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Exploring limits for data registration in the context of PROCARE, a quality improvement project on rectal cancer

Tamara Vandendael, Freddy Penninckx, Claude Bertrand, Wim Ceelen UGent, Etienne Danse, Pieter Demetter, Karin Haustermans, Stéphanie Laurent UGent, Gaetan Molle and Jean Vandestadt, et al. (2012) ACTA CHIRURGICA BELGICA. 112(1). p.15-23
abstract
Background : A high burden of registration in the context of quality improvement projects may result in registration fatigue. Methods : Time required for data collection and registration was measured. Quality of care indicators (QCI) were scored and factors for adjusted benchmarking were identified. The PROCARE data set was compared with 5 other European data sets. Results : Time required for data collection varied per domain while time for registration was more uniform. On average, per item 33 seconds were needed for collection and registration. The number of data to be registered per patient was 48276, depending on the stage of the disease, resulting in a minimum of 25 minutes and a maximum of 2 hours 4 minutes per patient, follow-up not included. Focusing on 43 clinically relevant QCIs would result in a 50% reduction, using aggregate scores for performance audit in a 71% reduction. The PROCARE data set was larger than comparable European data sets. Linkage of the PROCARE database with administrative databases provided confident data on the patients' survival status, but did not appear to be a practical option for other QCIs. Conclusions : Limiting the aim to performance audit could significantly reduce the burden of registration. In the context of a quality improvement project, the PROCARE Steering Group concluded that detailed clinical data from all centres are still required, which can be reconsidered in the future. Maintenance of a specific database remains of crucial value. Data collection and registration cannot be based on benevolence but should be compensated for.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
RISK ADJUSTMENT, CARE
journal title
ACTA CHIRURGICA BELGICA
Acta Chir. Belg.
volume
112
issue
1
pages
15 - 23
Web of Science type
Article
Web of Science id
000300603000005
JCR category
SURGERY
JCR impact factor
0.359 (2012)
JCR rank
175/195 (2012)
JCR quartile
4 (2012)
ISSN
0001-5458
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
2018074
handle
http://hdl.handle.net/1854/LU-2018074
date created
2012-02-03 11:16:03
date last changed
2015-06-17 09:56:19
@article{2018074,
  abstract     = {Background : A high burden of registration in the context of quality improvement projects may result in registration fatigue. 
Methods : Time required for data collection and registration was measured. Quality of care indicators (QCI) were scored and factors for adjusted benchmarking were identified. The PROCARE data set was compared with 5 other European data sets. 
Results : Time required for data collection varied per domain while time for registration was more uniform. On average, per item 33 seconds were needed for collection and registration. The number of data to be registered per patient was 48276, depending on the stage of the disease, resulting in a minimum of 25 minutes and a maximum of 2 hours 4 minutes per patient, follow-up not included. Focusing on 43 clinically relevant QCIs would result in a 50\% reduction, using aggregate scores for performance audit in a 71\% reduction. The PROCARE data set was larger than comparable European data sets. Linkage of the PROCARE database with administrative databases provided confident data on the patients' survival status, but did not appear to be a practical option for other QCIs. 
Conclusions : Limiting the aim to performance audit could significantly reduce the burden of registration. In the context of a quality improvement project, the PROCARE Steering Group concluded that detailed clinical data from all centres are still required, which can be reconsidered in the future. Maintenance of a specific database remains of crucial value. Data collection and registration cannot be based on benevolence but should be compensated for.},
  author       = {Vandendael, Tamara and Penninckx, Freddy and Bertrand, Claude and Ceelen, Wim and Danse, Etienne and Demetter, Pieter and Haustermans, Karin and Laurent, St{\'e}phanie and Molle, Gaetan and Vandestadt, Jean and Vanlaethem, Jean-Luc and Vindevoghel, Koen},
  issn         = {0001-5458},
  journal      = {ACTA CHIRURGICA BELGICA},
  keyword      = {RISK ADJUSTMENT,CARE},
  language     = {eng},
  number       = {1},
  pages        = {15--23},
  title        = {Exploring limits for data registration in the context of PROCARE, a quality improvement project on rectal cancer},
  volume       = {112},
  year         = {2012},
}

Chicago
Vandendael, Tamara, Freddy Penninckx, Claude Bertrand, Wim Ceelen, Etienne Danse, Pieter Demetter, Karin Haustermans, et al. 2012. “Exploring Limits for Data Registration in the Context of PROCARE, a Quality Improvement Project on Rectal Cancer.” Acta Chirurgica Belgica 112 (1): 15–23.
APA
Vandendael, T., Penninckx, F., Bertrand, C., Ceelen, W., Danse, E., Demetter, P., Haustermans, K., et al. (2012). Exploring limits for data registration in the context of PROCARE, a quality improvement project on rectal cancer. ACTA CHIRURGICA BELGICA, 112(1), 15–23.
Vancouver
1.
Vandendael T, Penninckx F, Bertrand C, Ceelen W, Danse E, Demetter P, et al. Exploring limits for data registration in the context of PROCARE, a quality improvement project on rectal cancer. ACTA CHIRURGICA BELGICA. 2012;112(1):15–23.
MLA
Vandendael, Tamara, Freddy Penninckx, Claude Bertrand, et al. “Exploring Limits for Data Registration in the Context of PROCARE, a Quality Improvement Project on Rectal Cancer.” ACTA CHIRURGICA BELGICA 112.1 (2012): 15–23. Print.