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Preferences of patients with advanced lung cancer regarding the involvement of family and others in medical decision-making

Koen Pardon UGent, Reginald Deschepper UGent, Robert Vander Stichele UGent, Jan L Bernheim, Freddy Mortier UGent, Nathalie Bossuyt, Denis Schallier, Paul Germonpré, Daniella Galdermans and Willem Van Kerckhoven, et al. (2010) JOURNAL OF PALLIATIVE MEDICINE. 13(10). p.1199-1203
abstract
Objective: To explore the preferences of competent patients with advanced lung cancer regarding involvement of family and/or others in their medical decision-making, and their future preferences in case of loss of competence. Methods: Over 1 year, physicians in 13 hospitals in Flanders, Belgium, recruited patients with initial non-small-cell lung cancer, stage IIIb or IV. The patients were interviewed with a structured questionnaire every 2 months until the fourth interview and every 4 months until the sixth interview. Results: At inclusion, 128 patients were interviewed at least once; 13 were interviewed 6 consecutive times. Sixty-nine percent of patients wanted family members to be involved in medical decision-making and this percentage did not change significantly over time. One third of these patients did not achieve this preference. Ninety-four percent of patients wanted family involvement if they lost competence, 23% of these preferring primary physician control over decision-making, 41% shared physician and family control, and 36% primary family control. This degree of preferred family involvement expressed when competent did not change significantly over time at population level, but did at individual level; almost half the patients changed their minds either way at some point during the observation period. Conclusions: The majority of patients with lung cancer wanted family involvement in decision-making, and almost all did so in case of future loss of competence. However, as half of the patients changed their minds over time about the degree of family involvement they wanted if they lost competence, physicians should regularly rediscuss a patient's preferences.
Please use this url to cite or link to this publication:
author
organization
year
type
journalArticle (original)
publication status
published
subject
keyword
LIFE, END, CARE
journal title
JOURNAL OF PALLIATIVE MEDICINE
J. Palliat. Med.
volume
13
issue
10
pages
1199 - 1203
Web of Science type
Article
Web of Science id
000282953900007
JCR category
HEALTH CARE SCIENCES & SERVICES
JCR impact factor
2.245 (2010)
JCR rank
19/71 (2010)
JCR quartile
2 (2010)
ISSN
1096-6218
DOI
10.1089/jpm.2010.0100
language
English
UGent publication?
yes
classification
A1
copyright statement
I have transferred the copyright for this publication to the publisher
id
1338856
handle
http://hdl.handle.net/1854/LU-1338856
date created
2011-06-23 16:15:42
date last changed
2015-03-03 10:26:29
@article{1338856,
  abstract     = {Objective: To explore the preferences of competent patients with advanced lung cancer regarding involvement of family and/or others in their medical decision-making, and their future preferences in case of loss of competence. Methods: Over 1 year, physicians in 13 hospitals in Flanders, Belgium, recruited patients with initial non-small-cell lung cancer, stage IIIb or IV. The patients were interviewed with a structured questionnaire every 2 months until the fourth interview and every 4 months until the sixth interview. Results: At inclusion, 128 patients were interviewed at least once; 13 were interviewed 6 consecutive times. Sixty-nine percent of patients wanted family members to be involved in medical decision-making and this percentage did not change significantly over time. One third of these patients did not achieve this preference. Ninety-four percent of patients wanted family involvement if they lost competence, 23\% of these preferring primary physician control over decision-making, 41\% shared physician and family control, and 36\% primary family control. This degree of preferred family involvement expressed when competent did not change significantly over time at population level, but did at individual level; almost half the patients changed their minds either way at some point during the observation period. Conclusions: The majority of patients with lung cancer wanted family involvement in decision-making, and almost all did so in case of future loss of competence. However, as half of the patients changed their minds over time about the degree of family involvement they wanted if they lost competence, physicians should regularly rediscuss a patient's preferences.},
  author       = {Pardon, Koen and Deschepper, Reginald and Vander Stichele, Robert and Bernheim, Jan L and Mortier, Freddy and Bossuyt, Nathalie and Schallier, Denis and Germonpr{\'e}, Paul and Galdermans, Daniella and Van Kerckhoven, Willem and Deliens, Luc},
  issn         = {1096-6218},
  journal      = {JOURNAL OF PALLIATIVE MEDICINE},
  keyword      = {LIFE,END,CARE},
  language     = {eng},
  number       = {10},
  pages        = {1199--1203},
  title        = {Preferences of patients with advanced lung cancer regarding the involvement of family and others in medical decision-making},
  url          = {http://dx.doi.org/10.1089/jpm.2010.0100},
  volume       = {13},
  year         = {2010},
}

Chicago
Pardon, Koen, Reginald Deschepper, Robert Vander Stichele, Jan L Bernheim, Freddy Mortier, Nathalie Bossuyt, Denis Schallier, et al. 2010. “Preferences of Patients with Advanced Lung Cancer Regarding the Involvement of Family and Others in Medical Decision-making.” Journal of Palliative Medicine 13 (10): 1199–1203.
APA
Pardon, Koen, Deschepper, R., Vander Stichele, R., Bernheim, J. L., Mortier, F., Bossuyt, N., Schallier, D., et al. (2010). Preferences of patients with advanced lung cancer regarding the involvement of family and others in medical decision-making. JOURNAL OF PALLIATIVE MEDICINE, 13(10), 1199–1203.
Vancouver
1.
Pardon K, Deschepper R, Vander Stichele R, Bernheim JL, Mortier F, Bossuyt N, et al. Preferences of patients with advanced lung cancer regarding the involvement of family and others in medical decision-making. JOURNAL OF PALLIATIVE MEDICINE. 2010;13(10):1199–203.
MLA
Pardon, Koen, Reginald Deschepper, Robert Vander Stichele, et al. “Preferences of Patients with Advanced Lung Cancer Regarding the Involvement of Family and Others in Medical Decision-making.” JOURNAL OF PALLIATIVE MEDICINE 13.10 (2010): 1199–1203. Print.