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When do people with dementia die peacefully?: an analysis of data collected prospectively in long-term care settings

Maaike L De Roo, Jenny T van der Steen, Francisca Galindo Garre, Nele Van Den Noortgate UGent, Bregje D Onwuteaka-Philipsen, Luc Deliens UGent and Anneke L Francke (2014) PALLIATIVE MEDICINE. 28(3). p.210-219
abstract
Background: Little is known about dying peacefully with dementia in long-term care facilities. Dying peacefully may be influenced by characteristics of the palliative care provided and characteristics of the long-term care setting. If so, dying peacefully may serve as a quality indicator for palliative care in dementia. Aim: This study aims to describe whether residents with dementia in Dutch long-term care facilities die peacefully and to assess which characteristics of the resident, the palliative care provided and the facilities are associated with dying peacefully. Design and Setting: We analysed existing data from the Dutch End of Life in Dementia study, collected between January 2007 and July 2010 in 34 long-term care facilities in the Netherlands. We used descriptive statistics and Generalised Estimating Equation models. Results: The sample consisted of 233 residents with dementia. Family members indicated that the resident died peacefully in 56% of cases. This percentage ranged from 17% to 80% across facilities. Residents were more likely to die peacefully if they had an optimistic attitude, if family found that there were enough nurses available and if residents died in facilities with a moderate (versus no) perceived influence of religious affiliation on end-of-life decision-making policies. Conclusions: Only half of the residents with dementia in Dutch long-term care facilities die peacefully, as perceived by relatives. In addition to residents' optimistic attitude, facility characteristics are associated with dying peacefully, which suggests that the percentage of relatives who indicate that the patient died peacefully' can function as a quality indicator.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
nursing homes, palliative care, dementia, spirituality, Peaceful death, quality indicators, OF-LIFE CARE, QUALITY INDICATORS, PALLIATIVE CARE, END, SCALE, PLACE, DEATH, HOME
journal title
PALLIATIVE MEDICINE
Palliat. Med.
volume
28
issue
3
pages
210 - 219
Web of Science type
Article
Web of Science id
000330754800003
JCR category
MEDICINE, GENERAL & INTERNAL
JCR impact factor
2.855 (2014)
JCR rank
27/154 (2014)
JCR quartile
1 (2014)
ISSN
0269-2163
DOI
10.1177/0269216313509128
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
4429180
handle
http://hdl.handle.net/1854/LU-4429180
date created
2014-06-25 15:20:14
date last changed
2016-12-19 15:39:30
@article{4429180,
  abstract     = {Background: Little is known about dying peacefully with dementia in long-term care facilities. Dying peacefully may be influenced by characteristics of the palliative care provided and characteristics of the long-term care setting. If so, dying peacefully may serve as a quality indicator for palliative care in dementia.
Aim: This study aims to describe whether residents with dementia in Dutch long-term care facilities die peacefully and to assess which characteristics of the resident, the palliative care provided and the facilities are associated with dying peacefully.
Design and Setting: We analysed existing data from the Dutch End of Life in Dementia study, collected between January 2007 and July 2010 in 34 long-term care facilities in the Netherlands. We used descriptive statistics and Generalised Estimating Equation models.
Results: The sample consisted of 233 residents with dementia. Family members indicated that the resident died peacefully in 56\% of cases. This percentage ranged from 17\% to 80\% across facilities. Residents were more likely to die peacefully if they had an optimistic attitude, if family found that there were enough nurses available and if residents died in facilities with a moderate (versus no) perceived influence of religious affiliation on end-of-life decision-making policies.
Conclusions: Only half of the residents with dementia in Dutch long-term care facilities die peacefully, as perceived by relatives. In addition to residents' optimistic attitude, facility characteristics are associated with dying peacefully, which suggests that the percentage of relatives who indicate that the patient died peacefully' can function as a quality indicator.},
  author       = {De Roo, Maaike L and van der Steen, Jenny T and Galindo Garre, Francisca and Van Den Noortgate, Nele and Onwuteaka-Philipsen, Bregje D and Deliens, Luc and Francke, Anneke L},
  issn         = {0269-2163},
  journal      = {PALLIATIVE MEDICINE},
  keyword      = {nursing homes,palliative care,dementia,spirituality,Peaceful death,quality indicators,OF-LIFE CARE,QUALITY INDICATORS,PALLIATIVE CARE,END,SCALE,PLACE,DEATH,HOME},
  language     = {eng},
  number       = {3},
  pages        = {210--219},
  title        = {When do people with dementia die peacefully?: an analysis of data collected prospectively in long-term care settings},
  url          = {http://dx.doi.org/10.1177/0269216313509128},
  volume       = {28},
  year         = {2014},
}

Chicago
De Roo, Maaike L, Jenny T van der Steen, Francisca Galindo Garre, Nele Van Den Noortgate, Bregje D Onwuteaka-Philipsen, Luc Deliens, and Anneke L Francke. 2014. “When Do People with Dementia Die Peacefully?: An Analysis of Data Collected Prospectively in Long-term Care Settings.” Palliative Medicine 28 (3): 210–219.
APA
De Roo, M. L., van der Steen, J. T., Galindo Garre, F., Van Den Noortgate, N., Onwuteaka-Philipsen, B. D., Deliens, L., & Francke, A. L. (2014). When do people with dementia die peacefully?: an analysis of data collected prospectively in long-term care settings. PALLIATIVE MEDICINE, 28(3), 210–219.
Vancouver
1.
De Roo ML, van der Steen JT, Galindo Garre F, Van Den Noortgate N, Onwuteaka-Philipsen BD, Deliens L, et al. When do people with dementia die peacefully?: an analysis of data collected prospectively in long-term care settings. PALLIATIVE MEDICINE. 2014;28(3):210–9.
MLA
De Roo, Maaike L, Jenny T van der Steen, Francisca Galindo Garre, et al. “When Do People with Dementia Die Peacefully?: An Analysis of Data Collected Prospectively in Long-term Care Settings.” PALLIATIVE MEDICINE 28.3 (2014): 210–219. Print.