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Managing identity in early-stage dementia: maintaining a sense of being valued

(2013) AGEING & SOCIETY. 33. p.216-242
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Abstract
Focusing on loss or maintenance of identity in persons with dementia may affect how they are approached and cared for. We performed a longitudinal study of 17 elderly persons with early-stage dementia with the aim of exploring changes in the experience of living with dementia. The major theme – a struggle to be valued – was clearly present in follow-up interviews. However, we observed a gradual shift in the concept of being valued: a shift from ‘being valued for what you do’ toward ‘being valued for who you are’. This progression represents a shift from performance-related core values of identity to those that are existentially related. These findings suggest that the self can be maintained by adjusting to loss.
Keywords
qualitative methodology, AWARENESS, SELF, lived experience, EXPERIENCE, dementia, ALZHEIMERS-DISEASE

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Citation

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MLA
Steeman, Els, et al. “Managing Identity in Early-Stage Dementia: Maintaining a Sense of Being Valued.” AGEING & SOCIETY, vol. 33, 2013, pp. 216–42, doi:10.1017/S0144686X11001115.
APA
Steeman, E., Tournoy, J., Grypdonck, M., Godderis, J., & Dierckx de Casterlé, B. (2013). Managing identity in early-stage dementia: maintaining a sense of being valued. AGEING & SOCIETY, 33, 216–242. https://doi.org/10.1017/S0144686X11001115
Chicago author-date
Steeman, Els, Jos Tournoy, Maria Grypdonck, Jan Godderis, and Bernadette Dierckx de Casterlé. 2013. “Managing Identity in Early-Stage Dementia: Maintaining a Sense of Being Valued.” AGEING & SOCIETY 33: 216–42. https://doi.org/10.1017/S0144686X11001115.
Chicago author-date (all authors)
Steeman, Els, Jos Tournoy, Maria Grypdonck, Jan Godderis, and Bernadette Dierckx de Casterlé. 2013. “Managing Identity in Early-Stage Dementia: Maintaining a Sense of Being Valued.” AGEING & SOCIETY 33: 216–242. doi:10.1017/S0144686X11001115.
Vancouver
1.
Steeman E, Tournoy J, Grypdonck M, Godderis J, Dierckx de Casterlé B. Managing identity in early-stage dementia: maintaining a sense of being valued. AGEING & SOCIETY. 2013;33:216–42.
IEEE
[1]
E. Steeman, J. Tournoy, M. Grypdonck, J. Godderis, and B. Dierckx de Casterlé, “Managing identity in early-stage dementia: maintaining a sense of being valued,” AGEING & SOCIETY, vol. 33, pp. 216–242, 2013.
@article{2974362,
  abstract     = {{Focusing on loss or maintenance of identity in persons with dementia may affect how they are approached and cared for. We performed a longitudinal study of 17 elderly persons with early-stage dementia with the aim of exploring changes in the experience of living with dementia. The major theme – a struggle to be valued – was clearly present in follow-up interviews. However, we observed a gradual shift in the concept of being valued: a shift from ‘being valued for what you do’ toward ‘being valued for who you are’. This progression represents a shift from performance-related core values of identity to those that are existentially related. These findings suggest that the self can be maintained by adjusting to loss.}},
  author       = {{Steeman, Els and Tournoy, Jos and Grypdonck, Maria and Godderis, Jan and Dierckx de Casterlé, Bernadette}},
  issn         = {{0144-686X}},
  journal      = {{AGEING & SOCIETY}},
  keywords     = {{qualitative methodology,AWARENESS,SELF,lived experience,EXPERIENCE,dementia,ALZHEIMERS-DISEASE}},
  language     = {{eng}},
  pages        = {{216--242}},
  title        = {{Managing identity in early-stage dementia: maintaining a sense of being valued}},
  url          = {{http://dx.doi.org/10.1017/S0144686X11001115}},
  volume       = {{33}},
  year         = {{2013}},
}

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