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Chronic disease management programmes: an adequate response to patients' needs?

Mieke Rijken, Nienke Bekkema, Pauline Boeckxstaens UGent, Francois G Schellevis, Jan De Maeseneer UGent and Peter Groenewegen (2014) HEALTH EXPECTATIONS. 17(5). p.608-621
abstract
Background: Inspired by American examples, several European countries are now developing disease management programmes (DMPs) to improve the quality of care for patients with chronic diseases. Recently, questions have been raised whether the disease management approach is appropriate to respond to patient-defined needs. Objective: In this article we consider the responsiveness of current European DMPs to patients' needs defined in terms of multimorbidity, functional and participation problems, and self-management. Method: Information about existing DMPs was derived from a survey among country-experts. In addition, we made use of international scientific literature. Results: Most European DMPs do not have a solid answer yet to the problem of multimorbidity. Methods of linking DMPs, building extra modules to deal with the most prevalent comorbidities and integration of case management principles are introduced. Rehabilitation, psychosocial and reintegration support are not included in all DMPs, and the involvement of the social environment of the patient is uncommon. Interventions tailored to the needs of specific social or cultural patient groups are mostly not available. Few DMPs provide access to individualized patient information to strengthen self-management, including active engagement in decision making. Conclusion: To further improve the responsiveness of DMPs to patients' needs, we suggest to monitor' patient relevant outcomes' that might be based on the ICF-model. To address the needs of patients with multimorbidity, we propose a generic comprehensive model, embedded in primary care. Agoal-oriented approach provides the opportunity to prioritize goals that really matter to patients.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
disease management, goal-oriented care, multi morbidity, self-management, patients' needs, chronic illness
journal title
HEALTH EXPECTATIONS
Health Expect.
volume
17
issue
5
pages
608 - 621
Web of Science type
Article
Web of Science id
000342581600003
ISSN
1369-7625
DOI
10.1111/j.1369-7625.2012.00786.x
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
2986017
handle
http://hdl.handle.net/1854/LU-2986017
date created
2012-09-12 16:26:14
date last changed
2015-06-17 10:14:21
@article{2986017,
  abstract     = {Background: Inspired by American examples, several European countries are now developing disease management programmes (DMPs) to improve the quality of care for patients with chronic diseases. Recently, questions have been raised whether the disease management approach is appropriate to respond to patient-defined needs. 
Objective: In this article we consider the responsiveness of current European DMPs to patients' needs defined in terms of multimorbidity, functional and participation problems, and self-management. 
Method: Information about existing DMPs was derived from a survey among country-experts. In addition, we made use of international scientific literature. 
Results: Most European DMPs do not have a solid answer yet to the problem of multimorbidity. Methods of linking DMPs, building extra modules to deal with the most prevalent comorbidities and integration of case management principles are introduced. Rehabilitation, psychosocial and reintegration support are not included in all DMPs, and the involvement of the social environment of the patient is uncommon. Interventions tailored to the needs of specific social or cultural patient groups are mostly not available. Few DMPs provide access to individualized patient information to strengthen self-management, including active engagement in decision making. 
Conclusion: To further improve the responsiveness of DMPs to patients' needs, we suggest to monitor' patient relevant outcomes' that might be based on the ICF-model. To address the needs of patients with multimorbidity, we propose a generic comprehensive model, embedded in primary care. Agoal-oriented approach provides the opportunity to prioritize goals that really matter to patients.},
  author       = {Rijken, Mieke and Bekkema, Nienke and Boeckxstaens, Pauline and Schellevis, Francois G and De Maeseneer, Jan and Groenewegen, Peter},
  issn         = {1369-7625},
  journal      = {HEALTH EXPECTATIONS},
  keyword      = {disease management,goal-oriented care,multi morbidity,self-management,patients' needs,chronic illness},
  language     = {eng},
  number       = {5},
  pages        = {608--621},
  title        = {Chronic disease management programmes: an adequate response to patients' needs?},
  url          = {http://dx.doi.org/10.1111/j.1369-7625.2012.00786.x},
  volume       = {17},
  year         = {2014},
}

Chicago
Rijken, Mieke, Nienke Bekkema, Pauline Boeckxstaens, Francois G Schellevis, Jan De Maeseneer, and Peter Groenewegen. 2014. “Chronic Disease Management Programmes: An Adequate Response to Patients’ Needs?” Health Expectations 17 (5): 608–621.
APA
Rijken, M., Bekkema, N., Boeckxstaens, P., Schellevis, F. G., De Maeseneer, J., & Groenewegen, P. (2014). Chronic disease management programmes: an adequate response to patients’ needs? HEALTH EXPECTATIONS, 17(5), 608–621.
Vancouver
1.
Rijken M, Bekkema N, Boeckxstaens P, Schellevis FG, De Maeseneer J, Groenewegen P. Chronic disease management programmes: an adequate response to patients’ needs? HEALTH EXPECTATIONS. 2014;17(5):608–21.
MLA
Rijken, Mieke, Nienke Bekkema, Pauline Boeckxstaens, et al. “Chronic Disease Management Programmes: An Adequate Response to Patients’ Needs?” HEALTH EXPECTATIONS 17.5 (2014): 608–621. Print.