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Participation: experiences from individuals with spinal cord injury

(2012)
Author
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(UGent)
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Abstract
While a bio-psycho-social rehabilitation model encourages disability to be viewed as a social construct rather than a purely personal construct of behavioral, biological and genetic factors, the goal of many rehabilitation centers is not only to focus on the medical restorative approach of individuals with a Spinal Cord Injury (SCI), but also on the long-term consequences of SCI and the individual’s level of participation. In theory building about the concept of ‘participation’, this study elucidates the different ways in which ‘participation’ can be experienced for individuals within their transition period from hospital to home. The aim of the study was not to define the concept of ‘participation’ or to give one truth about ‘participation’, but rather to contribute to the body of knowledge of this concept with personal experiences in an arena where multiple realities exist. ‘Participation’ was not experienced by the individuals with SCI as an objective way of performing activities within a societal context or as frequencies of activities performed, but rather as an internal process of negotiation that appeared to be based on balancing personal and societal values. Based on the experiences and the narratives from 12 male individuals with SCI, ‘participation’ is experienced as the involvement in a life situation, by actively performing activities and/or being part of the context. ‘Participation’ can be seen as the dyad between the individual’s social interactions and their specific activities performed.
Keywords
Participation, Autonomy, Spinal Cord Injury., Choice, Activity

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Citation

Please use this url to cite or link to this publication:

Chicago
Van de Velde, Dominique. 2012. “Participation: Experiences from Individuals with Spinal Cord Injury”. Ghent, Belgium: Ghent University. Faculty of Medicine and Health Sciences.
APA
Van de Velde, Dominique. (2012). Participation: experiences from individuals with spinal cord injury. Ghent University. Faculty of Medicine and Health Sciences, Ghent, Belgium.
Vancouver
1.
Van de Velde D. Participation: experiences from individuals with spinal cord injury. [Ghent, Belgium]: Ghent University. Faculty of Medicine and Health Sciences; 2012.
MLA
Van de Velde, Dominique. “Participation: Experiences from Individuals with Spinal Cord Injury.” 2012 : n. pag. Print.
@phdthesis{2914173,
  abstract     = {While a bio-psycho-social rehabilitation model encourages disability to be viewed as a social construct rather than a purely personal construct of behavioral, biological and genetic factors, the goal of many rehabilitation centers is not only to focus on the medical restorative approach of individuals with a Spinal Cord Injury (SCI), but also on the long-term consequences of SCI and the individual{\textquoteright}s level of participation. In theory building about the concept of {\textquoteleft}participation{\textquoteright}, this study elucidates the different ways in which {\textquoteleft}participation{\textquoteright} can be experienced for individuals within their transition period from hospital to home. 
The aim of the study was not to define the concept of {\textquoteleft}participation{\textquoteright} or to give one truth about {\textquoteleft}participation{\textquoteright}, but rather to contribute to the body of knowledge of this concept with personal experiences in an arena where multiple realities exist. {\textquoteleft}Participation{\textquoteright} was not experienced by the individuals with SCI as an objective way of performing activities within a societal context or as frequencies of activities performed, but rather as an internal process of negotiation that appeared to be based on balancing personal and societal values. 
Based on the experiences and the narratives from 12 male individuals with SCI, {\textquoteleft}participation{\textquoteright} is experienced as the involvement in a life situation, by actively performing activities and/or being part of the context. {\textquoteleft}Participation{\textquoteright} can be seen as the dyad between the individual{\textquoteright}s social interactions and their specific activities performed.},
  author       = {Van de Velde, Dominique},
  isbn         = {9789461970503},
  language     = {eng},
  pages        = {160},
  publisher    = {Ghent University. Faculty of Medicine and Health Sciences},
  school       = {Ghent University},
  title        = {Participation: experiences from individuals with spinal cord injury},
  year         = {2012},
}