Advanced search
1 file | 818.08 KB Add to list

Aged parents' experiences during a critical illness trajectory and after the death of an adult child: a review of the literature

Liesbeth Van Humbeeck (UGent) , Ruth Piers (UGent) , Sigrid Van Camp (UGent) , Let Dillen (UGent) , Sofie Verhaeghe (UGent) and Nele Van Den Noortgate (UGent)
(2013) PALLIATIVE MEDICINE. 27(7). p.583-595
Author
Organization
Abstract
Background: Given the growing life expectancy, the likelihood increases that health-care providers are confronted with older people having an adult child with a life-limiting disease. Aim: This literature review aimed to (1) explore the experiences of aged parents with regard to their position and role as a parent of an adult child with a life-limiting illness, (2) detect gaps in the existing literature and (3) make recommendations for future research. Design: A literature search of English articles, including both quantitative and qualitative designs. Data sources: Four electronic databases and the reference lists of included studies. Results: In total, 19 studies (7 quantitative and 12 qualitative) were included. Few studies describe the experiences of older people whose adult child has cancer or has died of cancer. Existing studies are merely descriptive and give no concrete recommendations for health-care providers in daily practice. The studies suggest that aged parents carry deep burdens from the prospect of losing their adult child. Aged parents want to stay involved but need to reconfigure their parent role. As soon as the cancer diagnosis is disclosed, parents are confronted with a re-awakening of parental nurturing, which clashes with the autonomy of the adult child. Even after the adult child is deceased, older parents retain the image of themselves as parents. Conclusions: There is a need for more in-depth research to understand the lived experience of these parents and what health-care providers can do to assist them.
Keywords
Adult children, PERSPECTIVE, ADJUSTMENT, BEREAVEMENT, HEALTH, COMMUNICATION, grief, review, INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS, ELDERLY PARENTS, PALLIATIVE CARE, BREAST-CANCER, LATER LIFE, parents, aged, critical illness, death

Downloads

  • (...).pdf
    • full text
    • |
    • UGent only
    • |
    • PDF
    • |
    • 818.08 KB

Citation

Please use this url to cite or link to this publication:

MLA
Van Humbeeck, Liesbeth, Ruth Piers, Sigrid Van Camp, et al. “Aged Parents’ Experiences During a Critical Illness Trajectory and After the Death of an Adult Child: a Review of the Literature.” PALLIATIVE MEDICINE 27.7 (2013): 583–595. Print.
APA
Van Humbeeck, Liesbeth, Piers, R., Van Camp, S., Dillen, L., Verhaeghe, S., & Van Den Noortgate, N. (2013). Aged parents’ experiences during a critical illness trajectory and after the death of an adult child: a review of the literature. PALLIATIVE MEDICINE, 27(7), 583–595.
Chicago author-date
Van Humbeeck, Liesbeth, Ruth Piers, Sigrid Van Camp, Let Dillen, Sofie Verhaeghe, and Nele Van Den Noortgate. 2013. “Aged Parents’ Experiences During a Critical Illness Trajectory and After the Death of an Adult Child: a Review of the Literature.” Palliative Medicine 27 (7): 583–595.
Chicago author-date (all authors)
Van Humbeeck, Liesbeth, Ruth Piers, Sigrid Van Camp, Let Dillen, Sofie Verhaeghe, and Nele Van Den Noortgate. 2013. “Aged Parents’ Experiences During a Critical Illness Trajectory and After the Death of an Adult Child: a Review of the Literature.” Palliative Medicine 27 (7): 583–595.
Vancouver
1.
Van Humbeeck L, Piers R, Van Camp S, Dillen L, Verhaeghe S, Van Den Noortgate N. Aged parents’ experiences during a critical illness trajectory and after the death of an adult child: a review of the literature. PALLIATIVE MEDICINE. 2013;27(7):583–95.
IEEE
[1]
L. Van Humbeeck, R. Piers, S. Van Camp, L. Dillen, S. Verhaeghe, and N. Van Den Noortgate, “Aged parents’ experiences during a critical illness trajectory and after the death of an adult child: a review of the literature,” PALLIATIVE MEDICINE, vol. 27, no. 7, pp. 583–595, 2013.
@article{4087115,
  abstract     = {Background: Given the growing life expectancy, the likelihood increases that health-care providers are confronted with older people having an adult child with a life-limiting disease.
Aim: This literature review aimed to (1) explore the experiences of aged parents with regard to their position and role as a parent of an adult child with a life-limiting illness, (2) detect gaps in the existing literature and (3) make recommendations for future research.
Design: A literature search of English articles, including both quantitative and qualitative designs.
Data sources: Four electronic databases and the reference lists of included studies. 
Results: In total, 19 studies (7 quantitative and 12 qualitative) were included. Few studies describe the experiences of older people whose adult child has cancer or has died of cancer. Existing studies are merely descriptive and give no concrete recommendations for health-care providers in daily practice. The studies suggest that aged parents carry deep burdens from the prospect of losing their adult child. Aged parents want to stay involved but need to reconfigure their parent role. As soon as the cancer diagnosis is disclosed, parents are confronted with a re-awakening of parental nurturing, which clashes with the autonomy of the adult child. Even after the adult child is deceased, older parents retain the image of themselves as parents.
Conclusions: There is a need for more in-depth research to understand the lived experience of these parents and what health-care providers can do to assist them.},
  author       = {Van Humbeeck, Liesbeth and Piers, Ruth and Van Camp, Sigrid and Dillen, Let and Verhaeghe, Sofie and Van Den Noortgate, Nele},
  issn         = {0269-2163},
  journal      = {PALLIATIVE MEDICINE},
  keywords     = {Adult children,PERSPECTIVE,ADJUSTMENT,BEREAVEMENT,HEALTH,COMMUNICATION,grief,review,INTERPRETATIVE PHENOMENOLOGICAL ANALYSIS,ELDERLY PARENTS,PALLIATIVE CARE,BREAST-CANCER,LATER LIFE,parents,aged,critical illness,death},
  language     = {eng},
  number       = {7},
  pages        = {583--595},
  title        = {Aged parents' experiences during a critical illness trajectory and after the death of an adult child: a review of the literature},
  url          = {http://dx.doi.org/10.1177/0269216313483662},
  volume       = {27},
  year         = {2013},
}

Altmetric
View in Altmetric
Web of Science
Times cited: