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The roller-coaster of experiences: becoming the parent of a deaf child

(2012) DISABILITY & SOCIETY. 27(7). p.983-996
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Abstract
When early testing indicates a hearing loss, parents find themselves on a roller-coaster of experiences leaving little time or space for reflection. This study is based on interviews with families in the Flemish region of Belgium, one of the earliest in the world to introduce universal neonatal screening for hearing loss. Starting from a phenomenological approach, we explore parents' accounts of their experiences in order to uncover the meanings of early parenting of a child identified with a label. Soon after birth, these parents encounter a different world in which intertwined discourses construct parenthood with a deaf child. During the process of becoming a parent, representations of deafness as impairment were omnipresent. In contrast to a medical and technological perspective that insists on the need to intervene as fast as possible, it is argued that the private and social implications of rapid intervention require explicit consideration.
Keywords
deafness, rapid medicalized intervention, PEDIATRIC COCHLEAR IMPLANTATION, DISABILITY, DISABLED BABIES, MOTHERS, IMPAIRMENT, FAMILIES, NARRATIVES, FLANDERS, early hearing screening, MODEL, parenting a deaf child, LIFE

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Citation

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Chicago
Bosteels, Sigrid, Geert Van Hove, and Michel Vandenbroeck. 2012. “The Roller-coaster of Experiences: Becoming the Parent of a Deaf Child.” Disability & Society 27 (7): 983–996.
APA
Bosteels, S., Van Hove, G., & Vandenbroeck, Mi. (2012). The roller-coaster of experiences: becoming the parent of a deaf child. DISABILITY & SOCIETY, 27(7), 983–996.
Vancouver
1.
Bosteels S, Van Hove G, Vandenbroeck Mi. The roller-coaster of experiences: becoming the parent of a deaf child. DISABILITY & SOCIETY. 2012;27(7):983–96.
MLA
Bosteels, Sigrid, Geert Van Hove, and Michel Vandenbroeck. “The Roller-coaster of Experiences: Becoming the Parent of a Deaf Child.” DISABILITY & SOCIETY 27.7 (2012): 983–996. Print.
@article{2974332,
  abstract     = {When early testing indicates a hearing loss, parents find themselves on a roller-coaster of experiences leaving little time or space for reflection. This study is based on interviews with families in the Flemish region of Belgium, one of the earliest in the world to introduce universal neonatal screening for hearing loss. Starting from a phenomenological approach, we explore parents' accounts of their experiences in order to uncover the meanings of early parenting of a child identified with a label. Soon after birth, these parents encounter a different world in which intertwined discourses construct parenthood with a deaf child. During the process of becoming a parent, representations of deafness as impairment were omnipresent. In contrast to a medical and technological perspective that insists on the need to intervene as fast as possible, it is argued that the private and social implications of rapid intervention require explicit consideration.},
  author       = {Bosteels, Sigrid and Van Hove, Geert and Vandenbroeck, MIchel},
  issn         = {0968-7599},
  journal      = {DISABILITY \& SOCIETY},
  keyword      = {deafness,rapid medicalized intervention,PEDIATRIC COCHLEAR IMPLANTATION,DISABILITY,DISABLED BABIES,MOTHERS,IMPAIRMENT,FAMILIES,NARRATIVES,FLANDERS,early hearing screening,MODEL,parenting a deaf child,LIFE},
  language     = {eng},
  number       = {7},
  pages        = {983--996},
  title        = {The roller-coaster of experiences: becoming the parent of a deaf child},
  url          = {http://dx.doi.org/10.1080/09687599.2012.705059},
  volume       = {27},
  year         = {2012},
}

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