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Community knowledge, beliefs, attitudes and practices towards children with Spina Bifida and Hydrocephalus in Uganda

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Abstract
This article describes the findings of a qualitative study on knowledge, beliefs, attitudes, and practices towards children with spina bifida and hydrocephalus in four regions of Uganda. Focus group discussions and semi-structured interviews were held with parents of children with spina bifida and hydrocephalus, policy-makers, and service providers. Our findings describe how negative knowledge, beliefs, attitudes, and practices create barriers to treatment and inclusion of children with spina bifida and hydrocephalus and their parents in Uganda. The findings show how knowledge, beliefs, attitudes, and practices evolve over time, are both similar and differ in the various regions, and become more conducive towards accessing treatment and achieving inclusion. Sensitisation and early intervention including parents and service providers in dissemination of knowledge, rehabilitative care to set the trend for positive change and support, as well as longitudinal studies of children with spina bifida and hydrocephalus and their parents are recommended.
Keywords
MYELOMENINGOCELE, NEURAL-TUBE DEFECTS, EPIDEMIOLOGY, INFANTS, spina bifida, knowledge, hydrocephalus, disability, Africa, practices, attitudes

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MLA
Bannink Mbazzi, Femke, et al. “Community Knowledge, Beliefs, Attitudes and Practices towards Children with Spina Bifida and Hydrocephalus in Uganda.” INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION, vol. 62, no. 2, Routledge, 2015, pp. 182–201.
APA
Bannink Mbazzi, F., Stroeken, K., Idro, R., & Van Hove, G. (2015). Community knowledge, beliefs, attitudes and practices towards children with Spina Bifida and Hydrocephalus in Uganda. INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION, 62(2), 182–201.
Chicago author-date
Bannink Mbazzi, Femke, Koenraad Stroeken, Richard Idro, and Geert Van Hove. 2015. “Community Knowledge, Beliefs, Attitudes and Practices towards Children with Spina Bifida and Hydrocephalus in Uganda.” INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION 62 (2): 182–201.
Chicago author-date (all authors)
Bannink Mbazzi, Femke, Koenraad Stroeken, Richard Idro, and Geert Van Hove. 2015. “Community Knowledge, Beliefs, Attitudes and Practices towards Children with Spina Bifida and Hydrocephalus in Uganda.” INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION 62 (2): 182–201.
Vancouver
1.
Bannink Mbazzi F, Stroeken K, Idro R, Van Hove G. Community knowledge, beliefs, attitudes and practices towards children with Spina Bifida and Hydrocephalus in Uganda. INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION. 2015;62(2):182–201.
IEEE
[1]
F. Bannink Mbazzi, K. Stroeken, R. Idro, and G. Van Hove, “Community knowledge, beliefs, attitudes and practices towards children with Spina Bifida and Hydrocephalus in Uganda,” INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION, vol. 62, no. 2, pp. 182–201, 2015.
@article{5897527,
  abstract     = {This article describes the findings of a qualitative study on knowledge, beliefs, attitudes, and practices towards children with spina bifida and hydrocephalus in four regions of Uganda. Focus group discussions and semi-structured interviews were held with parents of children with spina bifida and hydrocephalus, policy-makers, and service providers. Our findings describe how negative knowledge, beliefs, attitudes, and practices create barriers to treatment and inclusion of children with spina bifida and hydrocephalus and their parents in Uganda. The findings show how knowledge, beliefs, attitudes, and practices evolve over time, are both similar and differ in the various regions, and become more conducive towards accessing treatment and achieving inclusion. Sensitisation and early intervention including parents and service providers in dissemination of knowledge, rehabilitative care to set the trend for positive change and support, as well as longitudinal studies of children with spina bifida and hydrocephalus and their parents are recommended.},
  author       = {Bannink Mbazzi, Femke and Stroeken, Koenraad and Idro, Richard and Van Hove, Geert},
  issn         = {1034-912X},
  journal      = {INTERNATIONAL JOURNAL OF DISABILITY DEVELOPMENT AND EDUCATION},
  keywords     = {MYELOMENINGOCELE,NEURAL-TUBE DEFECTS,EPIDEMIOLOGY,INFANTS,spina bifida,knowledge,hydrocephalus,disability,Africa,practices,attitudes},
  language     = {eng},
  number       = {2},
  pages        = {182--201},
  publisher    = {Routledge},
  title        = {Community knowledge, beliefs, attitudes and practices towards children with Spina Bifida and Hydrocephalus in Uganda},
  url          = {http://dx.doi.org/10.1080/1034912X.2014.998174},
  volume       = {62},
  year         = {2015},
}

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