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Experiences of patients with unilateral vocal fold paralysis : a mixed-methods study of the insider's perspective

Imke Kissel (UGent) , Iris Meerschman (UGent) , Peter Tomassen (UGent) , Evelien D'haeseleer (UGent) and Kristiane Van Lierde (UGent)
(2026) JOURNAL OF VOICE. 40(4). p.1246.e5-1246.e20
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Abstract
Objective. Unilateral vocal fold paralysis (UVFP) is often characterized by severe dysphonia and has a significant impact on a patient's communication in daily and vocational situations. Having a better understanding of how UVFP influences quality of life and patient experiences can help improve patient-centered care in this population. Therefore, the purpose of this study was to explore the lived experiences of patients with UVFP. Methods. Twenty-five adults with UVFP (age range: 39-84 years) participated in the study. Quantitative data were collected from 22 participants, using the Voice Handicap Index (VHI), Dysphonia Severity Index (DSI), and Acoustic Voice Quality Index (AVQI). Qualitative data were collected from 25 individual semistructured interviews, which were recorded, transcribed, and analyzed with the software program NVivo. The interviews were coded using an inductive thematic approach. Results. Quantitative results showed a mean DSI of-1.6, mean AVQI of 3.80, and mean VHI of 45.8 in the participant group. A statistically significant, moderate (positive) correlation was found between VHI and time after onset (in years). From the qualitative analysis of the interviews, four main themes were identified: emo-tional impact, psychosocial impact, physical complaints, and coping strategies. Voice problems caused by UVFP generally had a negative impact on patients' emotional and psychological well-being, with considerable effects on participation, self-identity, and professional activity. Participants demonstrated a combination of problem-focused and emotion-focused coping strategies to accommodate to these issues. Half of the participant group also showed avoidance as a coping style. VHI scores were significantly higher in participants who re-ported experiencing current emotional and participation problems due to UVFP, and who had not yet accepted their new voice. Conclusion. The themes from this study emphasize the importance of focused anamnesis and emotive counseling in practice, with specific attention to the psychosocial and emotional impact of UVFP.
Keywords
Coping, Dysphonia, Experiences, Mixed-method, Quality of life, Vocal fold paralysis, QUALITY-OF-LIFE, VOICE DISORDERS, INDEX, DYSPHONIA, ADULTS, COMMUNICATION, IDENTITY, THERAPY, SPEECH

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MLA
Kissel, Imke, et al. “Experiences of Patients with Unilateral Vocal Fold Paralysis : A Mixed-Methods Study of the Insider’s Perspective.” JOURNAL OF VOICE, vol. 40, no. 4, 2026, p. 1246.e5-1246.e20, doi:10.1016/j.jvoice.2024.03.025.
APA
Kissel, I., Meerschman, I., Tomassen, P., D’haeseleer, E., & Van Lierde, K. (2026). Experiences of patients with unilateral vocal fold paralysis : a mixed-methods study of the insider’s perspective. JOURNAL OF VOICE, 40(4), 1246.e5-1246.e20. https://doi.org/10.1016/j.jvoice.2024.03.025
Chicago author-date
Kissel, Imke, Iris Meerschman, Peter Tomassen, Evelien D’haeseleer, and Kristiane Van Lierde. 2026. “Experiences of Patients with Unilateral Vocal Fold Paralysis : A Mixed-Methods Study of the Insider’s Perspective.” JOURNAL OF VOICE 40 (4): 1246.e5-1246.e20. https://doi.org/10.1016/j.jvoice.2024.03.025.
Chicago author-date (all authors)
Kissel, Imke, Iris Meerschman, Peter Tomassen, Evelien D’haeseleer, and Kristiane Van Lierde. 2026. “Experiences of Patients with Unilateral Vocal Fold Paralysis : A Mixed-Methods Study of the Insider’s Perspective.” JOURNAL OF VOICE 40 (4): 1246.e5-1246.e20. doi:10.1016/j.jvoice.2024.03.025.
Vancouver
1.
Kissel I, Meerschman I, Tomassen P, D’haeseleer E, Van Lierde K. Experiences of patients with unilateral vocal fold paralysis : a mixed-methods study of the insider’s perspective. JOURNAL OF VOICE. 2026;40(4):1246.e5-1246.e20.
IEEE
[1]
I. Kissel, I. Meerschman, P. Tomassen, E. D’haeseleer, and K. Van Lierde, “Experiences of patients with unilateral vocal fold paralysis : a mixed-methods study of the insider’s perspective,” JOURNAL OF VOICE, vol. 40, no. 4, p. 1246.e5-1246.e20, 2026.
@article{01HVP23HN0HJ81P6KQWAP7GT1Y,
  abstract     = {{Objective. Unilateral vocal fold paralysis (UVFP) is often characterized by severe dysphonia and has a significant impact on a patient's communication in daily and vocational situations. Having a better understanding of how UVFP influences quality of life and patient experiences can help improve patient-centered care in this population. Therefore, the purpose of this study was to explore the lived experiences of patients with UVFP. Methods. Twenty-five adults with UVFP (age range: 39-84 years) participated in the study. Quantitative data were collected from 22 participants, using the Voice Handicap Index (VHI), Dysphonia Severity Index (DSI), and Acoustic Voice Quality Index (AVQI). Qualitative data were collected from 25 individual semistructured interviews, which were recorded, transcribed, and analyzed with the software program NVivo. The interviews were coded using an inductive thematic approach. Results. Quantitative results showed a mean DSI of-1.6, mean AVQI of 3.80, and mean VHI of 45.8 in the participant group. A statistically significant, moderate (positive) correlation was found between VHI and time after onset (in years). From the qualitative analysis of the interviews, four main themes were identified: emo-tional impact, psychosocial impact, physical complaints, and coping strategies. Voice problems caused by UVFP generally had a negative impact on patients' emotional and psychological well-being, with considerable effects on participation, self-identity, and professional activity. Participants demonstrated a combination of problem-focused and emotion-focused coping strategies to accommodate to these issues. Half of the participant group also showed avoidance as a coping style. VHI scores were significantly higher in participants who re-ported experiencing current emotional and participation problems due to UVFP, and who had not yet accepted their new voice. Conclusion. The themes from this study emphasize the importance of focused anamnesis and emotive counseling in practice, with specific attention to the psychosocial and emotional impact of UVFP.}},
  author       = {{Kissel, Imke and Meerschman, Iris and Tomassen, Peter and D'haeseleer, Evelien and Van Lierde, Kristiane}},
  issn         = {{0892-1997}},
  journal      = {{JOURNAL OF VOICE}},
  keywords     = {{Coping,Dysphonia,Experiences,Mixed-method,Quality of life,Vocal fold paralysis,QUALITY-OF-LIFE,VOICE DISORDERS,INDEX,DYSPHONIA,ADULTS,COMMUNICATION,IDENTITY,THERAPY,SPEECH}},
  language     = {{eng}},
  number       = {{4}},
  pages        = {{1246.e5--1246.e20}},
  title        = {{Experiences of patients with unilateral vocal fold paralysis : a mixed-methods study of the insider's perspective}},
  url          = {{http://doi.org/10.1016/j.jvoice.2024.03.025}},
  volume       = {{40}},
  year         = {{2026}},
}

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