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The quality of life of siblings of children with autism spectrum disorder

Tinneke Moyson UGent and Herbert Roeyers UGent (2011) EXCEPTIONAL CHILDREN. 78(1). p.41-55
abstract
This study investigated how siblings of children with autism spectrum disorder (ASD) describe and define their quality of Using a qualitative research design, the authors collected data through a 4-stage process which included in-depth interviews of 17 children ages 6 to 14 and focus groups. All of the children with ASD were male and between the ages of 5 and 16 with mild to moderate impairments; all of the participating families lived in a Dutch-speaking region of Belgium. Analyzing data according to the principles of grounded theory resulted in the identification of 9 domains of sibling quality of lift (SibQol). The apparent invisibility of ASD emerged as an important theme. Results indicate that siblings of children with ASD can define their quality of lift, that unique characteristics of ASD give the siblings' experience a highly personal interpretation, and that the SibQol concept can be used to support siblings of children with ASD.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
PARENTS, PREDICTORS, EXPERIENCES, DISABILITY, BEHAVIORAL-ADJUSTMENT, PERCEPTIONS, INTERVENTION
journal title
EXCEPTIONAL CHILDREN
Except. Child.
volume
78
issue
1
pages
41 - 55
Web of Science type
Article
Web of Science id
000294194200003
JCR category
REHABILITATION
JCR impact factor
2.292 (2011)
JCR rank
6/64 (2011)
JCR quartile
1 (2011)
ISSN
0014-4029
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
1901208
handle
http://hdl.handle.net/1854/LU-1901208
date created
2011-09-14 15:05:00
date last changed
2017-07-25 08:10:36
@article{1901208,
  abstract     = {This study investigated how siblings of children with autism spectrum disorder (ASD) describe and define their quality of Using a qualitative research design, the authors collected data through a 4-stage process which included in-depth interviews of 17 children ages 6 to 14 and focus groups. All of the children with ASD were male and between the ages of 5 and 16 with mild to moderate impairments; all of the participating families lived in a Dutch-speaking region of Belgium. Analyzing data according to the principles of grounded theory resulted in the identification of 9 domains of sibling quality of lift (SibQol). The apparent invisibility of ASD emerged as an important theme. Results indicate that siblings of children with ASD can define their quality of lift, that unique characteristics of ASD give the siblings' experience a highly personal interpretation, and that the SibQol concept can be used to support siblings of children with ASD.},
  author       = {Moyson, Tinneke and Roeyers, Herbert},
  issn         = {0014-4029},
  journal      = {EXCEPTIONAL CHILDREN},
  keyword      = {PARENTS,PREDICTORS,EXPERIENCES,DISABILITY,BEHAVIORAL-ADJUSTMENT,PERCEPTIONS,INTERVENTION},
  language     = {eng},
  number       = {1},
  pages        = {41--55},
  title        = {The quality of life of siblings of children with autism spectrum disorder},
  volume       = {78},
  year         = {2011},
}

Chicago
Moyson, Tinneke, and Herbert Roeyers. 2011. “The Quality of Life of Siblings of Children with Autism Spectrum Disorder.” Exceptional Children 78 (1): 41–55.
APA
Moyson, T., & Roeyers, H. (2011). The quality of life of siblings of children with autism spectrum disorder. EXCEPTIONAL CHILDREN, 78(1), 41–55.
Vancouver
1.
Moyson T, Roeyers H. The quality of life of siblings of children with autism spectrum disorder. EXCEPTIONAL CHILDREN. 2011;78(1):41–55.
MLA
Moyson, Tinneke, and Herbert Roeyers. “The Quality of Life of Siblings of Children with Autism Spectrum Disorder.” EXCEPTIONAL CHILDREN 78.1 (2011): 41–55. Print.