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Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers-Danlos syndrome hypermobility type

Lies Rombaut (UGent) , Fransiska Malfait (UGent) , Ann Cools (UGent) , Anne De Paepe (UGent) and Patrick Calders (UGent)
(2010) DISABILITY AND REHABILITATION. 32(16). p.1339-1345
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Organization
Abstract
PURPOSE: To investigate the musculoskeletal complaints, physical activity (PA) and health-related quality of life (HRQoL) in patients with the Ehlers-Danlos syndrome hypermobility type (EDS-HT). METHODS: Thirty-two female EDS-HT patients as defined by the Villefranche criteria and 32 gender- and age-matched healthy control subjects participated in the study. Data about musculoskeletal complaints were collected from a specific form developed for the study. Daily PA and HRQoL were evaluated by the Baecke questionnaire and the RAND 36-Item Health Survey (distributed by RAND), respectively. RESULTS: A significant presence of joint pain, joint dislocations, muscle cramps, tendinitis, fatigue and headache were revealed in the EDS-HT patient group. Joint pain was reported as the most frequent and most severe symptom. The habitual PA level was diminished in the patient group. Specifically, EDS-HT subjects had significantly lower sport participation, but a comparable leisure time excluding sports compared to the healthy control subjects. All eight HRQoL dimensions of the RAND-36 and both physical and emotional summary scores were significantly impaired in EDS-HT. CONCLUSIONS: EDS-HT is characterised by various severe musculoskeletal complaints and has a detrimental effect on the habitual level of PA and HRQoL, in both physical and psychosocial dimension. An appropriate treatment and management in healthcare is needed.
Keywords
HERITABLE DISORDERS, CONNECTIVE-TISSUE, RHEUMATOID-ARTHRITIS, PAIN, FATIGUE, Ehlers–Danlos syndrome, INDIVIDUALS, NOSOLOGY, FIBROMYALGIA-SYNDROME, musculoskeletal, quality of life, SYNDROME EDS, SF-36

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Citation

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Chicago
Rombaut, Lies, Fransiska Malfait, Ann Cools, Anne De Paepe, and Patrick Calders. 2010. “Musculoskeletal Complaints, Physical Activity and Health-related Quality of Life Among Patients with the Ehlers-Danlos Syndrome Hypermobility Type.” Disability and Rehabilitation 32 (16): 1339–1345.
APA
Rombaut, L., Malfait, F., Cools, A., De Paepe, A., & Calders, P. (2010). Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers-Danlos syndrome hypermobility type. DISABILITY AND REHABILITATION, 32(16), 1339–1345.
Vancouver
1.
Rombaut L, Malfait F, Cools A, De Paepe A, Calders P. Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers-Danlos syndrome hypermobility type. DISABILITY AND REHABILITATION. 2010;32(16):1339–45.
MLA
Rombaut, Lies, Fransiska Malfait, Ann Cools, et al. “Musculoskeletal Complaints, Physical Activity and Health-related Quality of Life Among Patients with the Ehlers-Danlos Syndrome Hypermobility Type.” DISABILITY AND REHABILITATION 32.16 (2010): 1339–1345. Print.
@article{1095191,
  abstract     = {PURPOSE: To investigate the musculoskeletal complaints, physical activity (PA) and health-related quality of life (HRQoL) in patients with the Ehlers-Danlos syndrome hypermobility type (EDS-HT).
METHODS: Thirty-two female EDS-HT patients as defined by the Villefranche criteria and 32 gender- and age-matched healthy control subjects participated in the study. Data about musculoskeletal complaints were collected from a specific form developed for the study. Daily PA and HRQoL were evaluated by the Baecke questionnaire and the RAND 36-Item Health Survey (distributed by RAND), respectively.
RESULTS: A significant presence of joint pain, joint dislocations, muscle cramps, tendinitis, fatigue and headache were revealed in the EDS-HT patient group. Joint pain was reported as the most frequent and most severe symptom. The habitual PA level was diminished in the patient group. Specifically, EDS-HT subjects had significantly lower sport participation, but a comparable leisure time excluding sports compared to the healthy control subjects. All eight HRQoL dimensions of the RAND-36 and both physical and emotional summary scores were significantly impaired in EDS-HT.
CONCLUSIONS: EDS-HT is characterised by various severe musculoskeletal complaints and has a detrimental effect on the habitual level of PA and HRQoL, in both physical and psychosocial dimension. An appropriate treatment and management in healthcare is needed.},
  author       = {Rombaut, Lies and Malfait, Fransiska and Cools, Ann and De Paepe, Anne and Calders, Patrick},
  issn         = {0963-8288},
  journal      = {DISABILITY AND REHABILITATION},
  keyword      = {HERITABLE DISORDERS,CONNECTIVE-TISSUE,RHEUMATOID-ARTHRITIS,PAIN,FATIGUE,Ehlers--Danlos syndrome,INDIVIDUALS,NOSOLOGY,FIBROMYALGIA-SYNDROME,musculoskeletal,quality of life,SYNDROME EDS,SF-36},
  language     = {eng},
  number       = {16},
  pages        = {1339--1345},
  title        = {Musculoskeletal complaints, physical activity and health-related quality of life among patients with the Ehlers-Danlos syndrome hypermobility type},
  url          = {http://dx.doi.org/10.3109/09638280903514739},
  volume       = {32},
  year         = {2010},
}

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