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Researching lived experience in health care: significance for care ethics

(2011) NURSING ETHICS. 18(2). p.232-242
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Abstract
The aim of this article is to demonstrate the usefulness of qualitative research for studying the ethics of care, bringing to light the lived experience of health care recipients, together with the importance of methods that allow reconstruction of the processes underlying this lived experience. Lived experiences of families being approached for organ donation, parents facing the imminent death of their child and patients being treated using stem cell transplantation are used to illustrate how ethical principles are differentiated, modified or contradicted by the narrative context of persons concerned. The integration of empirical data into ethics will help caregivers in their ethical decision making and may enrich care ethics as a narrative and interpretative field.
Keywords
stem cell transplantation, qualitative research, organ donation, lived experiences, empirical ethics, care ethics, TRAUMATIC COMA PATIENTS, INTENSIVE-CARE, FAMILY-MEMBERS, HOPE

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MLA
Dierckx de Casterlé, Bernadette, et al. “Researching Lived Experience in Health Care: Significance for Care Ethics.” NURSING ETHICS, vol. 18, no. 2, 2011, pp. 232–42, doi:10.1177/0969733010389253.
APA
Dierckx de Casterlé, B., Verhaeghe, S., Kars, M. C., Coolbrandt, A., Stevens, M., Stubbe, M., … Grypdonck, M. (2011). Researching lived experience in health care: significance for care ethics. NURSING ETHICS, 18(2), 232–242. https://doi.org/10.1177/0969733010389253
Chicago author-date
Dierckx de Casterlé, Bernadette, Sofie Verhaeghe, Marijke C Kars, Annemarie Coolbrandt, Marleen Stevens, Maaike Stubbe, Nathalie Deweirdt, Jeroen Vincke, and Maria Grypdonck. 2011. “Researching Lived Experience in Health Care: Significance for Care Ethics.” NURSING ETHICS 18 (2): 232–42. https://doi.org/10.1177/0969733010389253.
Chicago author-date (all authors)
Dierckx de Casterlé, Bernadette, Sofie Verhaeghe, Marijke C Kars, Annemarie Coolbrandt, Marleen Stevens, Maaike Stubbe, Nathalie Deweirdt, Jeroen Vincke, and Maria Grypdonck. 2011. “Researching Lived Experience in Health Care: Significance for Care Ethics.” NURSING ETHICS 18 (2): 232–242. doi:10.1177/0969733010389253.
Vancouver
1.
Dierckx de Casterlé B, Verhaeghe S, Kars MC, Coolbrandt A, Stevens M, Stubbe M, et al. Researching lived experience in health care: significance for care ethics. NURSING ETHICS. 2011;18(2):232–42.
IEEE
[1]
B. Dierckx de Casterlé et al., “Researching lived experience in health care: significance for care ethics,” NURSING ETHICS, vol. 18, no. 2, pp. 232–242, 2011.
@article{2997046,
  abstract     = {{The aim of this article is to demonstrate the usefulness of qualitative research for studying the ethics of care, bringing to light the lived experience of health care recipients, together with the importance of methods that allow reconstruction of the processes underlying this lived experience. Lived experiences of families being approached for organ donation, parents facing the imminent death of their child and patients being treated using stem cell transplantation are used to illustrate how ethical principles are differentiated, modified or contradicted by the narrative context of persons concerned. The integration of empirical data into ethics will help caregivers in their ethical decision making and may enrich care ethics as a narrative and interpretative field.}},
  author       = {{Dierckx de Casterlé, Bernadette and Verhaeghe, Sofie and Kars, Marijke C and Coolbrandt, Annemarie and Stevens, Marleen and Stubbe, Maaike and Deweirdt, Nathalie and Vincke, Jeroen and Grypdonck, Maria}},
  issn         = {{0969-7330}},
  journal      = {{NURSING ETHICS}},
  keywords     = {{stem cell transplantation,qualitative research,organ donation,lived experiences,empirical ethics,care ethics,TRAUMATIC COMA PATIENTS,INTENSIVE-CARE,FAMILY-MEMBERS,HOPE}},
  language     = {{eng}},
  number       = {{2}},
  pages        = {{232--242}},
  title        = {{Researching lived experience in health care: significance for care ethics}},
  url          = {{http://dx.doi.org/10.1177/0969733010389253}},
  volume       = {{18}},
  year         = {{2011}},
}

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