouver
1.
De Vleminck A, Pardon K, Roelands M, Houttekier D, Van den Block L, Vander Stichele R, et al. Information preferences of the general population when faced with life-limiting illness. EUROPEAN JOURNAL OF PUBLIC HEALTH. 2015;25(3):532–8.
MLA
De Vleminck, Aline, Koen Pardon, Marc Roelands, et al. “Information Preferences of the General Population When Faced with Life-limiting Illness.” EUROPEAN JOURNAL OF PUBLIC HEALTH 25.3 (2015): 532–538. Print.