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Family quality of life in 25 Belgian families: quantitative and qualitative exploration of social and professional support domains

Riet Steel UGent, Leen Poppe UGent, Stijn Vandevelde UGent, Geert Van Hove UGent and Claudia Claes UGent (2011) JOURNAL OF INTELLECTUAL DISABILITY RESEARCH. 55. p.1123-1135
abstract
Background This article reports on the results of a study conducted in Belgium on family quality of life situated within a larger project focusing on the development of support strategies for young and adolescent siblings of persons with intellectual disabilities. The objectives of this article are twofold: (1) to present the results of the measures contained in the nine domains of the Family Quality of Life Survey-2006 (FQOLS-2006) from the perspective of parents (quantitative analysis); and (2) to come to a more in-depth understanding of two important domains of the FQOLS-2006 by exploring and comparing the quantitative and qualitative data from open-ended interviews with parents. Method The FQOLS-2006 was completed by the main caregivers of 25 families living in one typical Belgian province. Subsequently, semi-structured interviews with one or both parents were conducted within the same families. Content analysis was carried out on the transcribed interviews using the qualitative software package MaxQDA. Results A detailed analysis of the quantitative data together with data from the content analysis of the interviews revealed important issues with regard to two family quality of life domains, support from others and support from services. In general, parents were satisfied with the professional support they received, whereas they were more critical of support from others. Conclusions The quantitative data from the FQOLS-2006 were supported and further explained by the qualitative data. These findings highlight the importance of adequate professional support, which is a flexible and capable answer to each family's individual needs. The authors warn of the dangers of 'handicapism' and plea for a family-centred support approach that takes the whole family into account. Finally, they indicate the benefits of increased practical-pedagogical support.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
parents, intellectual disability, quality of life, support, family, DELIVERY, IMPACT, INTELLECTUAL DISABILITY
journal title
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH
J. Intell. Disabil. Res.
volume
55
pages
1123 - 1135
Web of Science type
Article
Web of Science id
000297989700004
JCR category
EDUCATION, SPECIAL
JCR impact factor
1.877 (2011)
JCR rank
6/36 (2011)
JCR quartile
1 (2011)
ISSN
0964-2633
DOI
10.1111/j.1365-2788.2011.01433.x
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
2953512
handle
http://hdl.handle.net/1854/LU-2953512
date created
2012-07-04 09:19:29
date last changed
2012-07-05 14:11:00
@article{2953512,
  abstract     = {Background This article reports on the results of a study conducted in Belgium on family quality of life situated within a larger project focusing on the development of support strategies for young and adolescent siblings of persons with intellectual disabilities. The objectives of this article are twofold: (1) to present the results of the measures contained in the nine domains of the Family Quality of Life Survey-2006 (FQOLS-2006) from the perspective of parents (quantitative analysis); and (2) to come to a more in-depth understanding of two important domains of the FQOLS-2006 by exploring and comparing the quantitative and qualitative data from open-ended interviews with parents. Method The FQOLS-2006 was completed by the main caregivers of 25 families living in one typical Belgian province. Subsequently, semi-structured interviews with one or both parents were conducted within the same families. Content analysis was carried out on the transcribed interviews using the qualitative software package MaxQDA. Results A detailed analysis of the quantitative data together with data from the content analysis of the interviews revealed important issues with regard to two family quality of life domains, support from others and support from services. In general, parents were satisfied with the professional support they received, whereas they were more critical of support from others. Conclusions The quantitative data from the FQOLS-2006 were supported and further explained by the qualitative data. These findings highlight the importance of adequate professional support, which is a flexible and capable answer to each family's individual needs. The authors warn of the dangers of 'handicapism' and plea for a family-centred support approach that takes the whole family into account. Finally, they indicate the benefits of increased practical-pedagogical support.},
  author       = {Steel, Riet and Poppe, Leen and Vandevelde, Stijn and Van Hove, Geert and Claes, Claudia},
  issn         = {0964-2633},
  journal      = {JOURNAL OF INTELLECTUAL DISABILITY RESEARCH},
  keyword      = {parents,intellectual disability,quality of life,support,family,DELIVERY,IMPACT,INTELLECTUAL DISABILITY},
  language     = {eng},
  pages        = {1123--1135},
  title        = {Family quality of life in 25 Belgian families: quantitative and qualitative exploration of social and professional support domains},
  url          = {http://dx.doi.org/10.1111/j.1365-2788.2011.01433.x},
  volume       = {55},
  year         = {2011},
}

Chicago
Steel, Riet, Leen Poppe, Stijn Vandevelde, Geert Van Hove, and Claudia Claes. 2011. “Family Quality of Life in 25 Belgian Families: Quantitative and Qualitative Exploration of Social and Professional Support Domains.” Journal of Intellectual Disability Research 55: 1123–1135.
APA
Steel, R., Poppe, L., Vandevelde, S., Van Hove, G., & Claes, C. (2011). Family quality of life in 25 Belgian families: quantitative and qualitative exploration of social and professional support domains. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 55, 1123–1135.
Vancouver
1.
Steel R, Poppe L, Vandevelde S, Van Hove G, Claes C. Family quality of life in 25 Belgian families: quantitative and qualitative exploration of social and professional support domains. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH. 2011;55:1123–35.
MLA
Steel, Riet, Leen Poppe, Stijn Vandevelde, et al. “Family Quality of Life in 25 Belgian Families: Quantitative and Qualitative Exploration of Social and Professional Support Domains.” JOURNAL OF INTELLECTUAL DISABILITY RESEARCH 55 (2011): 1123–1135. Print.