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Integrating patient-centred and tumour-centred cancer care : the EU-MyPath implementation project offers an innovative digital solution with care pathways

Anne-Lore Scherrens (UGent) , An Jacobs, Kim Beernaert (UGent) , Koen Pardon (UGent) , Eveline Raemdonck (UGent) , Marie Fallon, Kathrin Cresswell, Nusa Faric, Robin Williams, Tonje Lundeby, et al.
(2024) PALLIATIVE CARE & SOCIAL PRACTICE. 18.
Author
Organization
Abstract
Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organisational contexts of cancer centres across Europe through the application of implementation science strategies. This paper describes the current state of applying PCC in routine cancer care and presents a forward-looking perspective on how the MyPath project can successfully adopt and implement digital PROMs across countries. A literature search was conducted to provide the state-of-the art.
Keywords
implementation science, medical oncology, patient care planning, patient-centred care, patient-reported outcome measures, psycho-oncology, quality of life, QUALITY-OF-LIFE, EARLY PALLIATIVE CARE, REPORTED OUTCOMES, NEEDS, REHABILITATION, SURVIVORSHIP, BARRIERS, ONCOLOGY, DELIVERY, PEOPLE, EoLC

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MLA
Scherrens, Anne-Lore, et al. “Integrating Patient-Centred and Tumour-Centred Cancer Care : The EU-MyPath Implementation Project Offers an Innovative Digital Solution with Care Pathways.” PALLIATIVE CARE & SOCIAL PRACTICE, vol. 18, 2024, doi:10.1177/26323524241296143.
APA
Scherrens, A.-L., Jacobs, A., Beernaert, K., Pardon, K., Raemdonck, E., Fallon, M., … MyPath Consortium, [missing]. (2024). Integrating patient-centred and tumour-centred cancer care : the EU-MyPath implementation project offers an innovative digital solution with care pathways. PALLIATIVE CARE & SOCIAL PRACTICE, 18. https://doi.org/10.1177/26323524241296143
Chicago author-date
Scherrens, Anne-Lore, An Jacobs, Kim Beernaert, Koen Pardon, Eveline Raemdonck, Marie Fallon, Kathrin Cresswell, et al. 2024. “Integrating Patient-Centred and Tumour-Centred Cancer Care : The EU-MyPath Implementation Project Offers an Innovative Digital Solution with Care Pathways.” PALLIATIVE CARE & SOCIAL PRACTICE 18. https://doi.org/10.1177/26323524241296143.
Chicago author-date (all authors)
Scherrens, Anne-Lore, An Jacobs, Kim Beernaert, Koen Pardon, Eveline Raemdonck, Marie Fallon, Kathrin Cresswell, Nusa Faric, Robin Williams, Tonje Lundeby, Marianne J. Hjermstad, Luc Deliens, Stein Kaasa, and [missing] MyPath Consortium. 2024. “Integrating Patient-Centred and Tumour-Centred Cancer Care : The EU-MyPath Implementation Project Offers an Innovative Digital Solution with Care Pathways.” PALLIATIVE CARE & SOCIAL PRACTICE 18. doi:10.1177/26323524241296143.
Vancouver
1.
Scherrens A-L, Jacobs A, Beernaert K, Pardon K, Raemdonck E, Fallon M, et al. Integrating patient-centred and tumour-centred cancer care : the EU-MyPath implementation project offers an innovative digital solution with care pathways. PALLIATIVE CARE & SOCIAL PRACTICE. 2024;18.
IEEE
[1]
A.-L. Scherrens et al., “Integrating patient-centred and tumour-centred cancer care : the EU-MyPath implementation project offers an innovative digital solution with care pathways,” PALLIATIVE CARE & SOCIAL PRACTICE, vol. 18, 2024.
@article{01JHT31SWG89QV9E250MC2ATP9,
  abstract     = {{Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs).

Despite established benefits, current cancer care focuses on tumour-centred care approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organisational contexts of cancer centres across Europe through the application of implementation science strategies. This paper describes the current state of applying PCC in routine cancer care and presents a forward-looking perspective on how the MyPath project can successfully adopt and implement digital PROMs across countries. A literature search was conducted to provide the state-of-the art.}},
  articleno    = {{26323524241296143}},
  author       = {{Scherrens, Anne-Lore and Jacobs, An and Beernaert, Kim and Pardon, Koen and Raemdonck, Eveline and Fallon, Marie and Cresswell, Kathrin and Faric, Nusa and Williams, Robin and Lundeby, Tonje and Hjermstad, Marianne J. and Deliens, Luc and Kaasa, Stein and MyPath Consortium, [missing]}},
  issn         = {{2632-3524}},
  journal      = {{PALLIATIVE CARE & SOCIAL PRACTICE}},
  keywords     = {{implementation science,medical oncology,patient care planning,patient-centred care,patient-reported outcome measures,psycho-oncology,quality of life,QUALITY-OF-LIFE,EARLY PALLIATIVE CARE,REPORTED OUTCOMES,NEEDS,REHABILITATION,SURVIVORSHIP,BARRIERS,ONCOLOGY,DELIVERY,PEOPLE,EoLC}},
  language     = {{eng}},
  pages        = {{11}},
  title        = {{Integrating patient-centred and tumour-centred cancer care : the EU-MyPath implementation project offers an innovative digital solution with care pathways}},
  url          = {{http://doi.org/10.1177/26323524241296143}},
  volume       = {{18}},
  year         = {{2024}},
}
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