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Evaluation of quality-of-life measures for use in palliative care: a systematic review

(2010) PALLIATIVE MEDICINE. 24(1). p.17-37
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Abstract
Purpose: In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care. Methods: We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that present data on patients receiving palliative care and at least one measurement property. A checklist was used to describe the characteristics of the instruments, and a widely accepted rating list was used to evaluate the clinimetric aspects. Results: 29 instruments were identified and evaluated, most of which were targeted at palliative patients in general. None of the instruments demonstrated satisfactory results for all measurement properties. Fourteen instruments received positive ratings for construct validity. Thirteen instruments were tested for reliability, but only two were tested adequately and had positive results (ICC>0.70). Responsiveness was not tested adequately for any of the instruments. Very few of the studies provided information on the interpretation of the scores. Overall, the MQOL, followed by the QUAL-E and the QODD, received the best ratings for their measurement properties. Conclusions: Many measurement instruments were identified, but most had not yet been adequately evaluated. The evaluation of existing instruments with good content validity should have priority over the development of new instruments.
Keywords
EORTC QLQ-C30, palliative care, PSYCHOMETRIC VALIDATION, ASSESSMENT INSTRUMENTS, QUESTIONNAIRE MODULE, PHYSICAL SYMPTOMS, FAMILY-MEMBERS, SYMPTOM ASSESSMENT SCALE, FUNCTIONAL ASSESSMENT-TOOL, quality of life, instruments, end of life, ADVANCED CANCER-PATIENTS, ITEM RESPONSE THEORY

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MLA
Albers, Gwenda et al. “Evaluation of Quality-of-life Measures for Use in Palliative Care: a Systematic Review.” PALLIATIVE MEDICINE 24.1 (2010): 17–37. Print.
APA
Albers, G., Echteld, M. A., de Vet, H. C., Onwuteaka-Philipsen, B. D., van der Linden, M. H., & Deliens, L. (2010). Evaluation of quality-of-life measures for use in palliative care: a systematic review. PALLIATIVE MEDICINE, 24(1), 17–37.
Chicago author-date
Albers, Gwenda, Michael A Echteld, Henrica CW de Vet, Bregje D Onwuteaka-Philipsen, Mecheline HM van der Linden, and Luc Deliens. 2010. “Evaluation of Quality-of-life Measures for Use in Palliative Care: a Systematic Review.” Palliative Medicine 24 (1): 17–37.
Chicago author-date (all authors)
Albers, Gwenda, Michael A Echteld, Henrica CW de Vet, Bregje D Onwuteaka-Philipsen, Mecheline HM van der Linden, and Luc Deliens. 2010. “Evaluation of Quality-of-life Measures for Use in Palliative Care: a Systematic Review.” Palliative Medicine 24 (1): 17–37.
Vancouver
1.
Albers G, Echteld MA, de Vet HC, Onwuteaka-Philipsen BD, van der Linden MH, Deliens L. Evaluation of quality-of-life measures for use in palliative care: a systematic review. PALLIATIVE MEDICINE. 2010;24(1):17–37.
IEEE
[1]
G. Albers, M. A. Echteld, H. C. de Vet, B. D. Onwuteaka-Philipsen, M. H. van der Linden, and L. Deliens, “Evaluation of quality-of-life measures for use in palliative care: a systematic review,” PALLIATIVE MEDICINE, vol. 24, no. 1, pp. 17–37, 2010.
@article{5933636,
  abstract     = {Purpose: In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care.
Methods: We conducted a systematic literature review to identify instruments measuring (at least one domain of) QoL. We selected articles that present data on patients receiving palliative care and at least one measurement property. A checklist was used to describe the characteristics of the instruments, and a widely accepted rating list was used to evaluate the clinimetric aspects.
Results: 29 instruments were identified and evaluated, most of which were targeted at palliative patients in general. None of the instruments demonstrated satisfactory results for all measurement properties. Fourteen instruments received positive ratings for construct validity. Thirteen instruments were tested for reliability, but only two were tested adequately and had positive results (ICC>0.70). Responsiveness was not tested adequately for any of the instruments. Very few of the studies provided information on the interpretation of the scores. Overall, the MQOL, followed by the QUAL-E and the QODD, received the best ratings for their measurement properties.
Conclusions: Many measurement instruments were identified, but most had not yet been adequately evaluated. The evaluation of existing instruments with good content validity should have priority over the development of new instruments.},
  author       = {Albers, Gwenda and Echteld, Michael A and de Vet, Henrica CW and Onwuteaka-Philipsen, Bregje D and van der Linden, Mecheline HM and Deliens, Luc},
  issn         = {0269-2163},
  journal      = {PALLIATIVE MEDICINE},
  keywords     = {EORTC QLQ-C30,palliative care,PSYCHOMETRIC VALIDATION,ASSESSMENT INSTRUMENTS,QUESTIONNAIRE MODULE,PHYSICAL SYMPTOMS,FAMILY-MEMBERS,SYMPTOM ASSESSMENT SCALE,FUNCTIONAL ASSESSMENT-TOOL,quality of life,instruments,end of life,ADVANCED CANCER-PATIENTS,ITEM RESPONSE THEORY},
  language     = {eng},
  number       = {1},
  pages        = {17--37},
  title        = {Evaluation of quality-of-life measures for use in palliative care: a systematic review},
  url          = {http://dx.doi.org/10.1177/0269216309346593},
  volume       = {24},
  year         = {2010},
}

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