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A data protection framework for transeuropean genetic research projects

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Abstract
The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The Outcome is an environment that combines both good research conditions and in extensive protection of patients privacy.
Keywords
pseudonymization, Data protection, anonymization, genetic research

Citation

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Chicago
Claerhout, Brecht, Nikolaus Forgo, Tina Krügel, Marian Arning, and Georges De Moor. 2008. “A Data Protection Framework for Transeuropean Genetic Research Projects.” In Studies in Health Technology and Informatics, ed. Joseph Bellon, Michel Foulon, Johan Van der Lei, Etienne De Clercq, and Georges De Moor, 141:67–72. Amsterdam, The Netherlands: IOS Press.
APA
Claerhout, Brecht, Forgo, N., Krügel, T., Arning, M., & De Moor, G. (2008). A data protection framework for transeuropean genetic research projects. In Joseph Bellon, M. Foulon, J. Van der Lei, E. De Clercq, & G. De Moor (Eds.), Studies in Health Technology and Informatics (Vol. 141, pp. 67–72). Presented at the HIT@HealthCare 2008 joint event : 25th MIC congress ; 3rd International congress Sixi ; Special ISV-NVKVV event ; 8th Belgian eHealth symposium, Amsterdam, The Netherlands: IOS Press.
Vancouver
1.
Claerhout B, Forgo N, Krügel T, Arning M, De Moor G. A data protection framework for transeuropean genetic research projects. In: Bellon J, Foulon M, Van der Lei J, De Clercq E, De Moor G, editors. Studies in Health Technology and Informatics. Amsterdam, The Netherlands: IOS Press; 2008. p. 67–72.
MLA
Claerhout, Brecht, Nikolaus Forgo, Tina Krügel, et al. “A Data Protection Framework for Transeuropean Genetic Research Projects.” Studies in Health Technology and Informatics. Ed. Joseph Bellon et al. Vol. 141. Amsterdam, The Netherlands: IOS Press, 2008. 67–72. Print.
@inproceedings{686858,
  abstract     = {The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The Outcome is an environment that combines both good research conditions and in extensive protection of patients privacy.},
  author       = {Claerhout, Brecht and Forgo, Nikolaus and Krügel, Tina and Arning, Marian and De Moor, Georges},
  booktitle    = {Studies in Health Technology and Informatics},
  editor       = {Bellon, Joseph and Foulon, Michel and Van der Lei, Johan and De Clercq, Etienne and De Moor, Georges},
  isbn         = {9781586039226},
  issn         = {0926-9630},
  keywords     = {pseudonymization,Data protection,anonymization,genetic research},
  language     = {eng},
  location     = {Brussels, Belgium},
  pages        = {67--72},
  publisher    = {IOS Press},
  title        = {A data protection framework for transeuropean genetic research projects},
  url          = {http://dx.doi.org/10.3233/978-1-58603-922-6-67},
  volume       = {141},
  year         = {2008},
}

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