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Quality of life in adolescents with a disability and their parents: the mediating role of social support and resilience

Femke Migerode (UGent) , Bea Maes, Ann Buysse (UGent) and Ruben Brondeel (UGent)
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Abstract
The aim of this study was to test whether the effect of the pile-up of demands associated with a disability on quality of life, was mediated by resilience, quantity and quality of social support for adolescents with a disability and their parents. One hundred and thirty two parents, 90 mothers and 42 fathers and 111 adolescents, aged between 16 and 24 years completed measures of the pile-up of demands, social support, resilience and quality of life. Structural equation modeling with the bootstrap resampling method showed that the impact of the disability of their son/daughter on the quality of life of the parents was fully mediated through the parents' resilience and the quantity of social support and that resilience, however only partly, mediates the effect of adaptive skills on the quality of life of the adolescents with a disability. Limitations of the study and clinical implications are discussed.
Keywords
DOUBLE ABCX MODEL, CAREGIVER REACTION ASSESSMENT, INTELLECTUAL DISABILITY, MENTAL-RETARDATION, FAMILY RESILIENCE, YOUNG-ADULTS, CHILDREN, MOTHERS, STRESS, IMPACT, Adolescents, Disability, Parents, Resilience, Social support, Mediators, Quality of Life

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MLA
Migerode, Femke et al. “Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience.” JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES 24.5 (2012): 487–503. Print.
APA
Migerode, F., Maes, B., Buysse, A., & Brondeel, R. (2012). Quality of life in adolescents with a disability and their parents: the mediating role of social support and resilience. JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, 24(5), 487–503.
Chicago author-date
Migerode, Femke, Bea Maes, Ann Buysse, and Ruben Brondeel. 2012. “Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience.” Journal of Developmental and Physical Disabilities 24 (5): 487–503.
Chicago author-date (all authors)
Migerode, Femke, Bea Maes, Ann Buysse, and Ruben Brondeel. 2012. “Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience.” Journal of Developmental and Physical Disabilities 24 (5): 487–503.
Vancouver
1.
Migerode F, Maes B, Buysse A, Brondeel R. Quality of life in adolescents with a disability and their parents: the mediating role of social support and resilience. JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES. 2012;24(5):487–503.
IEEE
[1]
F. Migerode, B. Maes, A. Buysse, and R. Brondeel, “Quality of life in adolescents with a disability and their parents: the mediating role of social support and resilience,” JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, vol. 24, no. 5, pp. 487–503, 2012.
@article{2958604,
  abstract     = {The aim of this study was to test whether the effect of the pile-up of demands associated with a disability on quality of life, was mediated by resilience, quantity and quality of social support for adolescents with a disability and their parents. One hundred and thirty two parents, 90 mothers and 42 fathers and 111 adolescents, aged between 16 and 24 years completed measures of the pile-up of demands, social support, resilience and quality of life. Structural equation modeling with the bootstrap resampling method showed that the impact of the disability of their son/daughter on the quality of life of the parents was fully mediated through the parents' resilience and the quantity of social support and that resilience, however only partly, mediates the effect of adaptive skills on the quality of life of the adolescents with a disability. Limitations of the study and clinical implications are discussed.},
  author       = {Migerode, Femke and Maes, Bea and Buysse, Ann and Brondeel, Ruben},
  issn         = {1056-263X},
  journal      = {JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES},
  keywords     = {DOUBLE ABCX MODEL,CAREGIVER REACTION ASSESSMENT,INTELLECTUAL DISABILITY,MENTAL-RETARDATION,FAMILY RESILIENCE,YOUNG-ADULTS,CHILDREN,MOTHERS,STRESS,IMPACT,Adolescents,Disability,Parents,Resilience,Social support,Mediators,Quality of Life},
  language     = {eng},
  number       = {5},
  pages        = {487--503},
  title        = {Quality of life in adolescents with a disability and their parents: the mediating role of social support and resilience},
  url          = {http://dx.doi.org/10.1007/s10882-012-9285-1},
  volume       = {24},
  year         = {2012},
}

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