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The illusion and the paradox of being autonomous, experiences from persons with spinal cord injury in their transition period from hospital to home

Dominique Van de Velde UGent, Piet Bracke UGent, Geert Van Hove UGent, Staffan Josephsson, Ignaas Devisch UGent and Guy Vanderstraeten UGent (2012) DISABILITY AND REHABILITATION. 34(6). p.491-502
abstract
Purpose: To open a discourse on the concept of autonomy as a precursor for participation in individuals with Spinal Cord Injury (SCI) by exploring the experiences about their perceived autonomy in their transition period from hospital to home. Method: Based on the 'grounded theory' approach; in-depth, semi structured interviews were conducted with 11 SCI-patients. A theoretical sampling strategy was used and the data was analysed according to the constant comparative method. Results: To capture this complexity of autonomy, the results have been structured in themes with regard to the self of the patient and his independency. The analysis showed four different typologies of how autonomy is perceived; (1) the active agent, (2) the active follower, (3) the passive follower and (4) the passive victim. Conclusion: Rehabilitation professionals can help individuals in disconnecting their internalised ideal of independency to avoid the illusion of being autonomous and can gain insight in the patients' typology and empower patients to avoid the paradox of being autonomous. If the ultimate goal of rehabilitation is participation; empowering the patient to achieve a 'sense of agency' instead of autonomy is the central goal for rehabilitation professionals. Empowerment and agency are key topics for the patient to gain mastery over his own life.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
HEALTH, PATIENT PARTICIPATION, DECISION-MAKING, REHABILITATION, IMPACT, LIFE, COMMUNITY, PEOPLE, CARE, EMPOWERMENT, agency, autonomy, empowerment, participation, SCI
journal title
DISABILITY AND REHABILITATION
Disabil. Rehabil.
volume
34
issue
6
pages
491 - 502
Web of Science type
Article
Web of Science id
000299746700006
JCR category
REHABILITATION
JCR impact factor
1.541 (2012)
JCR rank
25/63 (2012)
JCR quartile
2 (2012)
ISSN
0963-8288
DOI
10.3109/09638288.2011.608149
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
2056051
handle
http://hdl.handle.net/1854/LU-2056051
date created
2012-03-01 16:50:39
date last changed
2015-06-17 09:59:03
@article{2056051,
  abstract     = {Purpose: To open a discourse on the concept of autonomy as a precursor for participation in individuals with Spinal Cord Injury (SCI) by exploring the experiences about their perceived autonomy in their transition period from hospital to home. Method: Based on the 'grounded theory' approach; in-depth, semi structured interviews were conducted with 11 SCI-patients. A theoretical sampling strategy was used and the data was analysed according to the constant comparative method. Results: To capture this complexity of autonomy, the results have been structured in themes with regard to the self of the patient and his independency. The analysis showed four different typologies of how autonomy is perceived; (1) the active agent, (2) the active follower, (3) the passive follower and (4) the passive victim. Conclusion: Rehabilitation professionals can help individuals in disconnecting their internalised ideal of independency to avoid the illusion of being autonomous and can gain insight in the patients' typology and empower patients to avoid the paradox of being autonomous. If the ultimate goal of rehabilitation is participation; empowering the patient to achieve a 'sense of agency' instead of autonomy is the central goal for rehabilitation professionals. Empowerment and agency are key topics for the patient to gain mastery over his own life.},
  author       = {Van de Velde, Dominique and Bracke, Piet and Van Hove, Geert and Josephsson, Staffan and Devisch, Ignaas and Vanderstraeten, Guy},
  issn         = {0963-8288},
  journal      = {DISABILITY AND REHABILITATION},
  keyword      = {HEALTH,PATIENT PARTICIPATION,DECISION-MAKING,REHABILITATION,IMPACT,LIFE,COMMUNITY,PEOPLE,CARE,EMPOWERMENT,agency,autonomy,empowerment,participation,SCI},
  language     = {eng},
  number       = {6},
  pages        = {491--502},
  title        = {The illusion and the paradox of being autonomous, experiences from persons with spinal cord injury in their transition period from hospital to home},
  url          = {http://dx.doi.org/10.3109/09638288.2011.608149},
  volume       = {34},
  year         = {2012},
}

Chicago
Van de Velde, Dominique, Piet Bracke, Geert Van Hove, Staffan Josephsson, Ignaas Devisch, and Guy Vanderstraeten. 2012. “The Illusion and the Paradox of Being Autonomous, Experiences from Persons with Spinal Cord Injury in Their Transition Period from Hospital to Home.” Disability and Rehabilitation 34 (6): 491–502.
APA
Van de Velde, Dominique, Bracke, P., Van Hove, G., Josephsson, S., Devisch, I., & Vanderstraeten, G. (2012). The illusion and the paradox of being autonomous, experiences from persons with spinal cord injury in their transition period from hospital to home. DISABILITY AND REHABILITATION, 34(6), 491–502.
Vancouver
1.
Van de Velde D, Bracke P, Van Hove G, Josephsson S, Devisch I, Vanderstraeten G. The illusion and the paradox of being autonomous, experiences from persons with spinal cord injury in their transition period from hospital to home. DISABILITY AND REHABILITATION. 2012;34(6):491–502.
MLA
Van de Velde, Dominique, Piet Bracke, Geert Van Hove, et al. “The Illusion and the Paradox of Being Autonomous, Experiences from Persons with Spinal Cord Injury in Their Transition Period from Hospital to Home.” DISABILITY AND REHABILITATION 34.6 (2012): 491–502. Print.