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Standardised reporting of burden of disease studies : the STROBOD statement

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Abstract
Background The burden of disease (BOD) approach, originating with the Global Burden of Disease (GBD) study in the 1990s, has become a cornerstone for population health monitoring. Despite the widespread use of the Disability-Adjusted Life Year (DALY) metric, variations in methodological approaches and reporting inconsistencies hinder comparability across studies. To tackle this issue, we set out to develop guidelines for reporting DALY calculation studies to improve the transparency and comparability of BOD estimates. Methods and Findings The development of the STROBOD statement began within the European Burden of Disease Network, evolving from initial concepts discussed in workshops and training sessions focused on critical analysis of BOD studies. In 2021, a working group was formed to refine the preliminary version into the final Standardised Reporting of Burden of Disease studies (STROBOD) statement, consisting of 28 items structured across six main sections. These sections cover the title, abstract, introduction, methods, results, discussion, and open science, aiming to ensure transparency and standardization in reporting BOD studies. Notably, the methods section of the STROBOD checklist encompasses aspects such as study setting, data inputs and adjustments, DALY calculation methods, uncertainty analyses, and recommendations for reproducibility and transparency. A pilot phase was conducted to test the efficacy of the STROBOD statement, highlighting the importance of providing clear explanations and examples for each reporting item. Conclusions The inaugural STROBOD statement offers a crucial framework for standardizing reporting in BOD research, with plans for ongoing evaluation and potential revisions based on user feedback. While the current version focuses on general BOD methodology, future iterations may include specialized checklists for distinct applications such as injury or risk factor estimation, reflecting the dynamic nature of this field.
Keywords
Burden of disease, Disability-adjusted life years, European burden of disease network, Checklist, Reporting guidelines

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MLA
Devleesschauwer, Brecht, et al. “Standardised Reporting of Burden of Disease Studies : The STROBOD Statement.” POPULATION HEALTH METRICS, vol. 22, no. 1, 2024, doi:10.1186/s12963-024-00347-9.
APA
Devleesschauwer, B., Charalampous, P., Gorasso, V., Assunção, R., Hilderink, H., Idavain, J., … Haagsma, J. A. (2024). Standardised reporting of burden of disease studies : the STROBOD statement. POPULATION HEALTH METRICS, 22(1). https://doi.org/10.1186/s12963-024-00347-9
Chicago author-date
Devleesschauwer, Brecht, Periklis Charalampous, Vanessa Gorasso, Ricardo Assunção, Henk Hilderink, Jane Idavain, Tina Lesnik, et al. 2024. “Standardised Reporting of Burden of Disease Studies : The STROBOD Statement.” POPULATION HEALTH METRICS 22 (1). https://doi.org/10.1186/s12963-024-00347-9.
Chicago author-date (all authors)
Devleesschauwer, Brecht, Periklis Charalampous, Vanessa Gorasso, Ricardo Assunção, Henk Hilderink, Jane Idavain, Tina Lesnik, Milena Santric-Milicevic, Elena Pallari, Sara M. Pires, Dietrich Plass, Grant M. A. Wyper, Elena Von der Lippe, and Juanita A. Haagsma. 2024. “Standardised Reporting of Burden of Disease Studies : The STROBOD Statement.” POPULATION HEALTH METRICS 22 (1). doi:10.1186/s12963-024-00347-9.
Vancouver
1.
Devleesschauwer B, Charalampous P, Gorasso V, Assunção R, Hilderink H, Idavain J, et al. Standardised reporting of burden of disease studies : the STROBOD statement. POPULATION HEALTH METRICS. 2024;22(1).
IEEE
[1]
B. Devleesschauwer et al., “Standardised reporting of burden of disease studies : the STROBOD statement,” POPULATION HEALTH METRICS, vol. 22, no. 1, 2024.
@article{01JC95A3D1NDE5QDDJDR01WTSW,
  abstract     = {{Background The burden of disease (BOD) approach, originating with the Global Burden of Disease (GBD) study in the 1990s, has become a cornerstone for population health monitoring. Despite the widespread use of the Disability-Adjusted Life Year (DALY) metric, variations in methodological approaches and reporting inconsistencies hinder comparability across studies. To tackle this issue, we set out to develop guidelines for reporting DALY calculation studies to improve the transparency and comparability of BOD estimates. Methods and Findings The development of the STROBOD statement began within the European Burden of Disease Network, evolving from initial concepts discussed in workshops and training sessions focused on critical analysis of BOD studies. In 2021, a working group was formed to refine the preliminary version into the final Standardised Reporting of Burden of Disease studies (STROBOD) statement, consisting of 28 items structured across six main sections. These sections cover the title, abstract, introduction, methods, results, discussion, and open science, aiming to ensure transparency and standardization in reporting BOD studies. Notably, the methods section of the STROBOD checklist encompasses aspects such as study setting, data inputs and adjustments, DALY calculation methods, uncertainty analyses, and recommendations for reproducibility and transparency. A pilot phase was conducted to test the efficacy of the STROBOD statement, highlighting the importance of providing clear explanations and examples for each reporting item. Conclusions The inaugural STROBOD statement offers a crucial framework for standardizing reporting in BOD research, with plans for ongoing evaluation and potential revisions based on user feedback. While the current version focuses on general BOD methodology, future iterations may include specialized checklists for distinct applications such as injury or risk factor estimation, reflecting the dynamic nature of this field.}},
  articleno    = {{28}},
  author       = {{Devleesschauwer, Brecht and Charalampous, Periklis and Gorasso, Vanessa and Assunção, Ricardo and Hilderink, Henk and Idavain, Jane and Lesnik, Tina and Santric-Milicevic, Milena and Pallari, Elena and Pires, Sara M. and Plass, Dietrich and Wyper, Grant M. A. and Von der Lippe, Elena and Haagsma, Juanita A.}},
  issn         = {{1478-7954}},
  journal      = {{POPULATION HEALTH METRICS}},
  keywords     = {{Burden of disease,Disability-adjusted life years,European burden of disease network,Checklist,Reporting guidelines}},
  language     = {{eng}},
  number       = {{1}},
  pages        = {{7}},
  title        = {{Standardised reporting of burden of disease studies : the STROBOD statement}},
  url          = {{http://doi.org/10.1186/s12963-024-00347-9}},
  volume       = {{22}},
  year         = {{2024}},
}

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